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What's It's Like To Starve To Death Very Slowely

I had emergency surgery in 07 for H-Pyloric ulcer perferation.  I was in the hospital for 5 days.  When I was discharged there were no eating instructions.  Just come back for staple removal.  For the next year I had problems with vomiting and extreme pain in the mid back and stomach.  After 1 year of seeing doctors they finally did the proper test and diagnosis was gastroparesis.  They said at that time in 09 that only 10% of my stomach was working, but the doctor never told me anything else.  No diet instructions, no referal to a dietition, nothing again.  Not even an explaination on gastroparesis and what it does and does not do.  So for the last year my body has been starving itself to death.  I'm 5'7" tall and I only weigh 100lbs.  My hair is falling out now, my skin is really thick and splotchie,  I don't even have the energy to get out of bed some days.  My feratin levels are very low (iron), and I have been loosing protein in my urine.  I went for a second opinion last week and they finally explained gastroparesis to my husband and I.  The only recommendations he gave us was try this herb. Liberogast.  There dosn't seem to be any concern about the weight loss.  This is all I can write for now because I am still in the process of trying to get my body to absorb food. 
Debbieducati Debbieducati 46-50, F 5 Responses May 28, 2010

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If it hadn't been for the surgery in the beginning, I would have thought my daughter had written this. All the same! I have been a long painful for her search for help with this gp!!! After so many fights with hospitals Dr's passing her to & fro! We are at square one!! An eating disorder clinic was a hope to help because this gp creates sever malnourishment, depression & a hopelessness in our health care system. Thankful to God & praying thru his son Jesus, she is still with us. A failed pic line due to an RN's neglect ( the blood thinner was depleted by the RN & she has large blood clot's in her, now 6months of 2 trips a week to the lab trying thru blood thinner to try to dissolve them. ( The RN was fired, but our daughter has more life threatening situation to live with.) Now with a replaced gj tube in her stomach/intestines. All anyone will say. Try & keep the stomach tube closed & don't drain it & try to eat. I have begged & pleaded with the clinic Dr. & the gastro. Dr. and a dietician @ the last hospital. There has to be a menu, a starting point to try to put food into it. Not just ensure along with this gj feeding tube. By the way it is 24 hour feeding. I get no answers. Nothing, one Dr. said he won't speak against another Dr's work. Well, we're asking & trying to put what's right for a year 1/2 fasting stomach that actually won't work! This is the slowest & most painful destruction of a God given preciouses life. She has tried smoothies, 7up, pudding, yesterday they gave her a popsicle after her g j tube replacement. She did as they say & didn't open the port to drain her stomach. So it comes up the usual end! I tucked in my over 30 years old, 87 pound skeletal daughter & held her trying to get her warm. Wondering how long can this go on! When will we be holding her for the last time to bury her. God have mercy! I pray he say's yes & we find someone who will take ownership & want to save her life. She want's to & has tried everything they say. To no avail. I am so wondering is this person who wrote this in 2010 still with us? If so where did she find help.

I came accross your article while doing research for Gastroparesis and deaths. I told my GI that their was a recent death of gp and that g-pact.org said there have been more documented cases. He said it wasn't possible to die from gp and that there had to have been another condition as well. I am going to be on domperidone again to try once more for my symptoms. I belong to Team Inspire which has been a great help to me and my condition. I wrote to Dr. Oz to see if he would do a show on this to bring more awareness. They don't know where mine came from either or how to fix it. My only concern is if my stomach doesn't work what else will be next. I started taking vitamins for hair skin and nails as well as vitamins D and B since they have both been low. Hope you post again take care. Daniele Albanese

I came accross your article while doing research for Gastroparesis and deaths. I told my GI that their was a recent death of gp and that g-pact.org said there have been more documented cases. He said it wasn't possible to die from gp and that there had to have been another condition as well. I am going to be on domperidone again to try once more for my symptoms. I belong to Team Inspire which has been a great help to me and my condition. I wrote to Dr. Oz to see if he would do a show on this to bring more awareness. They don't know where mine came from either or how to fix it. My only concern is if my stomach doesn't work what else will be next. I started taking vitamins for hair skin and nails as well as vitamins D and B since they have both been low. Hope you post again take care. Daniele Albanese

I came accross your article while doing research for Gastroparesis and deaths. I told my GI that their was a recent death of gp and that g-pact.org said there have been more documented cases. He said it wasn't possible to die from gp and that there had to have been another condition as well. I am going to be on domperidone again to try once more for my symptoms. I belong to Team Inspire which has been a great help to me and my condition. I wrote to Dr. Oz to see if he would do a show on this to bring more awareness. They don't know where mine came from either or how to fix it. My only concern is if my stomach doesn't work what else will be next. I started taking vitamins for hair skin and nails as well as vitamins D and B since they have both been low. Hope you post again take care. Daniele Albanese

I ache when I hear your story. If it weren't for my own research, I'd probably be in your shoes.



For me, diluted Glucerna (over the counter, Ensure-like product) has helped me get to the point where my hair isn't falling out any more.



I hope you find what works for you.



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