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Gastroparesis, Will It Get Worst? Do I Really Want to Know?

Let me start off, i had an eating disorder when i was 14-19.  It was bulimia but i wouldnt vomit i took diet pills, i took laxatives, i excessively worked out. At one point it was anorexia i barely ate for a good year around 17 yrs old? But generally i ate like a meal a day.

I am 22 years old.

 

 

Ok so the **** hit the fan when i was 19 I got mono.  I started eating normally at this point 3 times a day. From then I ended up having severe, severe anxiety about my health and everything in general. When i was 21 i suffered from really bad belching, couldnt eat much, was pretty much living off of nutrition shakes and peanutbutter sandwhiches when i could actually manage them down. Every food i ate would just come up. Then i took prilosec OTC for a good amount of time and of course, I didnt have insurance so really there was no other choice. Two months after (finally have health insurance) i was diagnosed with mild chronic gastritis, Ibs and took nexium for a good year. My doctor was an ******* who really didnt look into my case so much so its a good chance i was misdiagnosed. So for a good year i took nexium, 40 mg daily. Then another year which is this year, age 22  and finally i decide i should check it out again. This year in  OCT I have been diagnosed with  idopathic gastroparesis and mild gastritis= which is nothing and everyone has mild gastritis and IBS (not so severe just constipation and cramps). At this point i was off nexium due to constpation and was taking omeprazole. I liked omperazole alot better.. but im still constipated. The doctor said gastric emptying test was abnormal meaning i have gastroparesis.
Doctor said the ultra sound they found a polyp in my gallbladder and i need to have another ultra sound in 6-12 mo. It is a cholestrol deposit and benign but if it grows i would have to remove gallbladder. As for medicines i can try to ween off omeprazole slowly. As for the reglan just prescribed I should take only as needed, when i feel discomfort. I should take this 15 minutes before eating. He also said to quit smoking. He said this medicine is safe to take while preg. He also said this problem could go away in time, stopping smoking, or taking the medicine. My gastric emptying test said it takes me an hour more than regular healthy people to digest food. It takes me 3 hrs, other people it takes 2 hrs. He said not to be scared and it isnt going to kill me, gastroparesis is not fatal there have been no studies showing someone who has died from this. As for the gastritis i have a mild case and everyone has gastritis, most of my symptoms are just coming from gastroparesis. I was prescribed 5 mg 2 times when needed of reglan. 5 mg. was way too much for my stomach to handle and i needed to cut it down to 2.5 mg. I now take it once a week if anything. Mostly because i have a hard time guaging when its that bad, and the drug is horrible in general and causes horrible side effects that im not willing to encourage. As for the symptoms of gastroparesis. I'm nauseated, constipated, my stomach gets bloated, still get burning, sometimes gerd but rare since i cut down smoking. I havent vomited, I do still smoke and am trying to quit. Everytime i look up info on gastroparesis everyone seems to be expirencing hell, and i'm not.. Weird?  I am grateful but It sucks alot, but i've grown to tolerate the nausea.. I wonder if it will get worst, But try not to think about it because that is just masochistic. 

Non the less i am plauged.
 

I worry will i be able to have children? What are the risks? Will they be healthy?

Will this really go away? what are the chances?

Will this progressively get worst?

 

If worse comes to worse and i need stomach pacer or a tube how long can someone actually live off of those things? and Can i have kids?

 

Is this thing gonna cut years off of my life and make me a weak vegetable because of malnutrition due to not eating like a normal person should?

 

AS for now, i can eat anything. thank god.

YourBeautifulliar YourBeautifulliar 22-25, F 48 Responses Dec 13, 2008

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I am a male with Gasytroparesis. I was diagnosed 3 years ago. I was told eat 6 small meals a day... no cure.... nothing else could be done.. I was having extreme pain and even though i worked from home, my last month working, i only worked 10 hrs the entire month... I relocated to Ca. because i was told that Loma Linda V.A. was doing wonderful things there... After 2 years in the V.A. system, I was told to look in the mirror and say "Butterfly kissed and unicorn farts... all is well, i'm just imagining this" ... FAKE IT TILL YA MAKE IT was all they did...
Anyways, I also was just diagnosed with Fibromyalgia ( something I asked about 3 years ago).. The meds they gave me for the F.M. also helped a bit on the Gastroparesis.. As far as constipation, ( i go once every 5-9 days - maybe) so I understand constipation... i found a natural tea called SMOOTH MOVE.l It worked twice, then no more ( normal for this thing)..
I have started using medical canibis to battle the pain and nausea, and it seems to help a bit..
The main problem I am having is that Gastroparesis affects mostly type 1 diabetic women... I am a type 2 diabetic male... In 3 years I have yet to find another male battling this... WHen I respond to a post from a male ( even though they are older posts) I have gotten 3 replies, all saying they were sorry toi report the male has passed...
ANY MALES OUT THERE WITH THIS ???
drewcelani@gmail.com
Good Luck All -
-d-

