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I Have Glioblastoma

I Have So Many Questions About GBM IV

By: Her2ndDaughter
Written on February 13th, 2013
Hello my name is Tracy. My mother was diagnosed less than a month ago. We are on the second week of radiation and chemo treatment. She did not want surgery and the doctors reccommended not to even biopsy, let alone resection.
The tumors are in the left anterior temporal lobe. Her speech is mildly effected. At this time she has partial seizures every three to five minutes. Her medication for the seizures has her in such a confused and disoriented daze. I know the prognosis. I know there are so many worse cases out there. But this is my mom, and this has happened so fast. We all feel lost in this nightmare. It seems she has new symptoms everday. The nurses are so helpful but I don't think they get that I have no idea what to do... If anyone has any advice on how to help get a handle on this please help me.

Tracy
By: Her2ndDaughter
Age: 36-40 , Female
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    arun04072
    arun04072

    Hi Tracy, I am very sorry to hear about your mother. I can understand the stress and trauma you must be going through, i had seen my cousin going through it the same way. He was dianosed with GBM in April 2009, underwent surgery followed by chemo and radiation. Initially he improved but then went down as the tumor size increased. The doctors advised only palliative care as 2nd surgery was not possible. Since chemo had not wroked earlier so my cousin and relatives were not keen for it. They went for a new alternate treatment " SPMF " and quite surprisingly it did benefit him. I heard its a non invasive and safe treatment. My cousin is doing well.... its been almost 4 yrs since the SPMF treatment. He has recovered to an extentwhere he is doing his own normal routine works. I feels you should ter out this treatment as it has helped my cousin and other people.
    website : www.sbfhealthcare.com
    Good luck

    May 28
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    sanmateo4
    sanmateo4

    Do you have siblings, or other family members that you can go through this with? Perhaps search for a brain tumor support group in your area for help. Find someone who has, or is going through what you're going through now. Also ask your Mom's neurosurgeon or neurologist if there are different anti seizure meds to try and/or optimize dose. Medical marijuana could be worth a try as we'll; nothing o lose by trying.

    Feb 13
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