Unexpected Life Change

In 2000 I was diagnosed with Chronic Fautigue. I was still able to work for about 8 more years. Then it developed into Fibromyalgia and I was diagnosed with it at the end of 2007.  In June of 2008 I had to quit my full time job due to the pain and the side effects of the new prescriptions I was on.   It became more and more difficult to work full time.  The pain in my body and the brain fog I felt was horrible.  Made it hard to concentrate and focus at my job.  By the end I was lucky to put in 4 hours at work a day.  Once I quit I had to apply for welfare and social security disability.  Luckily I was approved for disability the first time around.  Living on welfare was so difficult.  I feel blessed I was approved for disability.  Every day is a struggle for me to keep house and take care of my young daughter.  I feel tired every day.  I lack motivation almost daily. But I push myself to do the things that need to be done and take good care of my daughter.  I feel blessed that my medication helps reduce the pain.  I have many blessings in my life.  And the best part of all this is that Fibromyagia is not terminal.  I can still live and accomplish what I want, but it just will take me a little longer to do, that's all.

I still have hope and faith.

 

starprincess starprincess
31-35, F
4 Responses Feb 16, 2009

Try to think of it this way, welfare is for those who need the help, you have worked hard enough to the point that you couldn't any longer. Your priorities were ahead of your pride. To me that is a parent who really knows how to make sure that her daughter's welfare comes first. I have seen in so many cases where pride did nothing but make a person lose there home and there children because they couldn't take care of there own children. Pride is one thing when you are proud of the things that you do, but it doesn't put food on the table.<br />
You did the right thing and I am sure your daughter is grateful too.

IT SOUNDS LIKE YOU ARE AN ...A PERSONALITY................. LIKE ME OR I SHOULD SAY LIKE I WAS I WAS DIAGNOSED WITH CFS FIRST ALSO BUT I DIDN'T GET YEARS IN BETWEEN BEING DIAGNOSED WITH FIBROMYALGIA I GOT ONE MONTH. I HAVE TRIED TO FIGHT AGAINST MY BODY MY MIND KEPT TELLING ME YOU CAN DO ANYTHING YOU WANT TO ,YOU SOON FIND OUT WHAT THE PRICE IS , YOU GET MORE PAIN,SO AS HARD AS IT WAS I HAD TO RESIGN MYSELF INTO LIVING MY LIFE DIFFERANTLY. SO I TOO NO LONGER WORK, I WORKED AT A HOME DAYCARE UNTIL THE PAIN WAS INABLING ME FROM BEING SAFE PICKING UP TODDLERS FROM THE FLOOR , SO NOW I DO HAVE TO NAP EVERY AFTERNOON. I DO HAVE AN EXERCISE BIKE WHICH NO MATTER HOW MUCH IT HURTS I TRY TO USE IT EVERYDAY. I HAVE GAINED 50PDS DUE TO MEDS AND LACK OF EXERCISE, SO YOU HURT IF YOU DO EXERCISE OR YOU GAIN WT WHICH ONLY MAKES EXERCISE HARDER. HOW OLD IS YOUR DAUGHTER? DOYOU HAVE A SUPPORT SYSTOM IN PLACE FOR YOU? WE ALL NEED A SUPPORT SYSTOM HAVING WHAT WE HAVE AND I AM SO GLAD YOU HAVE FAITH HAVING A SPIRITULIAR SUPPORT SYSTOM TO LEAN ON THE DAYS YOU FEEL LOUSY CAN MAKE ALL THE DIFFERENCE I AM SO BLESSED TO HAVE A HUSBAND LIKE I DO HE HAS SEEN ME AT MY WORST AND STILL SOME HOW GETS ME TO LAUGH. MY CHILDREN ARE OLD ENOUGH TO BE ON THEIR OWN MY YOUNGEST IS 18. SO I WOULD LOVE TO BE APART OF YOUR SUPPORT SYSTOM,VIA THE WEB. HOPE TO HEAR FROM YOU.....DRAGONFLY50DO

Hope and Faith are two of the most important components of having a chronic disease. They have gotten me through the past 10 years. It's wonderful to hear people who have these painful diseases, be so positive. We all know how hard that is most days. Bless you.

That is great to hear (not that you are sick, but your attitude). You sound like a very strong and determined person, my hat's off to you.