I was diagnosed with gastroparesis last month after being hospitalized for a week. Usually the ER would give me a iv and a few shots and some nausea prescriptions. I have had some episodes over the last few yrs. Not happy with the hospitals around my house.
I am a 33 yr old male without diabetes..although it does run in my family. 4 yrs ago..IBS and stress is causing the stomach pains, that's what I was told. 2 to 3 times a yr in the ER vomiting uncontrollably. Then on the way home from vacation in florida on new yrs eve, it hit me again. Vomited all day in hotel room before suffering the next day home. Was in this state for 10 days before a different ER admitted me..had gone to 2 different other hospitals. Telling me that the i had cyclic vomiting from marijuana. I think the weed helps make my appetite good. Finally after a couple days, they did a stomach test and told me I had severe gastroparesis. Thank God and with reglan and pepcid..not on zofran anymore..I have not had an episode in 3 weeks and am eating just about everything. Scared it might come back, I started reading this forum and wanted to let people know that the botox helped me, I have also quit smoking. But there is hope! I just thank God

maybe you have found relief or your gastroparesis has gone away but i;ve had mild GP 3 years with mainly bad nausea & bloating. recently found relief from an herb called Iberogast on amazon. its changed my life. hope you are feeling better now. its similar to reglan without side effects.

I am doing clinical research on gastroparesis: Effects of Global Osteopathic Manual Therapy on Patients with Idiopathic Gastroparesis. Looking for subjects to recruit: location: Sonoma County California. Message me if interested and Please spread the word.

I am doing clinical research on gastroparesis: Effects of Global Osteopathic Manual Therapy on Patients with Idiopathic Gastroparesis. Looking for subjects to recruit: location: Sonoma County California. Message me if interested and Please spread the word.

I am in Southern California... Have been dealing with this for 3 years... drewcelani at g mail.

I am doing clinical research on gastroparesis: Effects of Global Osteopathic Manual Therapy on Patients with Idiopathic Gastroparesis. Looking or subjects to recruit: location: Sonoma County California. Please spread the word.

You are the first person, I have read who is exactly what I'm going threw. I'm going on forty, two kids, I have suffered since a teenager. No insurance until this year. I have had my gallbladder taken out. At this point I have been a lab rat for five months. They are also taking about notice injection, not to sure, I want to go that route, our surgery. I still suffer with lack of food. Trying to manage a big family. I will continue to still research, and pray. Watch the Doctors, just another dot. They have given so mean meds to try, some huge side effects. You kinda have to be your Owen Dr too. Nobody knows your body better than you. I pray resolution for me and many others who suffer, from this. God bless hang in there

I have no gallbladder due to infection, no appendix due to chronic constipation, have had extreme gastritis (vomiting blood) currently have gastritis, and was just diagnosed with gastroparesis. i have not found any good news either... but i do know that smoothies are our best bet... and look up vagus nerve stimulation, the vagus nerve is part of the sympathetic nervous system, and basically controls the function of most our internal organs including our stomach.

If it makes you feel any better, I have a mild to moderate form as well. Most people on these websites scare the daylights out of me and actually cause me severe anxiety. As a result, I am hardly ever online because its just not healthy. I was being nerotic today and came across your post. My symptoms are very similar to yours. I am on domperidome which I only take once or twice a week. The rest of the time, i used diet, yoga, accupunture and therapy to combat symptoms.

Hi "Beautiful Liar,"
I just had to tell you how much I related to your story. I was just diagnosed with GP last week. I had an endoscopy (to look for what I thought would be an ulcer, H-Pylori or acid reflux. The doc told me after the test that she couldn't see a lot bc there was still a lot of food in my stomach. (I fasted for 14 hours before the test).

I spent the entire weekend researching GP and have almost all of the questions you have. (Except, I am not concerned about having kids).

I will tell you that I read nothing that said you can't have kids. The only thing I read is that there are certain meds that can affect breast size and lactation.

I don't know how you are dealing with your symptoms with so few meds. God bless you! For me, I take Prilosec twice per day, Reglan twice per day and a prescription laxative.

I joined this group because I have past experience with support groups and I believe they can be a life-saver.

Its hard not to get down about this. But, I honestly believe that staying in the present, not assuming the worst and staying positive is extremely helpful.

I saw that the more anxious I became, the more my GP symptoms increased. But, we also need a place to share our fears and know that we are understood
and supported.

Hi.. Its hard, but try not to worry about so much at once. You said it took 3 hours to empty your stomach, my specialist told me that's a little slow but many people are like that. With my test it took 6 and a half hours so the doc knows for sure I've got a big problem! I don't see in any of my reading on this subject where it will interfer with having children. It may not necessarily get worse. You just got to try to eat 5 or 6 small meals a day even if it causes some discomfort. Have you tried drinking boost or ensure? Even one of those a day would give you the vitamins and good nutrients that your body needs. I hope I've helped you a bit, and please try not to worry so much... I've been sick with several diseases for 4 years now but my motto is one day at a time because like you I was worrying 24/7 and decided I just couldn't do that anymore because worry and stress can bring on alot of unwanted health problems too!! Good luck, and I do hope you and start feeling better soon..

I'm going though the same thing. And I wish someone had some answers for us. Unlike u 2 years I jus woke up with the **** and don't know how I got it.

