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" Not as alone as I thought"

About a year & a half ago I wrote a story titled "Feel Alone" but I have since found that I'm really not. After joining EP I have realized that there are many women that are affected by this horrible condition known as "gigantomastia".

So many young women have reached out to me & some I have become close friends with & I feel truly blessed to have them in my life. Having that support is just so important when living with something so misunderstood & physically disfiguring & demanding, not to mention how humiliating & depressing that it is.

In the past year & a half a lot of things have changed in my life, mainly with my breasts. Just to refresh everyones memory, I was injured in a car accident in May of 2000 that left me a permanently paralyzed triple amputee & also being diagnosed with gigantomastia which has caused me to endure a lot of episodes of growth over the years that have actually left me being much more disabled than my actual physical disabilities caused by my paralysis & my amputations.

In May of 2011 I began a growth episode that was the worst I've ever had & it lasted until April of 2012, I gained several hundred pounds in each of my breasts & also below my waist. To make matters worse my breasts began to lactate which required me to have to be attached to an extraction pump to remove the seemingly never ending supply of milk that was being produced. Everything in our home has had to either be updated or replaced to accommodate my additional size & weight which has cost tens of thousands of dollars. I'm no longer able to be transferred to or from my mobile platform & am now forever confined to it 24/7, my husband struggles daily just to bathe & provide care for my breasts & body. 

Because of my inability to be transferred now & my inability to move or have the position of my body changed because of the size & weight of my breasts, I've suffered several severe muscle spasms & I've also had several autonomic dysreflexia episodes which are very serious for people with paralysis. Unfortunately shortly after my breast growth stopped, I suffered a severe spasm that dislocated the C-4 vertebrae in my neck which put severe pressure on my spinal cord that has caused me to now have complete paralysis from my neck down leaving my only remaining arm & hand useless to me. I'm not dependent on a ventilator to breathe but I am now dependent for everything else. I'm using voice recognition software to dictate this story because I now have no use at all of my arm & hand.

In the beginning of losing the use of my arm & hand I held hope that I would regain function within it but it has been so long now & has atrophied so badly that it has the appearance of a long term quadriplegic or a person that has been afflicted with severe muscular dystrophy, I'm just hopeful that I don't have any blood circulation issues within it, my MD is very 
concerned that it may need to be completely amputated. The thought of being a quadruple amputee quadriplegic in addition to the issues that I have with my breasts is a very overwhelming thought to me & I'm really upset & depressed about it. What little independence that I had seems to be forever gone now & I don't know what or how to feel, I'm very frightened about my future.

Being a part of the EP community & having the friendship of some very nice people here have really helped me to keep my sanity while trying to manage to cope with some very difficult circumstances. I'm very Thankful & feel very blessed that I've been able to become friends with some of you & showing me that I'm really not alone with my issues.

Sherri

  
Sherri1962 Sherri1962 46-50, F 16 Responses Nov 12, 2012

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Hello Sherri,

I see your "no more inquiries from men", and I will respect that. I did however, want to wish you the best. I've read your stories, and I am deeply apologetic for your situation, but I truly hope that you are thriving in your current situation, and that you are as happy as you can be.

Sincerely,
Patrick Mckenzie

Thank You Patrick

Your very welcome ma'am, my condolences for all your troubles.

You keep the faith lovely lady,..maybe sometime soon they will discover a spinal transfur !

I'm so sorry to hear of your accident. I wish there was something I could do to maker things better for you. If I had the powers to heal you I would. Please add me as a friend and we can talk about anything you would ever like to talk about. Please let me know.
Sincerely,
Damian

Thank You for your kind words, it is very nice of you.

I notice that you are an fighter-keep on the good fight, dear

Wow I've never heard that story before my heart goes out to you god bless you. I love their story please keep on writing I think you have an excellent future as an author:)

Have you ever heard of gestational gigantomastia? There is an excellent Redbook article that mentions an excellent doctor you may wish to contact. I can send you the article. Have you Checked out my large Blog on Big Breast Health, lactation, inducing, macromastia, fantasies,and erotics here on EP under Breastmilkdoc. Don't worry, nothing shocks me as I have heard it all. If you want the article please tell me.

