About Time I Share My Story.

So im 19 and ive been suffering for HS all my life but only this year was i told what it was.

I had three ulcers under my arm my whole arm pit was red raw from the age of 15. i was embarrassed to show anyone but finally I went to my Dr and he had no idea and told me to go to the hospital to see if anyone knew what it was there. I was there for three days and no one knew what it was the put me in infectious diseases purely because they didnt know what i was. I had derm come and look they werent to sure plastics not to sure so they sent me home with nurses who would come and dress my arm pit every 2 days with different things to see if it would work nothing worked and at this stage i was 17. i got fed up with the nurses so one day i just said to my mum enough ill figure out another way. I didnt it kept getting worse and worse and by the age of 19 i had 20% movement in my arm.

Finally something clicked and i was fed up with not being able to do alot of things i once loved i went back to my doctor and told him we are going to figure out what it was once and for all. He sent me to a plastic surgen to see if he could just release the back of my arm so i could get movement in my arm again. this plastic surgeon actually finally told me what i had. Hidradenitis Suppurativa. it took me about a wekk just to learn how to say it.

my plastic surgeon said to me he wanted a biopsy just to make sure nothing else was there and everything was fine he also told me i had to have surgery on my arm pit to get rid of the red raw skin and to release my skin.

it took about 6 months all together to wait for an appointment to get into the hospital but it all finally happened the removed about 65% of my arm pit and took out my sweat glands. They skin grafted over it and it took 95% which is okay and im healing that bit on my own. im incredibly happy and finding a new me. i still have to watch out that is doesnt come back in other places in my body but showering regularly and using QV body wash seems to do the trick.
18-21, F
2 Responses Sep 9, 2012

I am also a Hidradenitis Suppurativa sufferer. I have found many remedies that have allowed me to be flare-up free for 1 1/2 years. Please visit my blog at hidradenitishealing.blogspot.com for updates, HS friendly recipes, and support!

Im glad u finally found out wat was wrong thou im sry at same time it couldent be a cureable problem i dont have much hs trouble other then the hideous skin and constant drainage but i still wouldent wish it on anyone if u ever need support or somone to talk to feel free to msg me