I am 59 and was diagnosed with gastroparesis 2 yrs. ago. I have been on prilosec for 12 years for acid reflux. I am now seeing a wholistic healer and have gotten more relief from her than any dr. I recently went off my prilosec cold turkey and am experiencing stomach discomfort and acid coming up in my throat at bed time, thus not sleeping too well. As for my gastroparesis, I too was put on reglan. It is a VILE drug and should not be on the market. I searched out several gastroenterologists until I found one that can prescribe a drug called Domperidone. You can only get it through a compound pharmacy because it hasn't been approved by the FDA yet. This drug's only side effect is tenderness in the breasts and I have not encountered it yet and been on it for 1 yr. I am thoroughly convinced that prilosec contributed to my gastoparesis. Good luck to you.....I also suffer severe constipation

I had 3 children,the only problem I had during was vomiting more than usual. I am going back onto my Probiotics. I thought once I had my Colectomy surgery it would be gone. But just the opposite happened. I get DXed with gastroparesis. I am going back to my pre surgery diet,and see if I can give my gut a rest. I see there is no cure for this,and glad I found out quickly what it is.

I just got the call about be having this today. I wonder if meds can cause this? I aways had gerd as a child. I also take keppra 2 times a day at 500mg way down from 3000 daily. I am 230 lbs so that is differant for you all but I also have low bp and had in the past thyroid issue the low funtion not diecbectic at least. only 35 . this is horriable my gallbladder was mush 3 years ago. feel tied all the time they have me on prolcec once daily 40mg I also on my own take a emyze paya for digesting help and kefir and it had help some , but it was real bad for six months before I used kefir . I eat raw drinks of fruit and veggie still with water in it with a scoop of green souce. I don't eat any greasy foods and such. so I must have a mild form? but in the past those six monthe I could not eat or drink a thing without throwing up. I would fast and drink broth and tea water and take zofram due to other nausa meds never work or give me hives. since kefir it is better and the chewable emynzes of the paya fruit helps before and after eating. but I wonder what the dr. is going to tell me? on May 9th I will find out. this scares me I'm a mother of five kids I go to college and run my bussiness with Amway/world wide dream builders. It is hard to cook food for others and the smell often times makes me sick so i have my tiny meal. it might help to not eat past 6pm at night and put cement block under the mattress about 3 inches.

I'm new to this forum and have been reading through everyone's stories. After reading this post and all the replies, I'm just amazed at how similar my story is to many others on here. I also have hypothyroidism (diagnosed at 13 years old). Like a few of you, I did have a bout of anorexia when I was 18. And like many of you, I had mono within months before my first episode of gastroparesis. Also, like other women on here, my symptoms completely disappeared while I was pregnant. I wish there were more answers for us, but it's nice to know there are others dealing with the same thing.

I was diagnosed with gastroparesis in 2009 from endoscopy, I couldn't eat, had neuropathy in my feet going up my legs at the time. Very nauseous all the time...lost 22 lbs. Dr. made it seem like this was very simple thing and would go away. He put me on Reglan which I took for a week then developed allergic rash and had to stop. After that I seemed to be able to eat again gained weight,still had bouts of nausea but attributed it to stress...my sister was dying of breast cancer and I was helping take care of her. <br />
. I am not a diabetic so they had no idea why I had neuropathy in my feet. I had been on Nexium, prilosec, omeprazole, zantac, tagamet one or more of these at a time for 25yrs had ulcers and Dr. kept me on it...didn't know they cause rebound acid.<br />
This summer I started again with the nausea, stomach pain everytime I ate, feeling like what I ate layed there for days. Acide increased to point I was poppin nexium like candy. Aug I also started having chest pain and heart palpitations. Dr. had test holter monitor showed Atrial tachycardia..also high blood pressure, which my Dr. said for 3 yrs. I didn't have just nervous when I came there, he also misdiagnosed my skin cancer. I now see different Dr. Cardiologist put me on cardism for the palpitations and altace for blood pressure. As soon as I took Cardism my symptoms got much worse acid so bad I couldn't sleep no matter how much nexium I took. Long story short, I have been on liquids since and have lost over 35 lbs. and have constant nausea, pain even with liquids, very weak and feel horrible. I'm on erythromycin 250 4x daily...it cause more pain and nausea so I take one a day. I could eat chicken noodle soup have eaten everyday for over 3 mos. 1 can just looking at the can now is getting hard. Started drinking ensure this week bc fear feeding tube. with in 30-40 mins my stomach hurts and the bloating with this stuff is horrible. I go from flat to looking 5mos. pregnant in mins. I'm 60yr. old which to a lot of you sounds really old...but it's really not. I have suffered stomach my whole life every since I can remember. I think It was something I was born with. Like the one girl said when she was pregnant she felt better..I did too..I even had a set of twin and was never nausea. It was a year after it came back. Dr. said IBS. I feel for everyone with this. GI said no big deal just a little bump. I hate to see what a big thing is to him. It has changed my whole life this time...I feel house bound I don't want to get anything more. I too have fibromyalgia, raynaud's, under active thyroid, osteo arthritis, osteoporosis etc etc etc. I'm not glad anyone else is sick I'm just glad I'm not alone.

God, I love and sympathize - I have all the symptoms and am sick, feel like death is coming. My love and prayers for all of us.<br />
Chris

What does your stomach pain feel like? I am curious because although nausea is consistently stated as a primary sympton, mine feels more like a constant knawing in the stomach/chest area. I do not really suffer from nausia although I do get sick once in a while after eating. Some of the posts above have mentioned 'severe stomach pain' which makes me feel like I might not be alone when it comes to the type of pain I am experiencing. Finally, sometimes I have heart palpitations. I am not sure if it is related to all of the acid etc. but it really freaks me out! Anyone?

