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Going For Surgery

i am new to this site, and i'm so glad i found other people to talk to....i have been living with this since i was 16. the dr kept telling me it was a boil. it would come under my armpits and i was miserable.  it would go awhile and swell up and hurt so bad i would cry. sometimes it would bust, but most of the time it would go back down. then it would come back bigger and more painful. i didn't have any insurance. the dr kept giving me anitibotics but they didn't help. in 2004 it was so bad, i thought my arm was going to rot off. and i couldn't stomach the smell. i was ashamed to go out or even get around anybody. i was afraid they would smell me or i would drain on their furniture. finally one night i went to the e.r and they lanced it and packed it. they thought i would need surgery with a skin graft so i went to lexington ky and saw  a plastic surgeon. he did my surgery and was wonderful. he did the surgery on both armpits. it hasn't come back on the right one, but my left one has given me a time. i have been lanced and packed so many times. my most recent surgery was sept 09. 2 weeks later it busted back open and started draining. so they open me back up and left it open to drain. i went to the infection control doctor last week and he gave me antibotics. i went back for a check up at the surgeons and he is taking me back to the operating room wed 11-25-09. i have had places come up in private areas and was ashamed to tell anyone. they would drain and then come back twice as big. it got so painful i didn't have a choice but say something. i have been looking for someone else who has this. i am so glad i'm not alone. it seems surgery is the only answer i have found for now, but i know somewhere out there someone has to know a better treatment option. and i am all ears. there is not a lot on the web about hidraditis.

lindy79 lindy79 31-35, F 97 Responses Nov 23, 2009

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Hi, I'm Michelle and I've been suffering from HS since I was 16. I get them in my groin area, both armpits and also on my breasts. I had two Axillary surgeries on both my armpits and it was the best thing I could of done. I used to be so embarrassed and still suffer from embarrassment from it at 26. My surgeon refused to do surgery in my groin area and I am currently looking for another one because these cysts won't go away! The ones in my breasts come here and there and are very painful. I have to go to the breast oncologist when those need to be drained. The only side effect I have had since surgery is that I cannot feel from my armpit down to my elbow on the right side and it is so painful. Two months after surgery on my left side, my incision ripped open. Like I stated before, I'm looking for another surgeon and opinion because the one that did my surgeries is completely dimissing my complaints. I'm just so glad I found this forum because I thought I was the only one!

I've had this crap for 25 years. I was too ashamed to see a Dr. about it when I was younger, so didn't have anyone really look at it until almost 15 years after getting it. Dr. after Dr. having no clue about this awful stuff. I'm stage 3 and only have it in the groin area which is weird because the armpit seems more common. Thankfully, I have never had an issue there. I want surgery to remove it, but it's so bad, I'm afraid I will have NOTHING left in that area after removing it. I've tried everything, even the strongest antibiotics. NOTHING works and they area always active. I'm deeply depressed and not a single friend or family members knows about it because I'm too ashamed to talk about it. Another reason I fear surgery. Because then they will find out. I don't know what to do.

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Please listen. ....I know theres alot of you scared out there. My fiance has been dealing with it for 6 years. I can see the pain he goes through. It has gotten so severe that he was unable to work. He was able to get SSD social security disability 2 years ago....once you r on SSD for 1 year you qualify for medicare which is covered for you to see a plastic surgeon for you to do the surgery. He had 3 surgerys so far with about 4-6 wks healing time underarms, 8-10wks between groin and thighs. Do not be scared if the doctor wants to leave it open and let it heal from the inside out. Its better that way. Very time consuming you need help from family and friends for dressing changes but you can do it. My heart goes out to all.of you. Good luck hope this helps.

Also they only keep you in the hospital.for one day for observation And than you can go home

I have a question. I am going to see a plastic surgeon on Monday about having the surgery under both of my arms. How long does healing take? How Long will I be out of work?

Hi. My name is Allison. I posted on here back in January 2014. I just had the surgery under both of my arms 3 days ago. So far so good. I didn't get a skin graft again to avoid additional scarring. My doctor was able to use stitches in some areas so it will not impair my range of motion when it heals. I am still 100% free of any lesions on my inner thighs from the 1st surgery. I was told for many years there was nothing that could be done, wrong. Get second, third, fourth opinions because the surgery prevents them from coming back. It is extensive which is why most dermatologists shy away from making the recommendation. I am glad I did the surgery because now I will never get them on my thighs or arms again. Just wish I had done it when the area wasn't so big. Good luck everyone.

Hi, i'm Anna and age 19 and also diagnosed with HS and been having it since I was in 8th grade . For 6 years now :( and still have it. I'm at stage 3 and its horrible just like the rest of you guys I have the same exact experience as you guys and I understand its the worse feeling ever. But i'd like to know where you can get a major surgery in California, if you guys know any location here. So far I heard San Diego specialize in our condition and there's a HS institue in Ohio.

And I have it on both arms :(

Hi Lindy, Im in your same shoes. I currently have it on both armpits. Im constantly in pain, I can't shave, I can't wear deodorant, it is horrible. Ive read that turmeric helps a lot. So i bought the capsules they sell at Wholefoods. So far the pain has gone down, but i still cannot lift my arms completely up. A couple months ago I had a ball under my armpit, it was so painful and grew larger everyday till it was the size of a golfball. I immediately put a heating pad on it constantly and let hot water run on it in the shower, about 3-4 days later, maybe a week, it popped on its own. I was ok for a week or two until the bastard came back. I haven't been wanting to go out, nor exercise, nor go swimming….this condition really takes a toll on you emotionally. The smell is awful, sometimes my bf can smell it from being a few feet away…its so embarrassing. So I would recommend for anyone with this to try turmeric capsules (taken daily), an antibiotic called "doxyclicin" something like that that treats bacterial infections, and just make an appt with your doctor to have it surgically removed. it will keep coming back and trust me you do not want to live with this for months, yet alone years. Good luck.

Hi I was wondering how long was the healing process and after the surgery did you have to stay any days in the hospital??? I have so much scarred tissue under both armpit and currently have 3 cysts at the same time!!!! I cant do anything! I have to get the surgery under both arms and I am really freaked out

I currently just had the surgery in my left armpit. Omg it was not what I expected. It hurts bad. Very painful. I wish I could post a picture. I opted to have the skin graft because the wound was so wide, there was no way of closing it any other way. I was able to go home the day after surgery. My skin graft surgery will be in a week or two and I will be In the hospital a couple days longer and/or up to a week. I had a flare up with two cyst at the same time before surgery. Extremely painful. When they did the surgery they had found out that another cyst was brewing as well so when they cut out my skin snd tissue, they got that one too. After surgery is painful. The dressing changes are the worst but necessary. Omg it hurts. But you can ask for an arm sling. It helps take the pressure off your armpit big time. Im currently going through all this as I type this because my surgery was last Monday. But the pain is a little less this week but still painful. You will be ok. Just keep thinking about the end results will be worth it. Thats what I do to keep myself going. No more cyst in that area once everything is healed. Make sure you move your arm around and do the physical therapy exercise so your arm doesn't stiffen up cuz the doctors can't do anything once its stiff or stuck. Take all meds prescribed. If you have any questions, im here. Good luck and you are in my prayers

I have it currently I'm 16 and just go the surgery under my right arm and I'm worried cause my stitches are draining weird goo...

Hi I was wondering how long was the healing process and after the surgery did you have to stay any days in the hospital??? I have so much scarred tissue under both armpit and currently have 3 cysts at the same time!!!! I cant do anything! I have to get the surgery under both arms and I am really freaked out

I'm a 19 year old male, and have had HS for 2 years. It started out as a Cyst on my tailbone. It has gotten worse, an abscess on thighs, both sides. Now i have one on the left side of my scrotum. Im worried its going to affect my testicle. I have a fiance, and 2 year old daughter, and im always worrying she will leave me. I see the urologist tomorrow, and i want to mention Surgery to him. Im a little overweight, and and a smoker. Im working on quitting, and loosing weight. I work making Air Duct for an hvac company, and have called of a lot recently, due to painful walking. Im gonna end up loosing my job. Im not here, for pity though. I was doing some investigating, and found a blog titled, "I beat HS." It went on explaining that she beat HS through T-cell therapy. I read about it, and i cant figure out if its a scam or not. I e-mailed the blogger, and got a response back later on that day. Im going to post the link and see what you guys think. I really want to try it, but its about $150.00 for 5 courses... which is a 130 days. Anyways, the company is out of BC, Canada. They believe it has a lot to do with Gluten. Im rambling now, But i will post link. Good luck to all,<br />
<br />
Kurt.

