Gastroparesis.. Update After Pacemaker Was Put It. It Hasnt Worked :(I posted a story almost 2 years ago about having gastroparesis. At the time i had had the feeding tubes and was waiting for the pacemaker to be put in. well an update from then. I had the pacemaker and it seemed to work. for about a month after surgery i could eat whatever i liked and was just starting to get back into the swing of things. I was over the moon that it had worked and i could finally get on with my life and continue my career as a dancer. About a month after surgery i had just began my new weekend job and i had my lunch and all the symptoms that i had had before surgery were suddenly back again.
Since then my Doctor has tried the pacemaker on all sorts of different settings and none of them work.. sometimes the pacemaker is turned up so high it vibrates under my skin and moves which is very painful and makes me sick. Before i had the pacemaker i had pain associated with my gastroparesis but i believe now it is worse. im ok as long as i dont move but after ive eaten lunch the pain is unbearable. I am still swollen like an 8 month pregnant woman after eating anything and it is all getting to much. The pacemaker is now turned of and is due to be removed as it is doing more harm than good. i have seen various different doctors about getting my stomach removed but as i am 18 years old they are very unkeen to do such drastic surgery without knowing the outcome. i could end up worse than i am now.
At the moment i am controlling my pain by taking Tramadol. its very good for pain but makes me sick and dizzy,drowsy and gives me the shakes.. i take cyclosine for sickness. there is nothing i can do about the bloating so i just try and wear baggy tops to stop people staring. I just want some restbite from it all. i was training to be a professional dancer but i have had to give that up so am due to be starting my degree in nursing and later midwifery. i want to help others and feel like i have a purpose. rather than being a burden to everyone all the time.
Gastroparesis is such a horrible disease as so little is known about it. i am lucky that i live in london and have the NHS to pay for my treatments and medications. I know in america a lot of people are turned down by there insurance companies becuase it is not a recognised treatment. this must be very dissapointing but remember that it doesnt always work.
I am feeling more positive these days becuase im finding ways to deal with my situation. it doesnt make it better but it does make it easier. my friends and family dont really understand how i feel. how could they? when they dont have to deal with this everyday.
Anyway that was just a little update for you guys.. anyone with any questions on the pacemaker or gastroparesis or feeding tubes. feel free to contact me :) nt n