What does your stomach pain feel like? I am curious because although nausea is consistently stated as a primary sympton, mine feels more like a constant knawing in the stomach/chest area. I do not really suffer from nausia although I do get sick once in a while after eating. Some of the posts above have mentioned 'severe stomach pain' which makes me feel like I might not be alone when it comes to the type of pain I am experiencing. Finally, sometimes I have heart palpitations. I am not sure if it is related to all of the acid etc. but it really freaks me out! Anyone?

From the posts ive read everyone seems to have had mono right before they got diagnosed with gatroparesis! Im 19 years old now, i had mono when i was 15, but my gastroparesis started when i was 18 years old, then right after that i got diagnosed with an eating disorder im naturally small i was only 100 pounds no more before i got sick, over the past year i lost 30 pounds and dropped down to 69 because with my gastroparesis being so severe i couldnt eat anything!! then over the summer of 2011 i got diagnosed with endomitriosis, to top it all off !!!! its been a rough year, in and out of every hospital, ive just finally decided no matter how much pain food causes me i have to eat it otherwise i am going to die, ive never been on medsicine for gastroparesis except reglan which always made me feel crappy so i never took it, and my gastro doc didnt really care.

Perhaps give Domperidone a shot, it has worked at times for me because I absolutely will not take Reglan. Best of luck, I know it sucks &gt;.

Wow! I am baffled by all the written comments and feel pretty hopeless for my daughter's future. My daughter, 20 years now got diagnosed with Juvenile Diabetes 6 years ago. This past year she has lived through agony and complete hell. It tooks MONTHS for her to get answers and help. She lost 40 pounds in a few months. She was told she was anorexic...NO! NO WAY! truth is she suffered from neuropathy and gasrtopareses. The stomach does NOT WORK AT ALL. She has a feeding tube implanted in her intestine. She has been on it since August. She is still malnourished and has put on very little weight. Although she does not eat AT ALL she still vomits acid every single night. She had to drop out of college and stop working and has to be plugged into electricity 24/7 to work the pump that puts a liquid diet into her body. This is so ridiculous that they say that the nerve damage done to the stomach is irreversable. How sad is that! I have no idea what the future has in store for her. She feels sick every day and looks dreadful. She has tried every single medications on the market except Domperidone. At one point she was up to 26 pills a day.......she was going insane from all the drugs. She is off all medications at this point except of course her insulin for the diabetes. If anyone has a similar story I would love to hear about it. Thank you so much! Wendy...a heartbroken mommy

Hi! I've had gastroparesis since March of this year after having an abnormal gastric emptying scan. It's been far from easy and I'm always nauseous and in pain and it seems like the reglan nor the bentyl help. I'm 22 years old. When i was 13 or 14 until I was 21 years old, I had severe migraines that wouldn't go away and I had to miss a lot of school cause of it. I'm really skinny and no matter what I eat, I never gain weight. I guess I found out why back in March. When i was 17, I ate mcdonalds, came home and had spaghetti that my Mom had cooked. The next morning at 5am, I was really sick and didn't make it to the bathroom in time. It was so gross and awful. I stayed home from school for half the week. I wish it would get easier.

I was diagnosed with severe gastroparesis in September 2010. I have been suffering from this since contracting food poisoning from eating a McDonalds in January 2010. During the time it took them to diagnose me I suffered from incredible pains. I would end up doubled up on the floor unable to move because my stomach was not digesting food. I went through a number of tests including MRIs, ultrasounds, x-rays, blood tests and endoscopes amoung others but they still could not diagnose me. After losing a lot of weight I was hospitalised and started NG tube feeding. During that week I had a gastric emptying test which then allowed the doctors to diagnose me with severe gastroparesis. Since being diagnosed I spent 9 and a half months passing NG tubes which is pretty difficult to deal having everyone staring at you with being only 16- 17 at the time. The doctors hoped that the NG feeding would put the weight back on which in turn would allow me to get rid of my gastroparesis. It did help me gain a bit of weight but didnt get rid of the condition. I also had an NJ tube which was passed with an endoscope however this blocked up after about a month so I went back to passing NG tubes for a few months. In July 2011 I had an operation to have a PEG tube inserted which in ways is better as it means people are not able to see it but it does mean I have to be more careful as it is easily caught. My symptoms were mainly the inability to eat a lot and extreme pains however over the past few months I seem to have been developing the sickness symptom which I know so many others have. I seem to be being sick after most things I'm eating and last week the doctors decided that they will soon change my PEG tube to a JPEG which will go into my intestine instead of my stomach. I just wanted to share my story as I have found myself that it is helpful to know that there are others out there with similar problems who understand just how difficult it is to live with this disease. Its difficult to stay positive at times but I think everyone who deals with this is very strong at being able to carry on with life as best they can and I seriously hope one day they find a cure for this as everyone deserves to get a normal life back.

