I Have Gigantomastia
There are four types on EP.
1. Guys who are quick, to the point, and who make their interests clear, regardless of how brief they make their messages of introduction. "Hey baby you are so sexy add me pls?" If you are this person, do not contact me. Thank you.
2. Guys who are genuinely interested in this condition and its implications. Maybe someone they care about is dealing with everything that goes along with gm/mm. If you are this person, I'll be happy to talk to you. I can tell if you're a pervert or not--I've had practice at separating the wheat from the chaff.
3. Guys who are, for whatever reason, pretending to be women with gm/mm. That's disgusting. I don't know why you're doing this, but if you are, don't concern me. I can tell who you are. I really, really can. And it's depressing to have your hopes lifted, only to discover that someone is faking.
4. Women who have gm/mm. This group is so important, because in all of my searching, EP is the only place online that offers an already existing public forum where people with gm/mm can talk about this condition. If you are this type of person, and you need to talk, please, please feel free to message me, and I will love to share.
I have been lucky. I have had gm/mm for practically my whole life (this isn't the lucky part). But, I have been fortunate to have a broad support group that I've been involved with for as long as I can remember. These are women who have had gm/mm to varying degrees. For some, the conditions have been remedied through surgery. For others, living with the effects of gm/mm has been a choice, if a hard one. And for still others, surgery hasn't been an option.
Some women with this diagnosis have a hard time finding clothes, have constant back pain, and have a difficult time forming relationships. On the other end of the spectrum, there are women out there who are immobilized--who, without the aid of modern technology and help, would wither and die. And there's everyone in between.
I'm in the 'immobilized' camp, and have been for well over a decade. And while I have been privileged and honored to help a number of other women work through this life-altering condition, I am frequently met with the same response, both on EP and in face-to-face interactions with other sufferers who may not have so severe a case: "Oh, you're so large--so affected by this--I feel awful even complaining about my problem."
Please. Don't feel that way. GM/MM is devastating to nearly all who suffer from it. Whether it's being utterly home bound, or suffering the endless emotional arrows that come with the way society treats you (not to mention the physical pain) as you try to live your life, the results are the same. You're changed by your body. Youre imprisoned by something that so many people consider sexual. And that's hard. It isolates you.
I'm not saying that my advanced state makes me an Oracle, or that I'm a queen bee, or that I have any more answers than anyone else, and that there aren't days where I just don't flat out hate my body (most days). I'm hardly over it. But I am saying that there are others out there who feel the same as you do. There are a lot of us, and we come from all walks of life, and (literally) in all shapes and sizes. And we get eachother. And believe it or not, it does feel better to know that--even if you wish nobody felt the way you feel whenever you look in a mirror.
Take care, and hang in there. You're not alone.
Amber
1. Guys who are quick, to the point, and who make their interests clear, regardless of how brief they make their messages of introduction. "Hey baby you are so sexy add me pls?" If you are this person, do not contact me. Thank you.
2. Guys who are genuinely interested in this condition and its implications. Maybe someone they care about is dealing with everything that goes along with gm/mm. If you are this person, I'll be happy to talk to you. I can tell if you're a pervert or not--I've had practice at separating the wheat from the chaff.
3. Guys who are, for whatever reason, pretending to be women with gm/mm. That's disgusting. I don't know why you're doing this, but if you are, don't concern me. I can tell who you are. I really, really can. And it's depressing to have your hopes lifted, only to discover that someone is faking.
4. Women who have gm/mm. This group is so important, because in all of my searching, EP is the only place online that offers an already existing public forum where people with gm/mm can talk about this condition. If you are this type of person, and you need to talk, please, please feel free to message me, and I will love to share.
I have been lucky. I have had gm/mm for practically my whole life (this isn't the lucky part). But, I have been fortunate to have a broad support group that I've been involved with for as long as I can remember. These are women who have had gm/mm to varying degrees. For some, the conditions have been remedied through surgery. For others, living with the effects of gm/mm has been a choice, if a hard one. And for still others, surgery hasn't been an option.
Some women with this diagnosis have a hard time finding clothes, have constant back pain, and have a difficult time forming relationships. On the other end of the spectrum, there are women out there who are immobilized--who, without the aid of modern technology and help, would wither and die. And there's everyone in between.
I'm in the 'immobilized' camp, and have been for well over a decade. And while I have been privileged and honored to help a number of other women work through this life-altering condition, I am frequently met with the same response, both on EP and in face-to-face interactions with other sufferers who may not have so severe a case: "Oh, you're so large--so affected by this--I feel awful even complaining about my problem."
Please. Don't feel that way. GM/MM is devastating to nearly all who suffer from it. Whether it's being utterly home bound, or suffering the endless emotional arrows that come with the way society treats you (not to mention the physical pain) as you try to live your life, the results are the same. You're changed by your body. Youre imprisoned by something that so many people consider sexual. And that's hard. It isolates you.
I'm not saying that my advanced state makes me an Oracle, or that I'm a queen bee, or that I have any more answers than anyone else, and that there aren't days where I just don't flat out hate my body (most days). I'm hardly over it. But I am saying that there are others out there who feel the same as you do. There are a lot of us, and we come from all walks of life, and (literally) in all shapes and sizes. And we get eachother. And believe it or not, it does feel better to know that--even if you wish nobody felt the way you feel whenever you look in a mirror.
Take care, and hang in there. You're not alone.
Amber