So ConfusedI finally was diagnosed with Grover's Disease about a month ago after going from doctor to doctor trying to discover what I had. I was relieved at first because I finally knew what it was. Then I became even more confused because nobody seems to know how to treat this. I have used Clobetasol Propionate cream with some good results, but had to use it constantly, rather than twice a day as prescribed. I would wake up at 3 in the morning feeling like my skin was on fire. It was more than itching, it was like thousands of needles poking me at once. My itching would travel. Once I got one area under control, it would break out somewhere else. Then I was prescribed oral steroids, Zema Pak. It was a ten day regiment from hell. First I got uncontrollable hiccups, then I got a constant salty taste in my mouth. In addition I suffered from insomnia, loss of appetite, and weight loss. It did clear up my rash but at too high a price. i swore I would never take those again. Then I took Soriatane which completely dried out my skin, giving me dry patches. I'm now using Zonalon which has 5% of doxepin hydrochloride. That does take care of the itching, but again on a spot by spot basis. At night I take Hydroxyzine to help me get some sleep. In the meantime, friends have suggested all sorts of remedies. I have started taking sulphur pills because my friend swears this helps with rashes and itching. The jury is still out on this remedy. I have an appointment to see a specialist on October 18 at UC, San Francisco. I'm hoping I will finally get a definitive answer as to which is the best treatment to follow. If anyone has any further suggestions, i would love to hear them.
richg95340 61-65 7 Responses 1 Oct 6, 2010