I am 49 and was diagnoed around 8 years ago. Unlike everyone else I have gained so much weight I can't stand it (210) . My children make me eat because they worry that I will die. Personally I could go days without eating because of all of the food that just sits in my stomach. I have 3 children who don't understand and a mother who doesn't understand. I am the only person they have heard of having this illness. I have left work early on occasion because I look nine months pregnant. The people at work don't understand either. Instead of pushing me to eat I wish everyone would leave me alone and let me eat when I'm hungry, not when they are hungry.

ughhh just diagnosed with gastroparesis too....i cant doo anything so nasues all the time..my question how did any of u set up ur surgery for ur gastric pacer..how long did it take to get in..and did u deal with the surgeon or ur GI..doc..???bc i got diagnosed by my GI doc by doin a gastric emptying study and i feel like im left to do all the rest of the work to find a surgeon that does this surgery

Hi I'm 33 and just wanted to add a few things.<br />
<br />
I was dx with GP aug of last year they said it was idiopathic due to some weird virus. I of cours did not have insurance and was very ill for 8 months and the doctors are still clueless to what I had. The GP was extremely bad and they almost found it to late they were talking about a feeding tube but not sure my ammune system was strong enough and thought I would get a staff infection. I am 5'8 and normally weigh 130 but I got down to 95 lbs I couldn't even keep water down. It seems to have gotten better as all the symptoms I was having have but I myself am not sure if it's gone or will come back. My heart goes out to everyone with this problem. I am back up to normal weight and take protnix everyday I'm scared to stop it. I have a very bad cough and still live with gerd there are certin things that when I eat dosent mesh well and certin things that eat just fine so I stick with what is good. I also told my bf that he better get ready to have a fat gf cause if this ever strikes again loseing 30 something lbs won't hurt. Good luck in finding answers and thanks for sharing your stories

I was diagnosed with gastroparesis (delayed gastric emptying) at 18. The symptoms started as soon as my boyfriend and I broke up when I was 16. And the only symptoms I had were nausea, vomiting and weight loss. Everyone put it down to stress, but when the vomiting happened every morning like clockwork I was urged to go to the doctor for a pregnancy test. I knew that I wasn't but was over vomiting. Especially the undigested food straight after eating which hurt like hell! My GP referred me straight away to thr gastrologist and I had the barium meal and drink. My test results back as delayed gastric emptying. The normal half emptying time for solids was 144 minutes, mine was 444 minutes. I was put on a strict diet and after 6 months of no changes, I ate whatever I liked and accepted vomiting into everyday life. <br />
<br />
Now I know all of you will hate me for this but at 18 I fell pregnant with my first child and within the first month, the vomiting, nausea (and obviously weightloss) completely stoppped! I am now 25, with 2 children and have not had any signs of my GP returning.<br />
<br />
I have no idea how I came to get gasroparesis in the first place, nor how it stopped. But I'm interested to know if this happened to anyone or knows of anyone who's gastoparesis vanished?

I am 26 years old and was just diagnosed with GP. It all started over Thanksgiving, I had a UTI that wouldn't go away (or so we thought!)--so they kept giving me stronger and stronger antibiotics, which made me really sick. My stomach was never the same afterwards, and over Christmas I was in so much pain and had so much nausea (no vomiting) that I ended up in the ER. They said it was a virus, gave me zofran, fluids and dilluaid, and sent me home with phenergan. But the nausea never really went away (though physically I did feel better and the pain was gone, so I probably did have a stomach virus)--especially at night! I never threw up, but I felt so terrible at night; I'd sleep on the couch because sleeping propped up made me feel better. I'm pretty much a newlywed, so this did not bode well for my poor husband either!<br />
<br />
I finally had a GI emptying study, and it said I had mild gastroparesis. So thankful it's mild, but if this is mild I feel for those who have a severe case! They prescribed me Bethanocol, which is actually a drug to help with bladder emptying, but it works on the smooth muscle in the stomach too (it's an off-label use). I take it 30min before eating and before bed. Today is my first day on it so I don't know how well it will work yet, but not side effects so far! They also gave me Tigran for nausea, I took one last night but it gave me weird dreams so I don't think I'll use that often if I can help it.<br />
<br />
I find that protein (animal, not plant) is hardest for me to digest. I'm already lactose intolerant, so I drink almond milk. The bigger the meal the crappier I feel too. I also feel very nauseous if I am too hungry.<br />
<br />
I'm glad to know I'm not alone!!

My daughter is 4 years old and was just diagnosed with this. We don't know how she developed it - it seemed over night. We have a GI appointment next week. Does it go away or is she going to have to live with this forever? How does one get nerve damage in the lining of the stomach? She has thrown up a lot in her short live... she is in her second year of remission. Her oncologist said it has nothing to do with her cancer treatment. I was reading the post and it sounds more serious than what her doctors are leading us to believe. What diets are you on? Any information would be greatly appreciated.

I find it amazing that doctor's can make this disease sound like no big deal. I was just diagnosed with Gastroparesis in January 2011. I have lost over 50 pounds. I was on Reglan but he took me off of that because the side effects are not good, now I'm on Domperidone, which I have to order online in Canada. I was only taking it before meals, which was once, because I can't eat. Doc informed me this was not the way, I'm to take it 3 to 4 times a day regardless if I eat. Meanwhile, I'm getting woke up at 3 am with severe abdominal cramps and diarrhea! I have anti inflammatory arthritis, osteoarthritis, fibromyalgia, spondylarthropathy, you name it!!! This is the last thing I need! I'm so depressed, irritable, but yet my doctor didin't understand why I couldn't work a full day of work??!!! I'm so flippen tired, by the end of the day I can't concentrate. I'm not getting paid if I'm not there but the way he made me feel was as if he was paying my salary! I'm getting Leave Without Pay!!! I truly am turned off by doctors, it's not east going to work, not knowing if you're going to have explosive diarrhea or not. That's embarrassing. Can't get disability because you're still working!! I'm at my wits end! <br />
I'm glad you don't seem to have it bad yet, I would not wish this on my worst enemy, truthfully!