Hi. I just had the wide excision surgery on both of my inner thighs and inguinal region. I have been suffering with HS for the past 7 years. Throughout this time I've done all the options most of you suggested and the surgery was my last option to prevent it for good. It's only been 4 days since my surgery, I opted to not have a skin graft to avoid further scarring and complications. I will say its not easy and certainly something that needs to be managed daily with wound care specialists, but in the end I pray it's gone. If everything goes well I plan on getting the surgery under my arms as well. My plastic surgeon said that would be less extensive and easier to care for. I researched my surgeon and found him to specialize in this type of surgery with a high success rate for permanent removal. My suggestion for those who have severe/recurring HS is to do the surgery before it gets too bad. Your recovery will be longer the bigger the section being removed. Good luck to everyone on finding an option that works for you.

which surgeon did you go to? does he have a website?

Hi. I live in Florida so not sure if it would be local for u. Best thing to do is work with ur dermatologist and see if they have partners in plastic surgery. It was west coast dermatology that I used, Dr Rodriguez. My surgery has been a success thus far. Barely a scar and the best part is I've had 0 reoccurrences...4 months counting. I'm doing my arms in the summer and I was told the only difference was that I may need physical therapy to ensure range of motion stays throughout the healing process. Good luck and I'm a firm believer in the surgery versus medications now for sure.

Hi I was wondering how long was the healing process and after the surgery did you have to stay any days in the hospital??? I have so much scarred tissue under both armpit and currently have 3 cysts at the same time!!!! I cant do anything! I have to get the surgery under both arms and I am really freaked out

I haven't done my arms yet, but I was told the healing process can be different based on where u get it. When I had my inner thighs done it took about 8 weeks for it to completely close. I opted to let it heal from the inside out to avoid another scar from a skin graft, so if u have a graft it could be less time. Currently I still apply lotions to prevent the dark scarring, something my doctor recommended and has tremendously reduced the size and color of my scar. I also opted for a day surgery with home health care for roughly 4 weeks. This was good for me because I felt more comfortable being in my own bed. My doctor was impressed with how fast I healed. My recommendation is to eat lots of protein, take vitamin c like 3 times a day, and avoid unnecessary movements to let ur body heal faster. Still haven't had any outbreaks where I had my surgery 😄😄

I have had HS since I was 12, so that's around 13 years. It's gotten so bad that I am thinking of getting surgery. I do live in Florida and I would really like to know more about your experiences with Dr. Rodriguez and information about his office. I am still looking for a Doctor have the surgery with, and I am really nervous about just picking one without knowing if it worked for their past patients. If you dont mind? It would be so helpful.

No problem. I went to Charles Rodriguez in venice fl. I had my arms done in July of this year and all is well. No reoccurrences in either areas. I'm grateful to have found someone that took his time to not only remove the areas of concern, but make it something I can live with cosmetically speaking as well. Very happy with my decision to do the surgery.

Especially since when I was on medications I didn't go 1 week without getting an out break. Very happy and certainly more confident.

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I have recently had the surgery performed on my left groin area. My doctor removed all the sweat glands in an area about 3"x3". Prior to the surgery, I had been suffering continuous boils for almost 3 yrs. Since the left side surgery, I have had no recurrences on either side. I am scheduled for the right side surgery in a month and am so happy to have it scheduled. The approach of removing all the sweat glands seems to be the best approach. I would not think removing only active HS sweat glands would prevent other glands from becoming inflamed in the future. I am very hopeful that this life-long affliction may be past me.

Hello my name is Kayla and i am 18 years old. I have only had HS for only three years and it just keeps getting worse. It first started out as small bumps and it did not really hurt as much. As the year went by it got harder for me to wear certain clothes and shave. Finally this past year I started to get the smelly puss come out of the. The worst part in that I am still in high school and I have to wear a white uniform shirt and the puss gets all over my shirts. For the past couple of months I have been taking bactrim and Prednisone. Those have been helping but I still have them. I am thinking about asking if I can get my skin graft surgery. What do you guys think should I stay on the MEDS or get the surgery.

meds will only work for so long they will stop working and the sugary is the only permeant option

This comment is for the mother of the two children with HS. last POST Feb. I'm a mother also with a 15 yr daughter with HS. We also have been dealing with this for past 2 yrs. She is scheduled for the same intense surgery Oct 2nd. She more of a trooper than her mother, LOL :). My only question is prognosis afterwards because of my daughter being an athlete. Basketball season is coming and she plays golf in school as well. How is the recovery process for people who use their arms a lot?

I had the sugary and the arm pit is the most pain full of all the places i had all the places done do not expect to do any sport or excise for 3 months you can't even move your arm for 1 month but its worth it

can you work?

Hi I was wondering how long was the healing process and after the surgery did you have to stay any days in the hospital??? I have so much scarred tissue under both armpit and currently have 3 cysts at the same time!!!! I cant do anything! I have to get the surgery under both arms and I am really freaked out

wow you cant move your arm for a month!! I have a 6 month old and 3 year old and as you can imagine I need to move my arms!! lol but did you need anyone to come move in with you to help since you couldn't move your arm??

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Hi all, I am an 18 year old stage 3 hs sufferer. I have had this condition from approx age 12. It has worsened as I have got older, doctors have not done anywhere near enough to prevent it from getting this bad. I was only diagnosed with it last year! One doctor told me what it was then told me she couldn't do anything for me and sent me on my way. As a 17 year old girl who has just beared her leaking, swollen scarred underarms and thighs to a stranger I was left devastated. I have since then seen another doctor who has given me some tablets to prevent the lumps coming back. They still do come back every now and then but I am in a lot less pain, I feel like I can lead a normal life, be more active and haven't used a bandage in a couple of months! I have stopped smoking which i believe has helped alot and i am losing weight which I know will help. I have a very supportive boyfriend who knows what I have been going through, and I am very blessed to have him. This condition has wrecked my selfesteem and made me hate myself but I am determined to get back my confidence and one day I will feel normal again.

I am a 24 yr old male and I to am a stage 3 HS sufferer. I experienced my very first boil at the age of 13 in my sacrum area, after I received treatment for that I was clear up until I was actually diagnosed in 2007 once I turned 18. Since then I've been through numerous invasive surgeries and procedures, skin grafts and even had a pic line inserted for administration of iv antibiotics at home in both of my armpits the groin and my backside. For me it seems like nothing at all is working no antibiotics no surgery or anything. I had one successful operation and that was under the right armpit all the other areas are still painfully inflammed and constantly draining and itches to the point its literally driving me insane. Since I became diagnosed with this disease its made my life a total hell, I'm forced to wear mesh undies so that I can hold gauzes and bandaging in place for the draining. Even though I dont get that scent of death from them anymore, its still a messed up depressing place to be in. I cant work, I'm scared to attend an actual building for school so I'm doing it online, but my life has taken a dramatic turn and I guess this disease isnt important enough for Drs to try to work hard enough to find a cure. I commend those of you who are taking this like a champ but I just cant help but to think about me not having kids or even being intimate with another because of scars bruising and draining. I feel like I am cursed and dont ever think I can get use to living like this even though its been 6 yrs now. I just want this to be over!

you need a skin graph sugary is a major sugary but i was like you now i had the sugary and i don't have to deal with it anymore

How was the surgery ?

I have a possibly stupid question....what doctor does the surgery? Would I go to a dermatologist? My family doc? I have been to at least five and no one has mentioned surgery. Thinking this might be my best option. I have had this now going on 20 years and it is just getting progressively worse. :( thanks so much.

a plastic sugernt will have to do it

hi all I have suffered this since the age of 16 im 26 now and believe me I feel for everyone on here suffering this illness I have been back and forth to my dr only to be told it must be in my blood and I have to cope with it I have took god only knows how many antibiotics for it I think my body is immune to them now I have tried all antibacterial creams soaps etc. etc. and still nothing works I like everyone here got told they were just boils I have suffered them under my arms the base of my back and also on my thighs and my private area I am scarred and its embarrassing I cant wear summer vest tops short shorts or a swimsuit because im embarrassed and even after 5 years of being with my partner cant bring myself to let him see the affected areas especially on my private but I am lucky to have him and know deep down it doesn't bother him its just me who has the problem but yesterday I went to my doctors and explained I was sick of it and there had to be a medical term to what was wrong with me and it must of been my lucky day because I saw a new dr and she explained all about hidradenitis suppurativa and the treatment they could try me with first is oral medication so iyl share with the people who don't know much information on it 1.topical anti-acne antibiotic and benzoyl peroxide 2.short courses of antibiotic more so called flucloxacillin 3.for women only sometimes the contraceptive pill could work but personally I have tried it and been on it for over a year and hasn't worked for me 4.roaccutane my mum who also suffers this was offered this but u have to be a perfect candidate as there are lots of side affects and was in the end refused as she was hyper to start with and would of made her worse and could make her depressed and suicidal 5.corticosteroid tablets (steroids) also side affects on long term use so anyone thinking of taking such things make sure it is prescribed by a doctor the last is surgical treatment the tablets I have mentioned are not a method for me as I have no kids and plan to and also in order for me to get the medication I would have to go private as there expensive but for people who don't like surgery its more options to talk to with your dr so I think im opting for the op I just wanted to say to everyone out there who suffer this I feel for you and hope you all get it sorted and I also hope my information has helped a little also excessive gym work outs can cause the boils ware loose fitting cotton clothing keep area clean with antibacterial soaps and washes avoid shaving affected area avoid using deodorants if one appears use a hot flannel as hot as u can stand to draw the boil to a point and the boil bursts try to minimise heat exposure this will mean avoid sitting next to any fire places or anything that could make u sweat hope all helps and gd luck to all x

soo just wondering has any one had surgery on their private??? and if so how did that go

i just had the sugary its really not bad at all the arm pit is the most painful but i do recommend sugary

I also have HS. I'm 39 and for twenty years it went undiagnosed from my doctors until the perineal one was so bad I couldnt take the pain. Both armpits have been lanced several times and I also had surgery on a polynidol cyst that didn't work.

