My 15 Year Old Daughter Has GastroparesisHi everyone. I do not have gastroparesis but my daughter does. Her gastro nightmare started when she was having odd once a month vomiting spells. I took her to my family doctor and she sent her to a pediatrician where they ordered tests. The found through tests that she has SMA syndrome. Her duodenum was blocked by an artery. She was vomiting quite often with this and her stomach was very bloated. After a few months of dealing with SMAS she was then diagnosed with gastroparesis. They had assumed it was from the fact her stomach and doudenum had expanded from all the food sitting in there all the time. So with 2 strikes against her I agrued surgery for her. There was nothing else that could be done for her. Last summer she went in for surgery. It was the only option for her, she was depressed, withdrawn and losing weight. Everything was great after surgery. She was back to her normal self and could eat anything again. She had a great 6 months till January of this year. Suddenly the vomiting came back. This time is was with acid coming up, bad stomach pains, and no control over the vomiting. It was back to Dr appointments, babyfood and missing school and dance. I failed to mention she is a competative dancer. She trains long hours and mixing this with an illness is becoming harder and harder. This is an awful illness! Its so hard to watch such a smart and talented kid turn into an anxiety stricken vomiting mess. She fears going to school because she can never tell when vomit will just come out of her mouth in class. She has no warning...it just comes when it comes. Mornings are her biggest struggle...its a fight of do i eat today or not. She misses out on normal teenage life cause shes sick half he time. She is lucky to have good days I guess. She has maybe 10-15 bad days a month. I have heard stories of others having this every day. I can't imagine what you all are going through! As for medications she is on Omeprizol and donperidone. She is being weaned off the donperidone as her Dr thinks after 5 months of it it should be doing something and its not helping her at all. She sees a pediatric Gasto specialist since last week. He is willing to try lots of different things to get her better. We are very very lucky to have him! Next step is to switch medications. Then will be to have her scoped. If that comes up with something and he thinks he can fix things she will go to surgery at Sick Kids in Toronto.
I have a few questions for those who are suffering with this awful illness. Are you taking vitamins? If so what kind? Are any of you athletes trying to keep up in your sport? How are you doing this? Have any of your Dr's mentioned surgery? Does stress and Anxiety make symptoms much worse?
I do hope that one day there will be a miracle pill for this or a surgery that fixes it all. Untill then please keep your heads up and my fingers are crossed that you will end up symptom free
mom76 31-35 13 Responses 3 Jun 14, 2010