I think you should console your doctor about those issues! I'm not sure if nexium is safe while your preg. and what being diagnosed with heliobact.pylroi might mean for the baby while your preg. as well. Anyway, considering your relationship is close enough with your doctor that they prescribed you nexium you should totally call and just ask to speak to your GI , or your primary

Hi, I'm new to this forum, I have been diagnosed with helicobacter pylori, that's why my doc put me on nexium 40mg, I just did a early pregnancy test which has come up a faint positive, is it safe in pregnancy to take Nexium or should or change meds, soooo confused, ( anyone that can help, thanks jojo7777

I should also add that those affected by PPIs may be able to take legal action out on the makers of the drugs, which judging by how much people like you have paid in med fees is probably something that many people will do. This is the article about PPIs not being safe for pregnant women in case you want to pass it on to anyone you may know that could benefit from this health advice http://bit.ly/aONPot

Gosh it sounds so painful....your case sounds like a severe one. It seems like you made the right decision going off PPIs...Reglan, omeprazole containing PPis like nexium have all been recently flagged up for carrying potential health risks, which perhaps you were spared, at least if you haven't yet had children. But if you are going to, or know anyone that is aiming to get pregnant or is already pregnant, then you should be aware that PPIs can be dangerous for pregnant women, causing their fetus to develop cardiac birth defects. This is according to a study presented at the annual Digestive Disease Week conference in May of this year (2010). Spreading awareness around this subject is vital, so it's good that there are people out there like you gals who do care.

My daughter is 21 months old and was just diagnosed with Gastroparesis. I am sad to hear that so many people suffer from this, also to know that she will have to deal with this for the rest of her life. She cannot keep any solids down without taking zofran. She was on Reglan for 3 weeks and had the most horrible side effects, I would not wish that on my worst enemy. At this point we have had her on 5 medications in the last 12 weeks and are now trying a new one. This is a lot for a baby to go through. I just hope she gets some relief soon! Good luck to all of you who are also suffering from this! Hope you all get relief soon!

Hi --I am also been diagnosed with gastroparesis ---slow gastric emptying . My problem is stomach pain after eating at times , mostly at night if i dont keep the meal small .If i loose control and eat more than what my stomach can digest i begin to have strong pain in the upper part of the stomach right below the breast bone---when the pain comes , normally 20 minutes or maybe an hour or so after eating no alkalizer will help and the only way to stop the strong pain is by inducing vomit and cleaning up the stomach of the undigested food .<br />
The pain then will go away immediately . I then take at least a full glass of water to wash down the ezophagus from the stomach acids . After a while 30 to 45 minutes i eat something very light like a very small amount of cereal with lactaid free milk and no more pain . I DID NOT SEE ANY ONE OF YOU SUFFERING WITH GASTROPARESIS INDICATING THAT YOU HAVE BEEN PRESCRIBED----MOTILIUM OR DOMPERIDONE FOR THE GENERIC ---TO HELP WITH YOUR GASTROPARESIS . YOU TAKE 10 TO 20 MG ONE OR 2 PILLS 30 MINUTES BEFORE EATING . THIS IS A MEDICINE THAT IS NOT APPROVED IN THE USA BUT IS USED EVERYWHERE ELSE IN THE WORLD TO TREAT GASTROPARESIS AND SEEMS TO BE VERY GOOD FOR THAT . I NOTICE A DIFFERENCE WHEN I TAKE IT AND WHEN I DONT .----UNLIKE THE MISERABLE REGLAN ,IT HAS NO SIDE EFFECTS TO SPEAK OF . THE FDA DIDNT APPROVED it MAYBE BECAUSE BIG FARMA PROFIT CONCERNS MORE THAN ANYTHING ELSE . I THINK THE MEDICINE IS VERY EFFICIENT --YOU SUFFERES SHOULD DO YOUR OWN RESEARCH ON THE INTERNET AND ASK YOUR DOCTORS . ----I AGREE WITH YOU BEAUTIFULLIAR---THE PPI OMEPRAZOLE CAUSES LOTS OF CONSTIPATION . BY CUTTING THE STOMACH ACID IT CAN SLOW THE DIGESTION CAUSING EVEN MORE GASTROPARESIS . I AM PHASING IT OUT . BE AWARE VERY FEW GASTRO DOCTORS KNOW HOW TO TREAT GASTROPARESIS . I HAVE NO NAUSIA ---I HAVE REAL PAIN IF THE STOMACH REJECTS THE FOOD AND DOES NOT SEND IT DOWN . I AM 75 IN GOOD HEALTH OTHERWISE --THEY TELL ME I LOOK IN THE MIDDLE 50S . TO ME IS A DIFFICULT DESEASE BECAUSE I LIKE TO EAT AND I CAN NOT DO IT AS A NORMAL PERSON CAN OTHERWISE I HAVE PAIN AND IT IS TERRIBLE . GOOD LUCK TO ALL

