About Time I Share My Story.

So im 19 and ive been suffering for HS all my life but only this year was i told what it was.

I had three ulcers under my arm my whole arm pit was red raw from the age of 15. i was embarrassed to show anyone but finally I went to my Dr and he had no idea and told me to go to the hospital to see if anyone knew what it was there. I was there for three days and no one knew what it was the put me in infectious diseases purely because they didnt know what i was. I had derm come and look they werent to sure plastics not to sure so they sent me home with nurses who would come and dress my arm pit every 2 days with different things to see if it would work nothing worked and at this stage i was 17. i got fed up with the nurses so one day i just said to my mum enough ill figure out another way. I didnt it kept getting worse and worse and by the age of 19 i had 20% movement in my arm.

Finally something clicked and i was fed up with not being able to do alot of things i once loved i went back to my doctor and told him we are going to figure out what it was once and for all. He sent me to a plastic surgen to see if he could just release the back of my arm so i could get movement in my arm again. this plastic surgeon actually finally told me what i had. Hidradenitis Suppurativa. it took me about a wekk just to learn how to say it.

my plastic surgeon said to me he wanted a biopsy just to make sure nothing else was there and everything was fine he also told me i had to have surgery on my arm pit to get rid of the red raw skin and to release my skin.

it took about 6 months all together to wait for an appointment to get into the hospital but it all finally happened the removed about 65% of my arm pit and took out my sweat glands. They skin grafted over it and it took 95% which is okay and im healing that bit on my own. im incredibly happy and finding a new me. i still have to watch out that is doesnt come back in other places in my body but showering regularly and using QV body wash seems to do the trick.
LEMN LEMN
18-21, F
2 Responses Sep 9, 2012

I am also a Hidradenitis Suppurativa sufferer. I have found many remedies that have allowed me to be flare-up free for 1 1/2 years. Please visit my blog at hidradenitishealing.blogspot.com for updates, HS friendly recipes, and support!

Im glad u finally found out wat was wrong thou im sry at same time it couldent be a cureable problem i dont have much hs trouble other then the hideous skin and constant drainage but i still wouldent wish it on anyone if u ever need support or somone to talk to feel free to msg me