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I Have Hemifacial Microsomia

Chan Has Hemifacial Microsomia

By: chanman1
Written on April 13th, 2012
Hello!  I am a mommy of a 2 year old who has Hemifacial Microsomia.  I have shed so many tears and I would really love some contacts and support to share my fears, tears and joy with.  I have done so much research but would love to have some real life people to relate to.  We are at the stage now where he is growning like a weed but his affected side of his face is not.  Breaks a mommies heart to look at pictures sometimes because I just want him to be like everyone else but reality is....hes not.  :(

Having said that:  my angel is so bright.  He is learning new words everyday and so observant of his world. He loves to explore things he shouldn't...guess that is what boys do!!!!  I really have no idea if he is on target speech wise because I have noone to compare him to.  I think his development of everything else is perfect tho.  Well maybe I am naive IDK :)
By: chanman1
Age: 31-35
336 people have read this story

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    beccacro
    beccacro

    Hello! My name is Becca and I am from Mass. I have hemifacial microsomia as well! You and your family are not alone in this. We are all here for you. If you need anything don't hesitate to message me. I have had 4 surgeries and they have completely changed my life, for the better. They made me a stronger person and the doctors/surgeons were all so amazing. Please let me know if you need some or any advice!

    Jun 11, 2012
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      chanman1
      chanman1

      Thanks Becca. My main obstacle right now....speech/OT/getting him to wear his hearing aid. We are moving in the right direction but I would love to hear about your journey!!!!! Sometimes, I feel like I am just trying to hard to make it perfect for him.

      Jun 11, 2012
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    Hemifacialmicrosomia
    Hemifacialmicrosomia

    my name is Ashtyn Mooso and i was born with hemifacial microsomia! im 17 and i have gone though 4 surgerys and i have been in speech class for around 6 years. if u need any more help then you can message me on facebook or like my page on facebook http://www.facebook.com/AshtynMoosoMissTeenIdaho

    May 6, 2012
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      chanman1
      chanman1

      Hi Ashtyn.....oh my stars you are absolutely beautiful!!!!! I don't know why I just saw your post but I definitely like your fb page! I would love to connect and hear more about your journey :)

      Jun 11, 2012
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