My GI doc sent me to an endocrinologist. I met with her today and was really impressed by her thinking process and how she explained things to me. She says that GP that is asociated with advanced diabetes makes up the most studied cases of GP. In those cases, it does get worse with time, especially if the blood sugar levels are not controlled. She said there is no evidence that non-diabetes GP will get worse. That was good news. My GI doc put me on diluted Ensure/Glucerna for four months "to give the system a rest". Then she started me on amitriptyline. After 3 weeks on it, I started tolerating solid food much better. <br />
<br />
It was hard to find a vitamin that I could tolerate. The pill forms caused much stomach pain. I finally started using 1 ml of Puritan's Pride liquid multivitamin in each drink of the day. That helped a lot. My hair stopped falling out and my gums stopped bleeding. In my case, liquid vitamins were really helpful.<br />
<br />
I hope you all find ways to cope.<br />
<br />
LiveNew

here is an update, as of last year i went for another diagnosis and after i quit smoking ciggarettes took flora q, and probiotic yougurt, and made sure i got proper unsoluable fiber and also prune juice, and ate generally basic bland things (the doctors told me to go on an all liquid diet but my theory was that if i can eat solid foods even if it did hurt i should continue to do so because if i got use to liquid food diet it would be harder for me to start eating soilds) i basically told my body that i dont care that its hurting it will just need to adapt a new way to digest <br />
Flora Q really helped me. I stopped nexium, omperazole, i actually found that it made it worst, made me consipated, which inturn left me feeling gastroparesis feelings with digestion. I dont know if it will come back, it has been a year without it and my theory is that is was caused from mono and it just lasted a really long time, either way i'm appriciative, and the doctor told me to take reglan, i took half of a pill and my stomach was super sensitive to it. i felt it pumping.. and it hurt So i dont know what really caused it, neither did the doctors, my theory was the PPIS not producing enough acid and making the situation worst because my food needed to be properly digested and would just sit there, as gastroparesis does but ppis didnt help. At first they did, for immideate relief but getting off of them was also a hard expirence since my body became use to that treatment. I just wanted to share that. I hope my expirence will shed light on anyone in a simliar one.

I was reading your post, and was wondering how you have been feeling. Are you Gastro issues completely gone. I had the emptying scan last week, and was told that I'm slow. I like to believe that I am going to get past this. Your posts help. Any info that you could share would be great. Thanks so much.

I am sorry that so many people suffer with this disease... Since my post on July 4, I am still suffering with GP and suspect I always will. Some days are better than others. I also have abdominal migraine and head migraine and did suffer with both migraine illnesses as a child. <br />
<br />
I am starting to suspect my GP is the result of an uncontrolled migraine illness as it seems to go right along with the GP and other symptoms that I suffer from such as autonomic instability.<br />
<br />
I am seeing a GP specialist early next month so I may know more then...<br />
<br />
Currently, I am taking Reglan daily (before I eat) and donnatal extendtabs and Xantac for the GP. I would really like to d/c the Reglan as I am aware of the long-term effects but every time I stop taking it, I have lots of pain, heartburn, nausea and bloating after eating just a small amount.<br />
<br />
Does anyone have a migraine illness concurrently with GP or feel that they may suffer GP from migraine?<br />
<br />
Hope you all feel better.

Why dont you try domperidone. You can get if from Candadrugs.com

What is the donnatal for? My husband has severe GP and actually had a gastric pacemaker implanted last October. His episodes aren't quite as frequent, but they still occur. His biggest complaint is the cramping and nausea. He takes phenergan for the nausea, but can't find anything to take to help with the cramping.

Hi there I felt compeled to write after reading all of your great posts. <br />
My story is an odd one: I have gastropreis and Graves disease "now hypothyroid after radioactive iodone". <br />
My last two years of highschool I had dropped 55 pounds on wieght watchers and what I know now was a really fast metabolism due to my hyperthyroid. It was great! Problem is my last year of highschool I began vomiting everyday -people -even close family members thought I was bulemic and anorexic. I was so frustrated I knew I loved food and that I wanted to eat but everytime I did -I would upchuck. I got down to 99 pounds. My jealous Aunt was spreading all kinds of juicy rumours that werent true-sigh. Well after loads of doc bills a barium and a catscan I was diagnosed with gastroporesis. No actually first the idiot doc said I had a hiatal hernia-aka small tear or hole in the flaps of skin that let the acid come and go.......so anyhow after he finally correctly diagnosed me and I was almost dead from not being able to eat for months of these tests. .....I was then put on every kond of drug imaginable I had hoped the ones that stimulate the stomach itself would work but they did not......But protonix worked wonderfully!!! Yay the miracle drug that gave me my life back but costs so much money I may as well by myself a new stomach. I have only been out of college for a year and a half and with the recession and my high paying design job no where in sight-buying protonix with no insurance-since no insurance co. wants someone with my pre existing conditions ---is depeleting my bank account monthly. That is when I get the name brand from cvs who is always filling my perscription with the generic. The generic of protonix doesnt work for me anyone else have this problem? <br />
Although no doc really explained it to me graves -hypothyroid and gastoresis are indeed linked.<br />
Dont let them tell you you must really have diabetes---try as they did to prove that- I have perfect blood sugar levels!<br />
I was diagnosed after my first year of college my thyroid was the size of a grapefruit and I almost died in my sleep from suffocation. <br />
I could sleep when i was awake I felt like a zombie -and with my gastro I was throwing up too. Also really rare terrible eye prblems that was causing my eyes to get close to legally blind. I was a mess.<br />
Thank god I ended up getting radioactive iodine.<br />
To wrap it up: thyroid diseases are metabolic dealing with the nerve endings. They go hey wire-and when you have graves youre born with it so it can manifest earlier in things like gastroporesis rather than in the thyroid first. So in my case the nerves in the stomach I messed up and then the thyroid manifested.<br />
As far as kids go I know you cant be on protonix while pregnant and with my hypothyroid (I love armour thyroid-I get it compunded at an apothocary).......I just dont know how I could ever have children and not vomit everyday. Anyonw have any input? <br />
And yes as someone mentioned above whether its a result of my throid or gastro I dont menstruate regularly I can in fact skip up to 6 months (never been pregnant). <br />
I am hoping and manifesting a cure or at least better treatments of gastroporesis witihn my lifetime!