The problem in my perineum got to the point where 3 fistulas had formed, two being in my scrotum. My urologist said surgery is the only option. So, I had the surgery three days ago and hoping this does it for that part of my body. Surgery was difficult and there is a lot of discomfort. Just had the 8" drainage tube and packing removed and I feel a little better but the site of the incision is still painful.

I feel for the rest of you dealing with this, it's a painful and embarrassing disease.

I have h.s. also. I developed it in my later adult years; 37 years old. At first it started as one single knot under my breast i fold one night while showing. Eventually, it got bigger and stared to hurt...well you know the pattern it takes. Throughout time, these knots and lumps grew bigger, developed in more locations, lasted longer and hurt more. For two years, this cycle continued and my doctor lanced and drained. Emotionally, physically and psychologically it took a toll on me and when I was 39, my doctor found a general surgeon to remove my glands one at a time so i would never need skin graphs. I had surgery over the next three years. Partial glands were removed from under my left and right arms pits, under right and left breast and right groin. At 42 years old, i can say that i was more free of them then not. I still have armpit odor under my right pitso when use deodorant, I have a small flare up but after washing very quickly with antibacterial soap it disappears. My surgeon told me if i ever had flare ups to come in, immediately, without an appt so i can schedule surgery right away. That was my major comfort.

I have had both armpits grafted in2011 and to this day I have not had a problem there, but a couple of months after my arms were done I started getting them in my groin area, both sides, I had local injections into groin area to drain them but keep coming back, then in Nov 2012 I was in hospital for 2 wks and had both sides of groin areas grafted, one part is still causing problems and was told by my surgeon that it looks like I will need another graft done as a bit at my private area needs to be taken away now. I have suffered with this disease since 2001, a couple of months after I had my daughter.

Hi, I have had hs for about a year now n I already had surgery on both of my armpits but I do have lots of problems in my groin area and its really painful as you should know. So now I am seeing my doctor because I am planning on getting surgery on my groin area so I wanted to know more detailed how that surgery was for you because im really worried about it

After the surgery you will much better then you did before surgery. I'm not sure what else to tell you to expect before our docs are different our bodies are different. After my groin surg, i had stitches for about 3 weeks. After they were removed, I can say that my groin issues were/are very small.

Wow!! For years I thought that I was the only one suffering in excruciating pain and embarrassment. My story started when I was 11 years old, and the cysts relatively small about the size of large grapes started coming up under my arms and in my groin area. I'd been to numerous doctors and dermatologists and been told that it was just a plain infection or that I was just dirty and needed to bathe more often! And I usually showered at least twice a day! I was crushed and humiliated! And after the birth of my kids it only got worse! Then it showed up under my breasts! I've had the removal surgeries under my arms and all the antibiotics you could think of. Nothing worked, not even the surgery! And even as I try to sit here crying cuz I have a group of cysts on the back of my leg(thigh) thats as big as a soft ball! I've even done the Turmeric pills. So if anyone has any ideas, please help!!

I HAVE GREAT NEWS I CURED THE SMELL OF hidradenitis suppurativa....MY SMELL IS COMPLETELY GONE IT EVEN LEAKS LESS PUSS IM SOOO HAPPY I COULD NOT WAIT TO SHEAR IT WITH YOU GUTS ITS BEEN TWO WEEKS ANG I HAVE NOT SMELLED ANY THING MY SHIRTS HAVE EVEN BEEN DRY....ALL YOU HAVE TO DO IS WASH UNDER YOUR ARMS BEFORE YOU GO TO BED AND WHEN YOU WAKE UP WITH HYDROGEN PEROXIDE THAT COMES IN THE BROWN BOTTLE AND CVS BRAND ANTISEPTIC SKIN CLEANSER IT COMES IN A BLUE AND WHITE BOTTLE IT WAS MAYBE 9 BUKS NOTHING TO MAJOR BUT I PROMISE IT IS SOOOOOOO WORTH IT IM IN STAGE 3 AND I SMELL NOTHING I WORE A TANK TOP YESTERDAY OMG AHHHH I NEVA THOUGHT I WOULD BE ABLE TO DO THAT SO PLZ PLZ PLZ YOU GUYS GO TRY IT AND TELL ME WHAT YOU THINK

The soap you are referring to, is known as Hibiclens (the antiseptic skin cleanser is the generic). This is wonderful stuff. So glad you have discovered it. It has helped me with odor as well. It also helps clear mine up. I am also a Stage III.

yeah the hibiclens didn't really work for me I love the generic tho

Curcumin C3 Complex (aka Turmeric) is what's stopped mine from smelling. 500 mg in the morning and 500 mg at night. If one brand doesn't work, try another and another another because it really does help. If 1k a day isn't cutting it go to 2k a day. You can gradually go to 4k a day but I wouldn't recommend any higher. Just because one brand doesn't work for you doesn't mean you should throw the baby out with the bathwater. It's really amazing stuff, ya just gotta keep at it till you find one that's right for you. Good luck.

Had no idea this was a real acknowledged sicknesses. Thought is was in grown Hairs. The pain was excruciating. Mine started 10 years ago. I never would have them during Dr visits n hate going to Dr otherwise. When they started to come two and 3 at a time in the groin area under both arms they became of terrible worry.I went to the Dr and he told me it wad bad he recommended Laser surgery to destroy the hair follicle n sweat gland. I WA also going to have surgery to repair a hernia. It was a week away. He gave me Keflex n munition ointment. It alleviated the pain n brought down the swelling of approaching ones. It also attacked the open one. The surgery was painless. I'm only on the 2 ND day but my underarm had serious craters in it. I will try to report back in a few days but of it Sps the boils in completely satisfied.

Hi I have delt with it for seven years until finally my pcp told me I needed surgery. The surgent looked at my arms and said he would do it. So my surgery was very intense he removed everything so it would not come back. I'm happy so far.

Hi I have the same thing and may need surgery my doctor has given me cream to unclog my pores but i don't think it's working my fear is going to surgery. I think they are going to put tubes in my mouth down my throat.I am very scare. Can you tell me how was the surgery please. I need to know because it's holding me back.

Nanapooh my surgery was a week ago it was not that bad. They expected me to be in a lot of pain however I wasn't. they did give me pain medicine which helped but I'm still healing but I think the surgery is worth it if it never comes back.

So, I saw this story and had to respond. My 15 year old son has this, and my 30 year old daughter does too. Both of them had successful surgeries and have recommended the surgery over antibiotics. My son is recovering from his surgery he just had under his left armpit last Monday, so 6 days ago. He is doing terrific! The surgeon said the trick to a successful surgery is to make sure they remove the whole abcess, surrounding boil and infection, infected follicle and all of the "tracts", or tunnels that come from the bacteria trying to tunnel out under the skin, which leaves scar tissue and the feeling of webbing or cords under the skin. His was quite extensive, and he struggled for almost 6 months taking antibiotics, having it incised and drained, you name it we tried it. His surgery involved putting him to sleep, it was a hospital thing not office visit. He had an elliptical incision that removed the skin containing the boil, and the surrounding skin around and underneath the abcessed follicle. Then he made another incision about 2-3 inches up from the first one, where he removed the tracts that were attached to the first area under his skin. His armpit had an actual deep dimple before surgery, and he talked about a "pulling" sensation when he lifted his arm. Then, a third small incision was made, approx. 3 inches from the first one, and they sewed in a drain that he then threaded up under the skin into the abcessed area and coming out of his side about 3 inches. He ended up with about 16 staples and the sutures from the drain. The whole thing is then covered with gauze and taped in place. We saw the surgeon Thursday (3 days ago now) and he is healing beautifully. His staples and the drain will need to stay in for another 2-3 weeks per the doctor, but he has had very little (almost none) post-surgical pain and very little discomfort. The boil he had before was more painful! He is very glad he had the surgery, and I guess time will tell if it comes back. We have been advised also by the surgeon to avoid waxy antiperspirants, so he is now using a deodorant-only spray so it doesn't clog his pores again. The only risk factor he has is he is an athlete, he isn't overweight and doesn't smoke. My daughter's surgery was in her tailbone area btw. This has to be hereditary, as my brother also had this.

Did your son have the entire armpit area removed? Or just a certain area in the armpit?

