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I Have Bad Gastroparesis, Does Anyone Else Share This Experience?

I am 30 and I have had GP for about 3 years now but only properly diagnosed in August 2009. I am in hospital on average every month or so with severe vomiting attacks that take me down, make me ill and dehydrate me, I am in hospital for 4 - 9 days ata a time (I am also an insulin depndant diabetic) Here in Australia I have realised how ignorant Dr's and Nurses are to GP, half of  them don't know what it is, I am seeing a Professor in GI soon and pray he can help me, my quality of life has deteriorated and and I too am so sick being sick and living in hospital. 


I am on motilium (domperidome) at the moment and don't eat fibre, lettuce, proteins, nuts, or try not to eat anything bigger than a simple sandwich, If i overeat I am guaranteed to vomit within 8 - 24 hours and cant stop till I end up in hospital. I hate that I am only am 30 with 2 girls and I feel 60 half the time, I am so scare d to go places or book things incase of an attack. When I get one I can't stop it, and have NO choice but to be hospitalised where they inject every anti nausea medication possible into me.

I dont know what else  to do, feels like my health (life) is crumbling and nobody seems to know what to do about it, I also get IBS, well thats the diagnosis so far which is just as bad, I would love to hear if anyone else has experienced GP to the extreme I am.....

wigglet2003 wigglet2003 31-35, F 11 Responses Feb 8, 2010

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hello im aishia and i just recently turned 32. I was recently diagnosied with GP and IBS. Im in and out the hospital and my er visits most of the times turn into several days or weeks in the hospital just from dehydration. Im a wife and mother of 3 and I rarely have the strength to interact with family and friends. Im still learning what food my stomach can tolerate because either im vomiting after eating or in extreme pain in my stomach waiting for my food to digest. I miss so many days at work and when i do go i keep a trash can close by. Im miserable.

hello im aishia and i just recently turned 32. I was recently diagnosied with GP and IBS. Im in and out the hospital and my er visits most of the times turn into several days or weeks in the hospital just from dehydration. Im a wife and mother of 3 and I rarely have the strength to interact with family and friends. Im still learning what food my stomach can tolerate because either im vomiting after eating or in extreme pain in my stomach waiting for my food to digest. I miss so many days at work and when i do go i keep a trash can close by. Im miserable.

I am also 30 with GP and im an Insulin dependent Diabetic, i have had this condition for years. I too have 2 children and i also have lots of hospital admissions. ys i totally understand how u feel i have to b plugged into a feeding machine at night so i have no social life i cant go out after eight. My quality of life is poor and sometimes wish that i was not here im sick of being sick and being in so much pain all the time.

Hi to all - really hope this works - i have tried everything possible been to the best doctors in the world - to no avail. I discovered a supplement called Oxypowder - and it does work - it melts food which in turn 'slides down the gastric path - if i dont take it i feel sick! Please try it - read about it. remember i tried eveything - it's trial and error - was going to have a pace maker fitted abt 10yrs ago - decided not - no guarentee it would work - now glad i didn't - i also sufffer from ME - Good luck to all - and please pass on this info via website :) I do not work or related to the above mentioned product ......... KM

I am suffering badly and dropping weight. Domperidone works,but our insurance will not cover it. Have some powdered Zegerid RX and will try that today. I had a total colectomy and an ileostomy 3 years ago at Cleveland Clinic in Ohio. All I have to do is bend over and here comes the barfing. I am not going to eat anymore,it's just not worth it. My poor throat and esophagus can't take it . I have to have dialation and a gastro every year now. All my life this has been happening. And I am 59. Vomiting and nausea are part of my life and give me more grief than having an Ostomy! Zofran work for right now. Also I am considering trying Medical Marijuana for the nausea,I live in a MMJ state.

my other advice is find a doctor that specializes in GP and who is caring and doesn't talk to you like your an idiot. The most important part is treating the problems not the symptoms afterwards. My doctor (Dr. Rupert Abdalian, for anyone in the Toronto Area) is so wonderful. He takes times and treats me like I know my body and how I feel. He also doesn't continually send me to get prodded for tests. He tells me all my options and then gives his recommendations, he is honest and straightforward. I truly believe that he has saved my life. He has also promised me that he is going to "fix me". That this disease is nothing that I can't beat, I just need to be patient.