I was just diagnosed with gastroporesis after spending three days in the hospital. It was diagnosed based on my symptoms and by en endoscopy. My stomach was full of food and bile. I am home now and still in a bad way. I have been given hydromorphone, reglan and bentyl (along with arthritis meds that I took before) for Spondylarthropathy and FMS.<br />
<br />
The Dr.s say it is a result of my musculo-skeletal disorder. <br />
<br />
I have autonomic problems. Raynauds in my hands, variable body temp. and find it difficult to catch my breath at times.<br />
<br />
Can anyone relate?

hello there.<br />
i am 17 years old and suffering with gastroparesis. i mean suffering.<br />
i've been on and off medications such as prevacid, omeprozole, and now zegerid (pill and powder form)<br />
i'm so glad to know that i'm not the only one who has this disease.<br />
i suffered with anorexia for about 2 years almost 3 years ago, so i really don't understand why the gastroparesis is just hitting me now. but it really is.<br />
i wake up every morning feeling like i have the stomach flu. <br />
i can't go out and do normal things that kids my age do, and i just don't feel normal anymore.<br />
i have terrible constapation and heartburn, and i miss a lot of school.<br />
i'm just really glad to hear that i'm not the only one.<br />
and thanks so much for sharing your story.<br />
-kelly

Old lady here!!!! I have been dealing with nausea associated with Gastroparesis for 26 years. I have had to find my own road in dealing with the nausea that is part of this disorder. But what every helps right know use it, and change it as your body gets used to it, and it will and then you may find yourself feeling confused about what to do next to control it. Then you try something else, as you come to realize that there is no cure for Gastroparesis at this time, but in your future there might be so don’t every give up hope. Just take it one day at a time!<br />
<br />
I will let you know this , Gastroparesis although a nuisance, will not keep you from having a husband and children. So don’t let anyone tell you that your life has to value or is over if you most deal with this issue the rest of your life.

thank you for your positive words. Patti

Hey,<br />
<br />
I'm 18 now. I have been seeing an registered dietician since I was diagnosed and I have been seeing a therapist since last year. I know about pregnancy stuff because I'm in a class called Nutrition and the Life Cycle at my college and we just learned about a bunch of stuff regarding pregnancy and a lot of nutritional things that will help the mother and the baby. Also, something you should consider is how regularly you menstruate... I'm not sure what else too look out for that may influence fertility and fecundity but you can always ask your doc :D.<br />
<br />
hope that helps

thank you so much for responding. My doctor recommended miralax as well and i've been taking it along with priobiotics flora q, and activa. So far so good, i have my days where its just all bad, and its more of a psychological battle of not knowing what to expect. <br />
How old are you now by the way? ( you have mentioned you've had this since you were 15)<br />
I appriciate your advice, what kind of diet are you on? did you go to a nutritionist? Or theraphy?<br />
oh and how do u know about pregnancy? have u tried having kids? <br />
sorry thats alot of questions!<br />
but i appriciate a response!!!!!<br />
thank u

Hey, <br />
<br />
1. There are varying degrees of gastroparesis. When I got the stomach emptying test it said it takes me 4-5 hours to digest food. I have been dealing with this since I was 15 years old and I am still able to eat normal foods. You just have to pace yourself while eating. Also, for your complaint of constipation my GI doc suggested Miralax- its a non-absorptive stool-softener that you mix into a drink (kind of like benefiber in that way). Miralax just goes through your system and has no side-effects b/c it is not absorbed into your blood stream. You can increase or decrease doses as needed without any problems, except of course if it is too much...then you'll have diarrhea...<br />
<br />
2. If you maintain a healthy diet you should be able to have children just fine as long as you are not severely lacking in vitamins. If you are planning on getting pregnant, be sure to take a prenatal vitamin and make sure you have adequate Vit. A and folate levels (they are really important for fetal development). Even if you are not planning on getting pregnant, I suggest taking vitamins because some days you have no idea what you will be able to keep down.<br />
<br />
3. I am not sure if the gastroparesis will get worse. I am pretty sure if you try to maintain a healthy diet you can live a pretty normal life without it getting worse. None of my doctors have said anything about gastroparesis having a tendency to get worse. Just make sure you monitor it and be careful about the things you eat.<br />
<br />
Good luck with everything and I hope this helps in some way...