I suffer from hidaditis also, I have it around my groin. I been suffering with this for 4 years and it is very painful.. I have seen many skin doctors and know I might be going in for surgery I pray this helps me..

I am a 16 year old girl and i have been suffering with HS for around three years and it took right up to September of last year to have an actual diagnosis from the doctors. I have been on antibiotics since then and they are not working yet my doctor seems to think that remaining on them is the best option. I have another appointment in March an my doctor told me that if my tablets aren't working by then she will discuss surgery with me. For people who have chosen surgery, would you suggest it? does it help? how long is the recovery? approximately how long should i be without another growth for?

Hi i'm a 30 year old guy and have been suffering since 16. The disease comes and goes away. I was able to significantly reduce mine by becoming vegetarian. I actually was vegan for a year. I lost excess weight of 40 pounds. I am still suffering but the frequency is astronomically low. Good luck guys and keep the faith. When we get to Heaven, all our pains and suffering will go away. We'll jump like a deer there. Happiness is ours.

Hi I'm crystal and I have had this since I was 12 & I'm 28 now...its a terrible disease and I'm going for surgery in a couple of weeks.I only get them in my perineal area so its very hard to walk some days...I can't understand why there is no cure and why such and invasive surgery doesn't have more of a guarantee!!!...I pray that this surgery helps me& we all find relief!

I just had radical surgery with skin graft (armpit) for my stage 3 HS on November 8, 2012 ~ I woke up yesterday to another outbreak - same armpit and underneath my new skin graft .... So just an FYI for any of you going for radical surgery - it isn't a cure and holds no guarantee that they won't come back in the same location and with a vengence.

Hi I'm 24 and I just found out I have hs today and I got to go see a surgen after the holidays kinda scared after the surgery is it real painful

Hi so I've said before that I am 27 and have had the disease since I was 12ish (puberty). It was controllable with abx at first but has gotten so bad since I had my son! For the last 3 1/2 years my hs has progressed so much that it now affects my entire perineal area, under my breast and my face! This disease has isolated me from friends and family due to the embarrassment and pain. After seeing several general surgeons who wouldn't touch it because of the location, I have set up an appt for early january at Miami university with a plastic surgeon who has a lot of experience in dealing with hs in these areas!! I am ready for the radical surgery and possible year recovery (so I've heard), so long as the Dr. says I'm not too far gone!! If things work out I will post more info on the Dr for those near the Miami area!! I know this disease makes me want to cry every day and makes me hate myself and my life, but I try to stay strong and believe that god wouldn't give me more than I can handle! I pray one day we will all find some relief in dealing with HS!!

Hey, Im from the UK and turn 19 in December. I have had hs on my thighs and groin area since i was around 9/10 (whenever puberty occurred). I have been on the same medication (Erythromycin) all these years and for the first few years it was quite a relief, i got the odd flare up but it was quite calm, sadly my body has become so used to it that the last couple of years things have gone back to flare ups being quite constant and lots of pain. Recently i have also had a few boils underneath my armpits, ones that keep reoccurring, so my plan is to go to the doctors/hospital and have surgery on both areas, i know there is a chance of them coming up in different areas, but if they are going to start doing it anyways i want to give surgery a go.

i have suffered from this condition for nearly 12yrs. last year i had both underarms grafted and they have been great but i have been getting abscesses in both sides of my groin and inner thigh since last year and now await an appointment to have my groin areas grafted as im in agony and i can hardly walk some days. female (44)

Oscar2001... DO NOT allow the doctors to do a skin graft over any of the area's you're having removed! Because when the cysts come back, and they do, it's a whole new kind of pain when they try coming up through the new skin!!!

I too have suffered since I was 16.
I was told once that it was probably a third nipple!!!!!
I've had surgery in my left armpit but my right is the wors
I've also recently found out it's nothing to do with the sweat glands but the hair follicles.
I'm trying to convince my doctor that laser is the only way it will stop it. But they would prefer to treat with antibiotics even though the swab test showed no bacteria or fungal growth???? Good luck x

HI my name is Paula
I am 66 yrs old I have had this condition since I was 12. I have lived all This time with the pain and stigma that goes with it. If it was not for my daughter telling me what it was I would have gone to my grave not knowing. The only reason she knows is she also has it and the only reason she knows is because she had a general practitioner who knew what it was. All these years I have suffered in silence and became my own doctor lancing and draining by my self. I learned to treat my own pain. I am glad you young people have an answer thanks to my daughter I finally have mine. At this very moment i have One in my groin Area and its particularly painful. My daughter also has One under her arm and it is also very Painful. I hope for all of u out there suffering that they will finally come up with something that will ease your pain. God bless u all

Im so embarrsed

hi it is such a relief that i'm not alone on this.I'm from the UK. I noticed mine about 8months ago and i went to my GP( doctor) and he said it was just a skin infection and that it would go with antibiotics and steroid creams, it didn't. I then got refered to a surigcal team at my local hospital 2 months ago and today was my appointment and it was officially diagnosed as HS, I already new this after watching a tv show called Embarrasing Bodies and I knew that something wasn't quite right but my doctor said that I was wrong and to leave the diagnosis to them (how rude), so now I have my official diagnosis and have been told that I have to have radical surgery as it hasgot to the stage where antibiotics would no longer work and that the surgery was a must have to try and trreat it. I am scared about the surgery as i can't afford to take time of work. can anyone tell me how long recovery is after the radical surgery??

It took about 2 weeks for me to feel marginally better.
I think surgery helps but it may come back again, as mine did this year after 10 years of quiet.
I think you should enquire about laser treatment aswell. It's the hair follicles that need to be destroyed. Take care xx

I have been reading on this disease all day. I have had these outbreaks since I was about 13 and am 26 now. I have never told anyone bc it is so embarrassing and makes me sad.after reading this I am going to talk to a dr in the next few weeks.

Hi I have been suffering from hs for almost ten years now I'm 25 now and had no idea what I had until a couple weeks ago If u can respond back I would appreciate it I have no one to relate or talk to about and have been to embarrassed to tell dr till I it so bad it was spreading everywhere thank u

dont feel bad dear......:) smile its ok.......im 27 and have been dealing with hs for years....i just had my first surgery on my left armpit and go back soon for my rite.......trust me your not the only one.......every thing will work out......your in my prayers

HS is were a pimple becomes a boil when your immune system attacks it. I don't know how surgey would help this. You need anti inflamitory meds and medication that suppresses your immune system. I am 21 and have been livening with is since I was 7 and have been to many doctors and even the Mayo. I was told what it was by a doctor who was running a clinical study for HS. My HS is so bad I am unable to work. I can't even get on to SSI becuse I don't have any credits. I hope this helps people. Sorry for the misspellings, I did this on an iPad.

Hi I have hs and am looking into trying for ssi and can use so advise if u can respond back I would really apprecite it thanks

Hi did you get SSI because I need an advisor too

I am so grateful to have found this forum! I have battled HS for 23 years and have felt very alone. I was finally diagnosed 12 years ago after years of antibiotics and other medications. Early on I was told by a doctor this only happens to dirty people!
I am finally in the care of a wonderful surgeon. He's operated on my arms, chest stomach, thighs, and coccyx. I've had many botched surgeries over the years and he's successfully fixed these areas. In total I've had 7 surgeries on my coccyx alone, i had fist sized opening that took over 6 months to close. it has finally mostly healed with only a small fistula that drains constantly. Due to nerve damage i don't have to feel the pain back there atleast! Currently I have 25+ wounds in various stages of drainage, sinus involvement, deep scar tissue etc. I try to delay the surgeries as long as possible as I find the area is affected again within a couple years.
My biggest fear has always been getting one on my face. This year I developed one on my left eyebrow area which will not heal. It also causes edema in my eye tissue and bruising. My work involves lots of in person meetings and this sore in particular, though not the most painful, is so embarrassing!! Does anyone else get them on their face?

I myself do not but it can happen to any area where sweat glands are present ... i get HS flare ups in my groin, butt, underarm(had surgery) breasts(having surgery on nov 1). I am most worried about the groin surgery mainly because it needs to be done in 3 stages and when they do my buttocks I have to have a temp. Colostomy put it while it heals... I was told the Humira the med used for psoriosis helps with flare ups by almost 80% but it isnt a cure ... Ive also read they use radiation in England ... wont do it in the states tho

Hi I have had hs years I'am 25 now and it has spread all over my body it also has messed up my face I didnt know what it was until a few weeks ago i am willing to talk to anybody about this because it is a very personal problem for me and I need any advise I can get thanks

hi everyone. it does feel better knowing i am not alone. i am 45 and i have had hs since i was about 9. i have taken every antibiotic from a to z. i have to deal with hs and yeast infections from so many antibiotics. my last resort was the new thing out for hs which is radiation treatment for both my underarms. it didnt help me. i am going for surgery under both my arms. this can be a very embarrassing disease. drainage, smell and scarring. i use medical tape to wrap my under arms with those overnight tampon pads. i find they work the best for drainage. i use big towels that i cut in pieces to take showers because i cant stand the thought of my family using towels that i use even after they have been washed. i dont wear tank tops or any tops where if i raise my arms, my underarms will show. my inner thighs are so scarred i regret getting obgyn checkups, even though my dr. is a woman and sees my scars at my checkups. it is phsically and mentally draining(pun intended) it is poison coming out of our body, which leads me to assume those areas poisonous for some reason. right now as i type my arm is taped and padded. i think the antibiotic zyvox(very expensive) helped me in the areas where my hs is not bad.i refuse to go another year without surgery under my arms. pray that everything turns out great for me please my fellow sufferers of hs and i will pray for perfect healing for all of you.

