I Have What???

Fibromyalgia (new lat., fibro-, fibrous tissue, Gk. myo-, muscle, Gk. algos-, pain, meaning muscle and connective tissue pain) is also referred to as FM or FMS. Fibromyalgia is characterized by chronic widespread pain and allodynia, a heightened and painful response to pressure. Fibromyalgia symptoms are not restricted to pain, leading to the use of the alternative term fibromyalgia syndrome for the condition. Other core symptoms include debilitating fatigue, sleep disturbance, and joint stiffness. Some patients may also report difficulty with swallowing, bowel and bladder abnormalities, numbness and tingling, and cognitive dysfunction. From: Wikipedia, the free encyclopedia WOW… Sometimes I can’t believe I was diagnosed with this a few years ago. When they told me I had no clue what it was. “I have what? What in the world is that, and how do you spell it?” I did research and tried to educate myself, was chosen to be a part of a three month study which gave me a chance to ask many questions to many doctors. Ultimately, there’s not much I can do but learn to live with pain. I try hard to keep busy and my mind on other matters. Sometimes it helps. What do you do?
enblanco enblanco
46-50, F
2 Responses May 14, 2012

(Sheesh. I hate typing on my kindle somedays.) Anywayyyy... my GPA got me on the Who's Who List that year, with an award for the National Dean's List. I thought exhaustion kinda went with all that. Then I found out it didn't. That the insomnia I had always had was from the FM. Then my back started getting really bad, and I thought ok... it's the FM too. I wasn't so lucky. At 31, I found out I had degenerative disc disease. So now, I was up to (pay attention...lol) FM, OA, DDD and that is without the seemingly unrelated lifelong asthma, and the polycystic ovary syndrome. I would explain that one but it is as lacking in understating as FM is. Yep. I get the overwhelming part real well. Feel free to message me if you are in need of an ear or a shoulder. Sleep is the most important aspect, so focus there first. Get a sleep study, use any method you can find. It is vitally important. I have no answers because my own is complicated by things I haven't mentioned here.. believe it or not. The other key? A sense of the humorous and a sense of remembering what your blessings are. Everyday. Every minute when it is the worst. I am very blessed. And yes, I mean it. I have learned, grown, evolved and been broken. Yep that is a blessing. It makes you ask for help. Hard for me, harder than anything.... but needed. The blessings are there. But you HAVE to look for them or the depression takes hold and it is a ferocious beast. I fight him daily, hourly sometimes. And others... I let him have me. Its a constant battle but only you can decide if you are worth it. I am betting you are. I am here. Just Msg if you need. Thinking I need to spend more time on E.P. .. blessings to you..

Hi Mystic:

WOW..you have gone through a lot . More than me for sure. I too have days when I can't sleep. Some days are better, as a matter of fact the past couple of days haven't been too bad. I'm not quite sure if the B12 and complex plus the vitamin D have helped. Maybe. Blessings to you as well. I hope all the best for you and your future. Keep the good attitude going.

Thanks enblanco:) Life is life.. it's what you make of it. I don't see it as being more than most people, though I get frustrated sometimes (as you would see in my other postings from a couple years ago) who whine and complain about things that will pass... just because this won't go away. This is my reality. Other than that, I remember how much worse it could be, I remember the blessings I get from the situation, and just get through the day, or the minute if it's one of THOSE days. lol. :) Like I said though, I'm here if you need to vent. Sometimes only someone else going THROUGH it really gets it.. I love my family, and my friends, but the few friends who live it, they are my strength, because they don't get mad when I don't answer the phone for a week, or when an email gets ignored for a few days.. they realize I am coping... and that sometimes I end up on the assend of a sleep cycle.. like now. I am up ALLLLLL night because a week ago, I went like a fiend for a day, couldn't sleep that ONE night, got tired the next day, and wham.. I'm stuck in a cycle of sleeping all day, and up all night. Thank goddess my fiance is patient! well.. and I'm quiet. lol:)

Hi, I am Becky. It is overwhelming more often than not. It is an incredibly undefined illness that means many things to many people and if you are like me, Divine forbid, multiple illnesses /diagnosis plagued, it can break your spirit.<br />
For me, its the insomnia. Before FM, I was taking nyquil and tylenol P.M. every single night, and that was just to get to sleep. Nevermind actually staying that way. Then that quit working and I finally got sent to a rhumatologist who told me that at 30 years old I had both FM and osteoarthritis. Then he left the room... no follow up, no suggestions. Just "here is the end of life as you know it, bye now, don't let the door hit you.". I just tried to.... deal. I was a single mom, raising two young men, working two jobs, going to college, and maintaining a GPA that got me on the