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Mine Started In 2005 When I Was 54


I am a 59-year-old man.  We were in Honolulu at a luau in 2005 and I had terrible nausea on the bus ride back to the hotel.  I was up all night trying not to throw up.  That winter I lost about 50 pounds.  Daily nausea, no vomiting.  I just couldn't swallow food or drink.  The constipation was hell.  I wouldn't go for days on end.  But I got better and gained back my weight and then some.  I have had sporadic nausea since then.  I don't like to go out to eat because I could have the urge to throw up at any time.  My doctors gave me colonoscopy, endoscopy, CT -scan back in 2005, all negative.  It wasn't until February of 2010 that I had the gastric emptying test and we found out that my stomach empties only 12% in 90 minutes (instead of the normal 50% in 90 minutes).  Why didn't they tell me I had gastroparesis five years ago?  It's a no-brainer!  I'm not having a good time right now.  I wake up OK but after coffee and a bagel I get full and queasy and I don't really want lunch but I make myself a sandwich and drink a glass of milk.  I take vitamin C and a multivitamin every day and have lost only about 20 lbs. this time.   I take Reglan as much as I can, but it makes me jumpy, sleepy and depressed sometimes.  Lying down seems to help relieve the nausea most of the time.  And at night I take Ambien and usually have a peaceful night's sleep.  I look forward to going to bed every night just for some relief from the stress of the nausea pangs.  My therapist says I'm depressed.  Who wouldn't be with this daily routine of nausea, anorexia, constipation and reaction to the Reglan?  I have continued to work (teach) for the last five years but am wondering how long I can keep it up.  My voice is giving out, I guess because of the exhaustion of dealing with all this.  My family and friends are worried about me.  I occasionally have suicidal thoughts but love my family too much.  So far I haven't thrown up.  I have emetophobia (fear of vomiting) so that wouldn't be good.  I asked the doctor if gastroparesis ever goes away.  He said no.  I asked him if it gets worse and he just kind of grimaced.  There's a lot they don't know.  I asked about the Enterra pacemaker but was told that that was messy and was for people who were on feeding tubes and the like.  So, there seems to be no end in sight to this suffering.  And I may just have to retire early to deal with it.  I hope this phase passes and I get to feeling passably well again, for at least a while.  I commiserate with all of you who are suffering from this condition.  If anybody has had any success in treating the symptoms, I'd love to hear about them. 
dpardess dpardess 56-60 1 Response Jun 8, 2010

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I have trouble tolerating any real food at the moment, so I've gone on a liquid-only diet. I was losing weight really fast until I started using the Glucerna (like Ensure, but gluten-free). But even that bothers me if it's full strength (maybe because it's so thick?), so I dilute it 50/50 with water. If I take 4 oz Gluc in 4 oz water every 1-1/2 to 2 hours, my energy level is better, the pain and nausea stay away, and I have less depression. If I don't have solid food, I don't get the pain at night when I try to sleep. It's also easy to mix up the Gluc in the morning (I keep some of the empty bottles on hand to use when I dilute it) and put into a small cooler to carry with me. <br />
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My doc wants me to try to eat real food at least once a day, but I feel a lot better when I just do the liquid diet.<br />
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Decisions are really hard to make when you can't predict when you feel like doing anything. I'm struggling with that, too.<br />
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I hope you figure out something that works.<br />
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