Now that I'm 20 its spread to both thighs and my groin. The chaffing always made it worse and the scaring and discoloured skin on my thighs makes me want to cry every time I look at it. I had 2 drained today by my mom and im laying here in bed in pain from the abuse my skin has undergone but it will all be worth it tomorrow. I don't think anyone should have to endure the amount of pain we are all forced to deal with on an EVERYDAY basis. I am extremely lucky to have my mom. She got my insurance as a little kid but I can never change companies. And we work in a dermatology office where I can get the cysts treated ASAP and my mom has a kit at her house just in case. I hate that this disease runs my life but I plan to lose 100lbs in hopes of kicking HE's butt! Lol I'm so glad to have found people who understand what i deal with on a day to day basis. I know it sucks but I live you all and will keep you all in my prayers.

Now that I'm 20 its spread to both thighs and my groin. The chaffing always made it worse and the scaring and discoloured skin on my thighs makes me want to cry every time I look at it. I had 2 drained today by my mom and im laying here in bed in pain from the abuse my skin has undergone but it will all be worth it tomorrow. I don't think anyone should have to endure the amount of pain we are all forced to deal with on an EVERYDAY basis. I am extremely lucky to have my mom. She got my insurance as a little kid but I can never change companies. And we work in a dermatology office where I can get the cysts treated ASAP and my mom has a kit at her house just in case. I hate that this disease runs my life but I plan to lose 100lbs in hopes of kicking HE's butt! Lol I'm so glad to have found people who understand what i deal with on a day to day basis. I know it sucks but I live you all and will keep you all in my prayers.

I just got dx today im so embarrased n confused why after going to doctor 4 more then 10 years thinking im the only one doctors say oh just boils

Hi my name is Samantha, I'm 20 years old and I was dx with HS when i was q2 but I noticed a lump deep in my armpit soon after I started my period at 11 years old. My mom works at a dermatologist office (which I now work at). She and the Dr didn't think much of it because it was small and didn't hurt. But a year later it started growing and became so painful that I would keep my arm lifted to ease the pain. Once i was dx I had an appt to get it removed but it was 2 weeks away. My mom was forced to use a large needle to drain 10cc worth of that fowl thick puss out of my armpit every other night for those 2wks so that it wouldn't rupture before surgery. After surgery I was foggy and restless but less pain! They told me that the mass of the cyst was that of a half an egg (and this is after about 50cc was taken out). At first I could straighten my arm completely but that fixed itself after a few months. And they told me they had to cut through a nerve so to not be suprised if I didn't have feeling in my armpit for 7 years lol. It's only numb at the scar and part of my inner arm but its been 8 years and the feeling is coming back! I was very lucky and had a scar that feel right at the crease of my armpit so you can barley see it! I get laser hair removal on both armpits and its seems to help! But the best thing is having my mom be able to lance and drain the cysts early on. I tried getting cortisone shots but they cause my skin to thin at the site and one time it ate away the cyst and the fat around it and now have a indent in my thigh. But it does help with the inflammation.

I've Been Livinq With HS For About 2 years Now And Im Only 15 years old. Its started Under my armpits with tiny holes then the stinky drainage && the big boils. It has been EXTREMELY painful for me. And to make matters worse it moved down to my vaginal/ groin area :'( , i get big holes in between my legs and these hard bumps that eventually bust with drainage. They are all over it is almost completly unbearable To Walk , i cant even go back to school just because im not functional and im uncomfortable .. im one of those kids who actually loves school ♥ band && history are my two favorite subjects . Now i cant even enjoy them. I cry almost everyday because im in pain or I feel useless im too young to know this much pain it isnt fair ! No one will help me simply because they dont even know what HS Is when I Went To The Doctor They Thouggt I Just Had A staff infection but i kept comming back then later on they decided it was hs . They gave me antibiotics (pills,cream,soapss,wipes) i had it all but it didnt work :( .. i just want someone to tell me itll be OK , im tired of being tired i used to an active kid i played the saxophone for five years ive danced for two years and i wanted to do basketball but i cant i cant even go to my homecomming .. the doctors say i need surgeory. That im fine with but will it go away forever ?? Im reafy for surgeory but im deathly afraid of needls or anything sharp so i was a little hesitant when they told me that. But as long as i get better and heal up and can be able to do the things i used to do im fine .. i just needed to type this because i really dont have anyone to talk to but my mom and she only knows so much :/

I am sorry for what you are going through. I am 27 but have had the disease since I was 13. I too have it under my arms, in my perineal region and under my breasts. It has been hard and unfortunately there is no cure. I am a nursing student and have done a lot of research on surgery and as far as I can tell it is the best answer for a cure but approx 25% of cases do reoccur!! I actually just found a surgeon in my area through this forum and I am scheduled for my consult in the beginning of October. I hope you can find someone to help you and you are not alone. I too find it hard to confide in anyone, so no one knows what I go through every day either! But I'm so glad I found this chat room. No one really knows who I am but just reading all of these stories has made me feel closer to people.

Jada,
I am 34 and have been suffering from HS since the age of 24... I along with many others have had the groin area affected... I have had surgery on my right underarm which because of the large area needed to be done with grafting... the removal of the underarm area didnt hurt but the grafting donor site on my leg was absolutely horrible. Today I went to my surgeon to discuss more areas which include under my breasts, groin, and buttocks. When it gets to the groin he said we have to do 3 seperate surgerys to allow for healing in between or the risk of infection is to great, and when the buttocks is done I will need a temporary colostomy bag so that the area can heal. Its important to know that HS can return after having surgery especially when only the affected area is removed... because HS is a infection of sweat glands unless all sweat glands are removed it can come back... Also after having surgery if grafting needs to be done it will leave a really bad scar very similar to the look of a burn patient ... Do not worry about the cosmetic issues they look no worse than the HS itself ... please opt for the surgery and stop letting HS control your life ... it will take some time to heal but after u will have a quality of life... good luck

I'm so sorry, I also have HS and im only 16. I used to be very active as well. I played soccer, track, and softball. Thankfully my first love is singing. And HS cannot stop me from that (besides when the pain is unbearable) but I know how embarrassing it can be and no one really understands what it is and how it affects us on a daily basis. I've had HS for about 3 years and at first they treated me for staff at me family doctor. Once it was reoccuring we went to a dematologist and sge diagnosed me with HS. I was very upset to hear thst there was no cure. So I fight this thing everyday. I have a lesion under each armpit and one near my groin/inner thigh area and all 3 are painful but I continue to try to do the things I love to take my focus off of it. You can do it! You can handle it! Don't let it take over your life!

Jana122...I am also in Florida and although I have to live with HS I have an amazing Dr. Who has been with me since she diagnosed me over 3 years ago. I have had 3 surgeries (unfortunately antibiotics only work for so long before the pain is unbearable) It is a healing time, not fun, and others occure, I could not recommend a better person than Dr. Valerie Dyke. She is in swfl. Hope that helps:)

Ty for the info. I have made an appointment with her so hopefully I will be sharing my surgery experience soon

Hi I am 27 years old I have had this horrible disease since I was 13. It affects all areas of my body including perianal. I live in florida and I have been seeing a dermatologist with no help or relief of my symptoms. I feel they have only gotten worse over the last 2-3 years. I am seriously considering wide excition and grafting of the groin/perineal area, but unfortunately I cannot find a Surgeon who does it, and my dermatologist is no help. They have referred me to 5 different surgeons all who do not even handle HS cases. I am so fed up and I just want my life back or a normal kind of life anyway. If anyone knows where I can get the procedure done or can point me in the right direction I would be so greatful.

Hey, I'm Kate from the UK. I have had HS since I was 16. I am now 23 and the condition has only worsened over the past 3-4 years. I feel for you, I really do. HS has mainly affected me in both my groins, after years of antibiotics and consultations with my GP, I recently had my left groin excised and the sweat gland removed in a hospital in West Sussex. I had the surgery 5 weeks ago and have been left worse off than when I even went under the knife! I am not happy with the results. I have had many large abscesses in the area where I had the surgery, including where I had stitches! This was and still is incredibly painful. I have been signed off work for a further month as my groin is still full of infection. I am now waiting to see a consultant dermatologist so I don't ever have to go through this experience again. I hope you can find some alternative to surgery as, personally, my experience hasn't done me any justice. HS is a horrible condition but hopefully one day they will find a real cure, without mutilating people!
All the best.

