Someone To Talk To!

              Hi, I am a 40 year old woman that was diagnosed at the age of 23 with Fitz-Hugh-Curtis syndrome. I have had to have mulitpal surgerys because of this. I know longer have the actual diease but I have the scar tissue weaved in and out of my liver and it is attached to my right side as well. The scar tissue is now affecting the lower bowl area. 

            This is very painful and  I was on the pain patch for about two years and that helped level out the pain some. The problem is that the patches shut down my colon and I was in the hospital in a mess.

       

     Now the doctor does not want to give me anything for the pain for fear that it will shut my colon down again.  I am to the point that I am depressed because I hurt and do not feel like doing anything, that is not the way I want to live the rest of my life.

 

          I am from a small town and the closest city to me is St. Louis Mo. so not many doctors around here seem to know what to do. I know that I am not the only person that has ever had to deal with this problem, I just have no idea what to do anymore.

 

            I am tired of feeling this way. If there is someone that thinks that they have some advise I would love to hear it, juswt to have someone to talk to about it will even be great.

 

Thanks for any help,

Sincerly,

Sadtiredone

sadtiredone sadtiredone
36-40, F
3 Responses Mar 5, 2010

Dear sadtired one,

I know it's a few years later but I also have Fitz Hugh Cutis syndrome. I have had it now for 2 years. I'm 24 years old. It's relieveing to find someone else that knows how I feel. I have trouble moving, stretching, breathing heavy and shoulder pains. I guess I had the disease for years in my body and when they found it I was hospitalized because I became unconscious and unresponsive. I am on pain meds but my doctor wants to take me off because he said its an addictive narcotic. :( I don't know what to do, I try to excersice but it doesn't help and I'm havin some colon obstruction recently. I didn't think my life would be like this. I've been a depressed mess. Please respond back. I would love to have someone like you to talk to.

Hi there I have the syndrome too, only thing is Im not aloud to be operated on which frustrates me.<br />
I see that you wrote about lower bowel pain, I also get that pain too, im currently searching the web for natural treatment if you know of any let me know....

Hi there I have the syndrome too, only thing is Im not aloud to be operated on which frustrates me.<br />
I see that you wrote about lower bowel pain, I also get that pain too, im currently searching the web for natural treatment if you know of any let me know....