My Brother

my brother has got EDS and the amount of pain he is in is unbelivable as he is only 7 and yet he hardley ever moans about how much pain he is in, he has tablets every 4 hours jst to keep th pain at ease.

i really do put my hand out to the people who have got EDS of any type

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2 Responses Mar 16, 2009

I also have EDS and am Hypermobile. When I was in my early teens there were nights when I would cry myself to sleep because my whole body just hurt.<br />
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Just tell him to hang in there he'll learn how to deal with it as time goes on.

I am sorry to hear that your brother is in so much pain. I hope that find a cure for this horrendous disease in his lifetime and that he finds some comfort for his pain in the meantime.