Hello, I feel your pain (literally!!!) Mine started when I was 9 and I was very ashamed to tell anyone especially since it was under my arms and in private areas. I have been lanced and packed and drained so many times that my ER bills r beyond payable. I don't have any insurance either. When they lance the other places (not my arms) I miss up to 3 days of work. I was wondering if you knew the kind of surgery I need or what other treatments I need....

You need to have the affected area cut out and have a graft done.... with this disease you have a good chance of being accepted for disability ... I would try ... good luck and I pray for you

I have suffered with HS since my late teens; I'll be fifty in a few months. I have had both armpits excised (in my 20's) and major excision of my right groin (about 2005). I also have psoriasis pretty severe and for that I was placed on Humira, an injectable biologic. I dont see a lot of mention on here about it, but since beginning the Humira, my flares are rare and when I do have them they are so much smaller and less painful. My dermatologist explained to me that it known that Humira as well as the methotrexate that I am on, both provide relief to HS suffers. I just thought I would pass this on to people who may not have heard about this. Antibiotics never provided any relief so surgery was my only option then. Humira doesnt stop them 100% but it made about an 80 to 90% difference in mine. I am still glad I had the excisions if for no other reason than removing the heavy scarring that I had. My scars always seem to be painful and itchy and none of that is there now. Originally they did skin grafts; after losing a significant amount of weight, the plastic surgeon was able to remove the grafts and close the area with local excess skin. The appearance under my arms is no longer a worry for me as it used to be. I still have a long scar, but it has almost faded back to normal skin tone.

Kataylor62! Thanks for this information! I never knew. I just had surgery under my armpit for HS. It's been only a week, but the pain from surgery is nothing compared to the pain that I had to endure by not knowing what I had. I've been dealing with this disease since I was 14, I am now 27 and finally did something about it. I will have to go to my dermatologist and ask about Humira. Thanks again for letting us know this information. I am glad you are doing so much better.

Hello everyone. I am a 35yr old female and I have the same story as many on here. I am just happy to know that I am not the only one with this painful, disgusting disease. I have been dealing with this since I was 17 and no dr could tell me what it was.. first I had staph, then I had MRSA, I have been on every antibiotic known and nothing helped. Inside of both my thighs are so filled with scars that I am embarrassed to wear swimsuits, shorts or anything where u can see my thighs. I went to a new dermatologist about a year and half ago and within the first 5 mins of the appointment she told me what I had and that I have stage 3.. no antibiotic works anymore and i get 4 to 5 lesions on both my inner thighs every 2 to 3 weeks.. I am never without a lesion ever.. I get depressed, and angry because its like nothing works and I am just tired of these lesions.. I have really started to do research and I am leaning towards surgery but with my profession I don't think I will be able to do the surgery anytime soon. UGH.. I just wish there was more studies done on HS and they could figure out a cure for this nasty disease.

I was disguised with hs about 2 years ago, have suffered with it since I was about 13/14 and am now 18. I first started with lumps in my groin, which progressively got worse and worse and I am now left with terrible ugly scarring from them. I went to the doctors did was told they was just boils as everyone with hs seems to be told at first. I stared my first course of anti-biotics and they didn't make any difference whatsoever. After a while I noticed a hard lump in my cleavage and went straight the doctors, once again was told it was just a syst. 4 years went past on numerous different types of anti-biotics and none of them made one single bit of difference. I was put on the cane drug and became seriously even more depressed than what I already was from hs. My chest, armpits, groin and thighs are affected by hs and i have scarring everywhere. My cleavage had practically rotted away and was unbelievably infected. I tried hibiscrub and numerous antibacterial lotions which also did nothing.ninjas bed bound for 4 weeks at the worst stage of my cleavage wound. Have ff size boobs so this is such a disadvantage with having hs. I woke up one morning and felt an excruciating pain in my lower back. Owens straight to a&e and was told in had a syst on my spine, they said hs had causes this. I underwent surgery to have this removed. Since then I have recently undergone surgery to have the infected area of my chest removed. I have had a rotation skin flap performed by a plastic surgeon which means that the infected area is removed and newn skin is taken from elsewhere near abouts (in this case, skin from under my boob) and rotated round to fit the area of removed skin and tissus. I'm still min recovery now and waiting to heal up propery. I will keep people undated on whether surgery was the right choice for me. I wouldn't wish this disease on anybody and people in the same situation as me will know why. Awareness for hs needs to be increased. I have seen doctors that don't even know of this condition. People with hs will know how frustrating and painful this disease is. Iwold Evie to hear from some people and their stories.

hi im going thorough same thing as u I only got diagnosed with HS yesterday after visiting my dr on and off since I was 16 im 26 now and I understand how u feel I used the same stuff hibiscrub payed a fortune for it and didn't help me at all I now use fremfresh and alougth it dosnt keep them away it gental on my skin and helps get rid of bacteria im in the decision making wether to go in for the operation I just wanted to ask wether you think its a gd idea seeing as u have been through treatment ty x

Hiya folks, I was dx with HS about 6 years ago, just before I got pregnant with our daughter. I was on minocycline and a benzo wash (that did nothing really) as well as BC pills. I also lost about 40lbs- non of it really helped and I had to get off the mino actually before I got pregnant with our daughter. I just had our son 5 months ago and the flare up after was so bad that I finally went back to the dermatologist who recommended I see a surgeon (my arms are bad enough that she thought excision was the way to go).<br />
<br />
The surgeon suggested I remove the sweat glads in my arms. And I just had the first surgery on my right armpit this past week (Monday Aug 13, 2012). I was in the hospital for 6 days (because I was on IV clindimycin and a vacuum dressing). I am at home now, recovering. My surgeon will only do one arm at a time and she did a radical removal of the sweat gland in my right arm followed by a skin graft. She told me that this procedure should be my "cure" and that she has only seen the disease reoccur in 1 patient out of the last 50 or 60 she's done this surgery on. I have very little pain in my arm (no more, no less than it was before surgery when I had the fistula under there). Most of the pain is at the donor graft site but I know that will go away very soon. <br />
<br />
Anyway, once I am fully recovered from this surgery (in about two to three weeks) I am scheduling to do the other arm. First two days of recovery in the hospital were really tough but I am so happy I had it done. I also have a ton of support from family and friends. Best of luck to all of you that are suffering, I know your pain acutely.

I was recently diagnosed with HS myself. I'm also 19 and went over a year without knowing what I had. I recently saw a fantastic doctor who was able to diagnose me in an instant. I've been taking TB medicine along with antibiotics for three weeks and have noticed an improvement. I have also started using 'Dial' white antibacterial, deodourant soap as I've heard from a few HS sufferers that it can help. I suffer with HS between my breasts. Its doesn't seem to be as bad as some people have it but I'm doing everything to try and prevent it from worsening. I've also heard that a low GI and a low dairy diet can help. I really hope that you find something that works for you, as everyone seems to be different. God Luck!

I don't know how I should go about this, nor do I want to but I feel like I should share like everyone my most unfortunate story. I'm 19 and just recently realized that I have HS which has taken, not only a physical toll, but an emotional one as well. The areas of which that the disease most occurs is in between my thighs. The areas of which I have been affected are only my armpits/ inner thighs/ groin/ buttocks and armpits. Though my armpits are affected the least, the pain of the ones on bottom outweigh it. I am overweight which contributes to it i'm guessing as I have tried to lose weight though the chafing between my thighs has caused rashes to occur on the reoccurring spots. It greatly saddens me to find out that the only permanent solution is surgery as I know I cannot afford it. This has effected me for since I was 17 and have confronted my parents with this dilemma. It was revealed to me that my mother had received one similar unfortunate event when she was young but not as severe as my case. This has not only taken a physical strain on me, but it has led me to become insecure about myself. It saddens me to think that I would have to present such permanent and disgusting memories to my future partners. I've so long thought about this which I now think it's logical to assume that this condition looks extremely unattractive to any women which would prevent me from conceiving and having kids. I do not know what to do anymore as I've consulted a doctor who mislead me into thinking it was only folliculitis over a year ago. The antibiotics that he prescribed me did not work and the pain lives on. I am confused what to do now as I was rejected health insurance and cannot afford this surgery. What am I to do?

