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My Total Penectomy...

My name is Sam. I am a 20 y.o. male. I have Spina Bifida. When I was 18 y.o. I was admitted to the hospital with abdominal pains. When they examined me in the E.R. I had a large tumor growing on my genitals. Two hours later I had a Total penectomy. My complete genitals were removed surgically and I was given a permanant catheter to drain my bladder. I have worn diapers eversince that day.

Diapered4lifeonwheels Diapered4lifeonwheels 18-21, M 3 Responses Jan 2, 2010

Your Response


Wow, what a shock!

Because of spina bifida, I assume you were incontinent, right? Also, did you have any feeling in that area? Could you have lasting erections? My point is you probably can't get erect and have intercourse. Therefore, your biggest concern should be how it looks to another person - and to you. Sounds like you are adapting well.

Most men can grieve with you for your loss. If it's something so sudden, unexpected and unwanted, it would be a huge life changing event for anyone. <br />
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However, there are some men who decide on their own that they are ready to give up their male genitals. Some may make the decision because of gender identity issues, while others simply want to be free of their male drives and responses. And a couple of men may want to be separated from their male genitals because they want badly to share them with the world. We know of one such man.<br />
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We are in the process of starting a new penis museum... One devoted exclusively to the Human penis and testicles. There is a penis museum in Iceland, but it mostly has specimens taken from all species of animals other than human - with one exception: Elmo The Penis. Elmo The Penis was donated alive while quite healthy, and is a large American specimen. <br />
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We will have Elmo the Penis in our museum during the Iceland winter months, along with our own specimens which we are collecting now.<br />
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So, it is possible to live a full life without your penis, testicles or scrotum. Some men actually choose to.

Yes - totally possible

Wow, how long prior to the penectomy were told that you may loose any of your genitalia? Were you "ok" with the idea before this happened or was it like an end of your life kind of thing?<br />
I have had some worries that I may need a penectomy if my recurrent priapism doesn't get better some how. So at least I've had the chance to prepare myself for that if it goes that way. I would say that any guy should be able to accept such a loss and live on. After all, a penis is not everything and its not the only reason to live. I'd rather loose my penis then almost any other appendage of mine accept my hair on my head. My wife would agree with the hair too.