I feel your pain. I have been in and out of hospital for the past 4 years. I have finally (knock on wood) found a combination of things that is working for me. I take tectra (an acid reducer) and a medication called Cisapride. Cisapride was taken off the market by the Canadian Government because it can cause heart problems, however they have a program called special access for extreme cases. I applied with my gastro specialist and was granted access. Part of the access demands that I get an electro cardio gram done each week to monitor my heart. So far I have not been to the hospital in nearly 2 months. I also stick to a low fat, low fiber, high lean protein diet. I also eat smaller meals more often, i know this is hard to monitor with type 1 diabetes, i test my blood sugar about 10 times a day to keep that in check.

I would like to ask you a question, does your blood sugar go high when you start to vomit? Mine goes through the roof. All the doctors say it is because my body is in a stress mode so it releases all my sugar storage into my system but i just don't know. I can not eat for 3 or 4 days and my blood sugar will be 19.

I hope you find relief soon. Don't give up - I didn't and I am feeling much better these days.

Hello,
Gastroparesis is another new diagnosis even though I've had Diabetes for over 30 years. Yes, any time you become ill the BSL reacts to stress in the body. It's also the ups and down of your average that gives the higher A1C. I was told 6 small meals, at the end of the day I would have a 500 BSL...did they mean liquid meals? My sympton's last 3 days or more, painful, can change in an hour. During the 3 days how do you stay hyderated? Thanks

i also just found out about this a couple of days again. my stomach only works at 27%. it has made me gain about 50 pounds in my stomach; i promise i look pregnant. it keeps moving up into my throat, and i have to sleep with my body raised because i feel like i am chocking, as far as i know there is no medicine to treat this, so i was told that we could have a fake stomach, i will do anything this is crazy. please if anyone knows of any meds please help answer this if u know the answer please? Thanks for helping. mlrssings to all.

I just found out that my stomach works 23%. I am wondering if I have had this for years and years as I have been in and out of the hospital with bloating, stomach pains, chest pains, etc. for about 10 years. It is just now starting to add up and am much worse and started full time in January 2013. I have been sick for 7 months now everyday, all day and yes I too am sick and tired of being sick and tired. I just have to get off my pain pills now and in August they will put the machine in my stomach. I am hoping this will work. Have tried diet, motility drugs, and am at my wits end. I have gained weight also due to the slow digestion of food. I know the pregnancy look from all the bloating and gas after eating. Even in the mornings at times the food is still there and hasn't moved over night so am still looking pregnant. I am 60 years old now and I look horrible in public looking like that. It is embarrassing. Sometimes you wonder if you will even be around long enough to fill your dreams. This is a nightmare at best. Thanks for sharing and good luck to you!

I hope you get better soon, but you're probably really tired and sick of hearing that; I know I am and I've only been sick for 2 years.



I have really terrible gastroparesis too, I'm a teenager and I'm on my second year of no school, so I can relate. I have two things that work really well for me; first, I take amitriptyline for nausea and it really really helps me. I still have an incredible amount of nausea, but I vomit constanlty when I don't take it, and with it I don't throw up more than a couple times a month. My second suggestion is get rid of fat. I cut my fat back to a couple grams of fat a day and I was able to go to school for a couple days a week for a few 3-4 weeks before I got hit with a new pain in my abdomen and had to leave.



I really hope trying one of those things would work as well for you as it did for me. None of my doctors are really into the low fat, but it really really helps. Amitriptyline is an anti-depressant that you can take at a low dose for nausea, and everyone I've seen is pretty psycho about wanting to treat like that, but I was given mine by a different kind of doc and everyone else just says it's not their favorite to use.



I wish you a lot of luck! :(

Yea it's really a big drag. Have had GP for over five years and still haven't found the right treatment for me. I can sympathize with you because of the suffering I have been through with this condition. I am open to any new info on any developments on treatment or natural remedies.

I'm so sorry for everything you're going through. I can relate, but only partially. I have GP but also I have IBS and GERD. Its a terrible disease as I'm sure you know. Especially because it feels like there is nothing you can do about it.

So sorry, just saying, I understand.