Apply for disability due to the disease... along with that comes medical insurance ... you need the surgery... and there is someone out there that will look past the disgusting look of this disease ... I did :-*

I feel for you I suffer the same and I am also not thin I also have weight on me and find it very hard to loose it apply for disability and get sugery as for it being a problem to conceive and finding a partner who wouldn't cringe at the sight of them please don't worry I have been with mine for 5 years and like u I was frightened of his reaction but he loved me and bless him even helps me keep mine clean and lanced if need be no one will walk away from you over something like that if they loved you my mum aslo suffers it and is happily married to my dad has been for 28 years with boils and everything and went on to have 6 children keep your chin up and fight for yourself im here if u ever need to talk x

I'm 19 years old and ive has hydrenitis since I was 14. I was put on so many anti biotics that I was starting to think I was becoming immune. I finally had the surgery on may 25, 2012, my surgeon told me that my case was one of the most severe he had ever seen and he has been doing the surgery for over 20 years. He cut out my sweet glands and I was left with a gaping hole about 4 inches deep and 6 inches wide (basically my whole underarm was gone) it was not as painful as I thought and 2 and a half months later that whole area is still completely numb. it took about 9 weeks to fully heal. There is a large mark but it's better than having those nasty boils. I think you should go for the surgery

Hello. I was recently diagnosed with HS after about six years of symptoms. I was put on antibiotics and they seem to havet helped somewhat. I have the cysts under my arms with minimal pain but, I do have scars. I'm so glad to have come across this site because I have felt like I was the only on e with this problem. My surgery will be in December and I can't wait. I feel as if this condition has my life on hold. My children mean the world to me but, this condition has made me wary of relationships with other people though.

Hello I am a 31 year old single mother of two. After suffering for many years with boils under my armpits last week I actually had the surgery. I had my sweat glands removed from both arms. The first couple of days were very easy and practically painless believe it or not. However now I am in so much pain it's hard to sleep. My doctor put tubes in to allow dainage but when he removed the tubes it left an opening under each arpit the size of a dime. I am very concerned about the area becoming infected but my surgeon reassures me that it will heal properly by next Wednesday. My advice would be to research other options first because it is very painful and extremely hard to sleep if you have surgety under both arms. This condition is allot more common than we all think. My surgeon sid that he had five other patients visit him with the same issue within days of my surgery. He also told me to use malax on the area as deoderant or to use ban once everything heals.

Well once it heals you wont sweat cause you have no glands... so deoderant isnt necessary... deoderant can actully cause the flare ups....

I am 30 and I have been dealing with HS for 9 yrs. I have basically the same story as each of you in fact its like looking into a mirror!!! It use to be just in my groin and now it has spread to my butt, back and chest. i had the surgery with a really good plastic surgeon at the University of Miami about two mothes ago on my back, butt, and chest....but now I have gotten one back in my chest on top of where he opened it. It is basically a big open, draining hole that i have to pack everyday. i was planning on doing my groin in december but if I am going to have to have surgery again on my chest I just want to have it all done at one time. Seems to make sense but I was wondering how severe the recovery will be in the groin area? i am scared to have that done but i don't want to put it off...The area isn't very active RIGHT now (have no idea why, guess luck cause it was inflamed for about 7 yrs.). i am fairly certain that it will come back though so I want it done. So does anybody know what the recovery is like? Is it worse than other areas? How long was the recovery?

Hi I just got diagnose with the condition like 2 weeks ago after going back and forward with the doctor for about 6 years saying is it staph, no is MRSA, no is just plain staph. They put me in antibiotics that don't do ANYTHING but I guess it makes them feel useful. I got a referral for a dermatologist that I'm going to see on Friday because one under my left armpit hurts majorly and is not going away is open and smells horrible and is just painful but the thing is I have this one for about a year now. I do get in my inner thighs, buttocks, private area, under my bra, my abdomen below my belly bottom and now my armpits. It is very frustrating and I have scars everywhere. I was wondering if extreme weight loss helps or at least keep them away but then again if you loose like 100lbs and then get stuck with all the extra skin that will make it worse. I back up from gastric surgery just because of it. Now I'm wondering if they will get rid of the extra skin because of this condition.

Hello, my name is Raven and I've been dealing with hs for 8 years now. Im going to consult with a Surgeon on june the 8th. I must say hearing everybody stories, I'm worried about having this surgery. Ive had hs under both my arms, under my left breast, and on my groin area. I will try having surgery on one arm pit and if it does well, I'll try the other. I refuse to let them cut my groin area. I've been on all types of antibiotics, I've been on Humira, and after my first surgery, ill try Remicade. I'm so tired of this disease and I'm only 22 and started having boils when I was 14. I just want everyone to keep me in your prayers as I will do the same for you all as we continue to battle hs.

Hello my name is Cory I am 25 yo and have had HS since I was 19. It started out as a small abscess on my behind. After weeks of pain I went to the ER and they lanced the abscess. I knew for sure that it would be gone within a few weeks and I would be completely healed but the healing never happen. After months of draining I made doctors’ appointments and they did more lancing (cutting the boil open) and prescribed antibiotics nothing worked. By the time I was 20 the entire left side of my behind in between my cheeks were draining from hs and later the right side also…eventually the HS stared on my testicle area and my thigh. After many surgeries one doctor noticed the condition and advised of what he knew... afterwards I did all the research I could and found a specialist for hs at this burn hospital. He removed the hs from my growing area and it has never returned that was 4 years ago I’m still dealing with the hs on my behind but getting that done would have required a skin graft, a colostomy bag and even after all that it could still return I refused and decided to tough it out. I’ve always been active and in shape but my eating habits have always been like most collage kids I have changed that and I’m mostly vegetarian. Whenever I start eating bad the draining stars again and other areas become inflamed whenever I drink alcohol I notice the draining. (right after my 25th bday which was 2weeks ago I drank alcohol and got my first one under my left armpit I’m going to get that removed next Monday) I use turmeric on some of my foods to keep inflammation down and I try to avoid sugar caffeine and carbs( I know it sounds like hell it is) I’m sometimes better than I was so I guess it’s worth it... I really believe HS has something to do with some type of hormone issue or imbalance I notice it more after certain thing like staying up late, stress, bad food, to much sex, excessive sweat and soaps with fragrance.. (I use dial the original one with no fragrance and be4 i work out i always shower.. right be4 and after i think this opens the pores minimizing the sweat clogging)

Hi i am suffering so bad with HS of the groin most of my life. Now i have major drainages ,smells so bad and i really need some kind of surgery bad . please who ever had major surgery in that area... I need to no what going to happen step by step. I did see some picture it looks so scary.... Please help me understand what i am in for

I had chronic HS removed from my groin area and it has never returned… before I had it removed I had it for a long time and it drained. I had 3 surgeries on it before I went to a specialist for hs. The first 3 surgeries they only cut it open. During one of the surgeries they cut it so deep that it never closed but the specialist actually removed the infected involved area he didn’t lance or cut it open he removed it and it hurt like hell…. After the healing you can’t even tell anything was done on me there. Its healed and it didn’t change the shape of my testicle area or anything

Hello, I'm nervous!! My surgery is Thursday. I've had 7 boils under my arm since July. Though there is a chance it may come back... I'm tired of this. Reading this makes my anxiety worse hearing I can lose function of my hand. I've had diarrhea since I git the call saying my labs came back fine and the surgery is on. I will say mine seem to flare up around my cycle, wen I gain weight, and eat bad. I'm 29 and hope its gonna b over. I'm changing my eating habits and losing weight.

Hello, I'm nervous!! My surgery is Thursday. I've had 7 boils under my arm since July. Though there is a chance it may come back... I'm tired of this. Reading this makes my anxiety worse hearing I can lose function of my hand. I've had diarrhea since I git the call saying my labs came back fine and the surgery is on. I will say mine seem to flare up around my cycle, wen I gain weight, and eat bad. I'm 29 and hope its gonna b over. I'm changing my eating habits and losing weight.

I have it under my breasts and on my private area I even get it on my butt. The only place that I have it right now is under my breasts that is really bad and some of it on my private.what I want to know is if the surgery works cause I can't live like this anymore.

Hello All, My Name Is Kris, I am 30 and I have been dealing with HS since I was 16. It wasn't much at first, just a few small lumps under my breasts. As I got older it had become much worse. Now its not only under my breasts, but under both of my arms, on my upper chest, my groin, my inner thighs and on my rear end. Wearing clothes is a daily challenge for me. I work full time and go to school part time, and trying to get a good sleep at night is usually a challenge. I have tried every antibiotic under the sun that my doctor has prescribed me with no avail. Due to the scars and drainage I am scared to wear tank tops or anything without sleeves, I am also unable to wear shorts, because I have spots that sometimes show up behind my upper thighs. I am forced to wear pants and long dresses in the warmer weather. My doctor finally said they were going to due the surgery and then changed their mind at the last minute because they said that even tho I live in pain daily I do not have hs bad enough. I decided to go see a new doctor who decided that that they wanted me to try Humira. They told me that they have had wonderful results, I got my hopes up so much just for them to tell me that I didn't qualify because my family has a history of cancer. So they put the surgery back on the table. I am worried because I have hs in so many areas and I cannot afford to be off of work for a long period of time. I have also tried many home remedies including taking vitamins. I have every vitamin for immune health again with no avail. HS just smiles and keeps on going like the damn energizer bunny. I read online that this disease can be genetic, but no one in my family has it. I feel so alone because it seems no one in my immediate circle understands what I live with everyday, not sure on what else to do.

