Newly Diagnosed

For years I have had symptoms and had gone to many doctors and most of them didn't listen and made me feel crazy. My thyroid levels were normal yet I did not feel right. My primary doctor sent me to an ENT because of a lump that I found on my neck. I had a FNA done to check for cancer and it came back benign but positive for Hashimoto. I have to see an endocrinologist now and was wondering what they will be doing for me? Did anyone else have normal thyroid levels?
surgetech2012 surgetech2012
26-30, F
3 Responses Dec 8, 2012

Hi I'm Susan and have been diagnosed with Hashi too. My levels are absolutely normal but I'm always so tired and I'm now on medication for anxiety. I've always considered myself to be normal up until about a year ago. I'm currently waiting to go for an op to remove a goitre but even though they've said it's benign, I can't help feeling there'll be more to it. Hope this helps

Yep my levels are normal too. I have to fight with a new doctor for six months before i can get any where close to being put back on medication. Doctors can be dumb makes me wonder how they even became doctors.

Okay, this sounds an awful prognosis and you must be feeling frustrated that it has taken so long to diagnose, but I had the same situation for years and years and it was only when I developed a large lump in my neck that I was sent for tests. My biopsy didn't show what they wanted to see so I went for the surgery and decided to have the complete thyroid removed in case it was cancerous. Luckily it wasn't ( most aren't I'm told ) and I've had no problems with the hormone I have to take for the rest of my life. My thyroid levels were never particularly low, but like you, I had all sorts of weird diagnoses on the part of various doctors over the years and it was good to at last get a correct one.

Hashimoto's disease is actually an immune dysfunction where your own immune system decides to attack your body instead of protecting it from the things that are constantly threatening to destroy it. Nobody knows why this happens. The human body is far more complex than any of us can possibly understand. I'm so glad you are in competent hands, and don't worry about it. I had never had surgery until I had my thyroid removed and I was worried silly. I went on-line and read all sorts of horror stories about it, and that was a stupid thing for me to do. In the end I trusted my surgeon and everything was fine. It's been six years now, and I've never felt better. Good luck!