Gastroparesis & Malrotation

I was recently diagnosed with gastroparesis after months of constant nausea, stomach distension, pain(especially after eating), flipping between constipation & diarrhea, vomiting or simply not able to eat at all! The beginning of my story I think began at birth. I was born with gastroschisis, which was repaired with immediatly with all intestines put back in at once. I don't know the specifics, but my small bowel was also shortened during this process. I had a imbilical hernia when I was 6, and at that time a belly button was created. Now, I have had numerous digestive issues growing up & throughout my adult life; but it was always just blamed on the gastroschisis. In August 2012, I ended up going to the ER with what turned out to be a full small bowel obstruction. I was in the hospital for a week before the obstruction resolved on its own. I have had almost identical symptoms oer the years, that were most likely partial obstructions. When in the ER a CT Scan was done & they found that my small intestine is malrotated completely to the right. My large intestine is folded over itself on top of my small intestine. After the small bowel obstruction I have had almost constant symptoms of gastroparesis & some that I think are from the malrotation(namely the pain & constipation). I was at my wits end, and about to fire my GI Dr when he finally started listening & did the gastric emptying test. It did indicate that my stomach is slow to empty, but not horribly so. The Dr started me on Reglan, which has side effects that are very scary. Unfortunatly, in the US its one of very few options to control this issue. I will also be seeing the surgeons at UW Seattle for the malrotation issue soon. I am only 35, a mother of a soon to be 5 year old & married to a wonderful man! I want to enjoy life again & I am tired of being sick & tired!
opalt0208 opalt0208
31-35
Nov 27, 2012