This Is My Life With Fibromyalga

ONE OF THE MOST FRUSTRATING ASPECTS OF FIBROMYALGIA  SYNDROME IS THAT OTHERS CANNOT SEE OR FEELTHE MAGNITUDE OF THE PAIN YOU ARE  EXPERIENCING. FAMILY AND FRIENDS MAY REMARK ABOUT HOW WELL YOU LOOK. THIS IS DISTRESSINGLY INCONSISTENT  WITH HOW TERRIBLE YOU FEEL. IF VISIBLE SIGNS SUCH AS A RED RASH CORRESPONDING WITH PAIN WERE VISIBLE, OTHERS WOULD SEE IT AND EMPATHIZE. BUT THERE ARE NO OUTWARD SIGNS THAT INDICATE HOW MUCH PAIN YOU FEEL.THUS FMS CAN BE DESCRIBED AS AN INVISIBLE, ON GOING NIGHTMARE THAT OTHERS CANNOT SEE OR FEEL. BEING TRAPPED IN THIS NIGHTMARE MAY CAUSE YOU TO  DOUBT YOUR OWN SANITY,WICH MAY CONTRIBUTE TO DEPRESSION AND LEAD TO WITHDRAWAL FROM SOCIETY INTO A  LONELY ISOLATION. I WAS DIAGNOSED WITH CRONIC FATIGUE SYNDROME 2YRS AGO AND THEN FIBROMYALGIA. AND BEING THE A TYPE PERSONALITY THAT I WAS IT HAS BEEN A LONG HARD ROAD OF HAVING MY BODY CONTROL MY MIND. I HAVE A VERY HELPFUL HUSBAND AND A SUPPORTIVE FAMILY. BUT IT IS STILL VERY HARD  FOR THEM TO UNDERSTAND THE DAILY ONGOING PAIN I HAVE EVERY DAY. THATS WHY I NEED OTHERS WHO CAN TRULY UNDERSTAND MY DAILY LIFE, AND THE ONGOING PAIN YOU HAVE TO LEARN TO LIVE WITH.  

DRAGONFLY50DO DRAGONFLY50DO
46-50, F
2 Responses Mar 8, 2010

It's so true. I can speak to both sides of this... Had an amazing conversation wtih my mother shortly after I was diagnosed. I apologized to her... and let her know that I never had doubt she was in pain, as she said, but never really understood how much pain there was or how that felt until I was going through it myself. It's hard. And I'm trying to face it now with understanding toward others as well. I know my family doesn't completely understand it and it makes it hard for them to sympathize. But I try to be accepting of them and how hard it is for them to deal with something they can't see or feel. I don't know abou t you, but it's one small way that helps me keep from feeling sorry for myself.

i m sad & surprised that people dont feel the pain of other felling is not related with mind is is the matter of heart if heart is full of compassion then it must be sad with other pain it must be vibrets with other viberration