I can't even begin to imagine what you have been through. You are a very tough and determined woman. May God always be with you always.

Several hundred pound each? Oh my goodness: I don't even know what to say to comfort you. I guess all I can say is that you're always in my thoughts and that I hope something, somehow works out for you. Your husband has my respect for being there for you the whole time.

I'm glad you have found comfort in community. We're here for you!

Hi, sadden to hear about your accident n the lost of three of your limbs...Your husband is a special guy to take good care of you...Your a pretty young lady and sounds like a true fighter.. Theres more to a pretty face and big boobs; its whats inside of you...a heart of gold.. i have a cousin whose boobs are bigger then basketballs and sometime i hope to see them, but i probably never will ;oh well.... thanks for sharing your story. Hugs.

Thank You

I'm sorry , but I tend to agree with Kerry34L. Athoought it is a tragic story,, I find it a bit far fetched that your breasts reached 100lbs each

I realize that this sounds "far fetched" but I can assure you that it isn't

Ikidder,

Hi. Fact is always stranger than fiction and Sherri has no reason to lie.

Left unrestricted body parts do grow without end. Often a tumor press upon the hypothalmus causing "giatism" of the seven foot lady.

While I can quote many more horrible stories I'm hard pressed to find one where the person rebound and carries on so well. I'm proud of you Sherri and hope I would be as saintly a husband as yours is.

I'm sorry to hear about your arm and hope you have not lost all feeling in it. Navigating, eating, scratching ones nose, holding husband's hand or even wiping a tear seems impossible.

Like WileJEEcoyote below I pray things get better. Fear is believing that what you can not see, nor touch nor change will happen. Faith is believing that what you can not see, nor touch nor change will happen.

People know the truth, are still here with you and accepting.

Kindly,
G

If this true, then I truely feel sorry for you. It must have been very hard to deal with when 1/2 your body is breasts.

Ikidder,

It took me a while as well. Search the internet for pictures of women with 50+ pound breasts or guy with elephantites of the nuts. When he stood up they where still touching the ground and covered the front of his legs.

That story is the only thing that comes close for men. Imagine waking up after an auto accident. Paralyzed, job gone, your nuts keep growing from 10 pounds to 20. Your wife has to pick you up and bathe you and them. No joy there as you can not feel anything.

Society will not be kind nor accepting of something that is not your fault but is impossible to hide. Not all of this matches Sherri's story. I'm just giving food for thought.

There is a lot to her story, even more to her character and soul.

It is hard to believe. Scary too.

Kindly,
G

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I pray that your quality of life improves and that you can enjoy life once again. Good luck!

I told one of my friends about your experiences, and he's had a similar plight as yours. I suggested he contact you.

Best of luck.

Oh my God, I had no clue about the incomprehensible extent of the problems that have mounted up for you since we first talked on here. My heart goes out to you and your husband. That he's kept up everything in the face of everything and that you've reached out, befriended, and helped others in the face of everything -- the two of you are human decency in action. Cold comfort under the circumstances, I'm sure, but if there were more people in the world with the mettle, caring and love you two have, we'd all be much better off. Treasure every day you get together, no matter what the conditions of those days.

Thank You so much, our love is all that keeps us going. It really is.

This, is the reason why I love EP.....it gives people of any age, race, belief or situation the chance to vent....(usually to a very understanding and reassuring crowd of people) - Sherri; your strength as well as that of your husband's is immeasurable! I wish you all the best in your battles that you face every day - please let me know if there is ever anything that you, or your husband would like to discuss; as I have spoken with a few people who have been affected by similar situations. The courage of both yourself and your husband - are a beacon of light for those who may be enduring the same hardships - thank you SO much for posting this story!

*hugs*
-Guru-

oh my gosh....there are no words to express the tragedy that has befallen you..i don't know if you are a person of faith or spirituality...but i'm sure i would be asking "why"...

I have asked why but there isn't an answer, my husband & I can only try to cope & take things one day at a time. Thank You for reading my story.