I Call Bullshit!I was diagnosed with Fibromyalgia in 2010 and find this "mysterious" illness (with no test to confirm whether you have it) to be such BULLSHIT!
I used to be a busy single mom who had almost endless energy when I suddenly found myself sick with an upper respiratory illness in 2008 that would NOT go away (i caught it from my co-worker who had just gotten back from an extended medical leave and returned sick after traveling to Puerto Rico). This appears to have been my trigger because things spiraled out of control for me after this. [So everyone is aware, I have always been a sick person (I catch everything and anything that goes around, have had chronic ear infections, plus constant stomachaches my whole life) and am generally (I hate to admit) a stressed out/worried person...however I've never been THAT sick for THAT long before.] I was put on 3 different antibiotics over the course of 6 months but nothing helped. The last thing the dr. did before I made the decision to quit my job was prescribe allergy medication. huh?
My job was extremely stressful (helped open a law office that ultimately closed after I left) but I loved what I did and felt like I found my calling. As my health deteriorated, however, I knew something was terribly wrong. Losing my job was only the 1st of many losses to come. The doctors have been basically less than sympathetic and the most useful advice I've been given is to change my diet and eliminate unhealthy foods/beverages. I also saw a chiropractor for a few months and he was able to get some symptoms under control (numbness in hands/feet, burning sensation in face nose & throat, acne, stiff neck). Another thing that has helped is modifying my behavior. Through time I came to realize my body pain was being intensified while sitting...sitting in a chair...so I've almost completely eliminated this from my daily routine. I sit when i drive but otherwise try to only sit indian style, stand, or lay in bed. I've also quit going out anywhere public except grocery shopping or, on a rare occasion, to another person's house. If I go places, I often end up in agony later that night or the following day so I've learned it's best for me to just lay low. The less I do, the better.
I'm so angry because I feel helpless and hopeless things will ever change. This is NOT the person I wanted to be. I've read other people's stories and hear about their struggles and am convinced there is more to the Fibro story than we're being told. Could this be a new plague? Is it some kind of conspiracy? a terroristic attack? I've read that the majority of people who suffer from Fibro are female. What's the common thread? I know we women carry purses, laptops, and babies on our left side often while wearing bad shoes. Have our bodies been thrown out of alignment? Could it somehow be caused by a chemical found in a common product we all use like makeup, nailpolish, or hair dye? Could this "syndrome" somehow be to connected to sexual and/or physical abuse? Is it possible there are many more males who have it but don't complain about being "tired" or in "pain" and instead the illness rears it's ugly head in the form of mental illness/instability, suicide, or what appears to be laziness?
The questions go unanswered and, frankly, I've quit caring about finding answers too much. My focus is more on living life in a state of bliss, albeit in pain, with whatever set of circumstances I'm forced to face. It has been quite the journey and there are days, hours, moments, when I wish/pray for death but I find focusing on the here & now helps. Advil pm is another lifesaver (but I HATE taking pills, so I only use it sparingly). Eliminating caffeine helped get rid of the restless legs and no more sitting means no more back spasms. It's been tough accepting my new reality but I'm managing day by day.
Good luck to you/us in finding relief!
shylamarais 31-35, F 15 Responses 2 Jun 11, 2012