Hello All, My Name Is Kris, I am 30 and I have been dealing with HS since I was 16. It wasn't much at first, just a few small lumps under my breasts. As I got older it had become much worse. Now its not only under my breasts, but under both of my arms, on my upper chest, my groin, my inner thighs and on my rear end. Wearing clothes is a daily challenge for me. I work full time and go to school part time, and trying to get a good sleep at night is usually a challenge. I have tried every antibiotic under the sun that my doctor has prescribed me with no avail. Due to the scars and drainage I am scared to wear tank tops or anything without sleeves, I am also unable to wear shorts, because I have spots that sometimes show up behind my upper thighs. I am forced to wear pants and long dresses in the warmer weather. My doctor finally said they were going to due the surgery and then changed their mind at the last minute because they said that even tho I live in pain daily I do not have hs bad enough. I decided to go see a new doctor who decided that that they wanted me to try Humira. They told me that they have had wonderful results, I got my hopes up so much just for them to tell me that I didn't qualify because my family has a history of cancer. So they put the surgery back on the table. I am worried because I have hs in so many areas and I cannot afford to be off of work for a long period of time. I have also tried many home remedies including taking vitamins. I have every vitamin for immune health again with no avail. HS just smiles and keeps on going like the damn energizer bunny. I read online that this disease can be genetic, but no one in my family has it. I feel so alone because it seems no one in my immediate circle understands what I live with everyday, not sure on what else to do.

I have had HS for 19 years and at time or another it has affected just about every part of my body. For years, I too, had been told it was boils or nodules or just growths. Sometimes lanced, usually not. There were times I hurt so bad I would take a razor blade to them - crazy, I know. Finally I got in to a dermatologist and she knew exactly what it was. She tried a few things and nothing worked. I have now been on doxycycline for 2 years and have had none for the last year EXCEPT for my right armpit which refuses to respond to anything. I go for surgery on the 27th of this month and must admit to feelings of excitement (that it might be completely over with at some point) and dread. I have seen pictures of armpits after surgery and ewwww! I met an older woman who had the surgery and it never came back in her armpit but she had them everywhere else still. She did say that once she hit menopause that they became almost non-existent. Well there is something to look forward too...kinda

I just want to say good luck and I hope that your surgery goes well. I just had surgery myself on my armpits on the 7th of Feb. Thus far the pain hasn't been too bad. any pain I suffered was unrelated to my surgery. I personally dont like the way my arm pits came out but i'm more concerned with getting rid of the boils. they are super painful and have plagued my body for 12 years.

Wow, I have had hs for many years I am at stage 3 and my doctor has referred me to a plastic surgeon for the 2 nd time, the first wouldn't consider the surgery cause I have a rare blood disorder which affects my immune system. After reading about the surgery I am scared cause it sounds complicated invasive and painful with no guarantees. Scared and confused in Canada. I am happy to have found this site because at least I know I'm not alone. Any advise would be appreciated.

Hi everyone! I am 26 and just got diagnosed in the last month with HS and have probably been suffering from it for about 6 years. Most doctors just thought they were ingrown hairs that were infected and would throw me on some antibiotics. I have been on SO MANY antibiotics. I finally went and saw a dermatologist last month and he diagnosed me within 5 minutes!! He put me on aldactone which is a potassium sparing diuretic which also has anti-androgen effects to help block hormones. Prior to this I had been on just about every birth control imaginable to help my acne with no luck. I have noticed a slight improvement. He said if this works I will be on it for life and if not then he will try Accutane. I am an ICU nurse so I am not a good candidate for long term antibiotics which he said is another form of treatment. So comforting to hear of others suffering from this disease. Take care.

Have been dealing with this disease for 42 years. Saw 17 different doctors and tried every antibiotic there is until I found someone who knew what I had and how to deal with it. Unfortunately, the only "cure" is surgical removal...believe me, I've tried everything! From injections of antibiotics directly into my chest bone area to pouring alcohol into the open wounds! OUCH!!! Am going tomorrow to schedule my 5th surgery and my second surgery in the groin area. God help us all!

Hi all! Michelle 35.!! Wow you think your alone ane then you find this website!! Been getting cysts for years in my arm pits! Same spots and sooooo painful. They usually get infected. Went to the ernlast night and had one drained for the first time!!! Had no idea how painful it wasngoing to be... Now it wont stop draining and it is nasty.. Have an apt tomorrow with a surgeon. Yikes... 16 years and a million scars later they finally gave me a name for this curse!!!!

Hi everyone, I'm 23 and I have had this since I was sixteen, at first I only had it in my right armpit I had it for six years and was constantly given antibiotics, I finally seen a consultant that agreed to operate, I had the operation done on 6 th of january 2011, I thought they would remove the infected area ( which was only a small amount) and stitch it up, so I was surprised when I woke up to find they had removed all the skin from my armpit the wound ( which was 8cm across by 6cm ) was left open. I had to have the wound dressed every day for about 3 months as the wound had to heal from the inside out. Having it dressed everyday was very painful it was also packed with seaweed to help it heal ( I don't know how this works!) after about 6 weeks I started to notice that I couldn't grip things properly, it has now been a year since I had the operation, I have been left with permanent damage to my hand, I am unable to straighten my fingers I have numbness in the underside of my arm and also the outer side of my hand and my fingertips, I also notice it aches a lot. I have not been allowed to drive and I am also never allowed to do my job again I was working as a care worker but I'm no longer allowed to lift my clients :( I also have quite a lot of scaring which is till quite tender, although these r negative things I have not had the problem since under that arm. However, I was told that if I had it removed I was likely to get it somewhere else, sure enought I developed it in my groin which has spread to my labia. I now have to have the same kind of operation in my groin next Monday :( I'm very worried about it as I have been told the heeling proces s takes a lot longer because of where it is, luckily i live in the uk so I have the NHS to rely on to look after me! Has anyone had this operation that I'm due to have? And how was the heeling process? Thank you :)

I had my left arm pit removed and can't believe they did the packing thing and seaweed! My Doctor excised everything and closed me completely and have had no problems in that area since. I have, however, had everything removed between my breasts and left groin area and now have it on my mons pubis...going to see the surgeon again tomorrow for yet ANOTHER operation. Was told that this disease usually stops after menopause, but not the case here. Please fine another surgeon to do any further work on you!! The first one obviously did not know what he was dealing with...

Hi everyone, I'm not diagnosed yet but I've been getting boils under my arm since I was 16. I'm 21 now. The first time I got it, I got it lances and packed. It went away for months then the following year kept getting them non<x>stop ever since. I thought I was alone in this considering no one in my family has suffered through this. I don't have health insurance yet but when I do I'm hoping to go to physician that specializes in HS to see what treatment is best. I have them in both underarms and realized that when I'm stressed it comes out even more.

Hi everyone i'm glad to hear that I'm not the only 1 who gets this, I been gettin boils under my armpits since I was 17 and now im 23. Everytime I go to my dr office she tell me its nothing she can do & just give me some antibiotics, I even brought boil ease from the store. I then got them lanced & packed 3 times ain't nothing working im tired of this it's very painful I can't move my arms so I been reading people about hidradenitis suppurativa and I have a appointment to a dermatologist to have surgery. I must admit i'm very scared but i'm so tired & I just want it to be OVER......

Hi everyone i'm glad to hear that I'm not the only 1 who gets this, I been gettin boils under my armpits since I was 17 and now im 23. Everytime I go to my dr office she tell me its nothing she can do & just give me some antibiotics, I even brought boil ease from the store. I then got them lanced & packed 3 times ain't nothing working im tired of this it's very painful I can't move my arms so I been reading people about hidradenitis suppurativa and I have a appointment to a dermatologist to have surgery. I must admit i'm very scared but i'm so tired & I just want it to be OVER......

Hello--I am interested in trying the tumeric. But would like to know if I should buy the ground or the pill. Any advise would be helpful. Thenks

i would buy the pill. the taste of the ground is aweful and they affect you the same way.

Hi Everyone. I have not been diagnosed by a doctor yet as I am very embarrassed to go in for my condition. I am a 28 year old female and have been getting boils on my inner thighs since I was about 12. They are not very severe or as painful as some have described, but none the less they are recurring. The affected area which is small also has several blackheads which I am always extracting myself. As for hygiene I keep the area very clean so the blackheads are not due to being unclean. I have always had issues with my weight and am slightly overweight still. I workout quite a bit and notice when I am going often to the gym is when the boils seem to pop up. It seemed that my condition was getting better for many years, but then recently I have had 2 new ones appear. Both had the appearance of a blood blister which I poked and drained myself. They never drain on their own, only when I inflict an incision. There is no odor or pus, just a lot of blood. One had filled up several times after the initial drain but has seemed to go down. I have 2 areas of scarring which are from boils I had when I was a young teen... the skin over the area where the boil was is very thin and you can feel a divet in the skin underneath. Please someone help and give me insight. Has anyone dealt with my situation? I am not sure if my case is HS, but I am scared and feel alone. Thank you.

My case is very similar to yours! I still get the cysts but I get the black heads and little nodules too. And I actually have the thin skinned divets too! Im glad im not the only one. So its normal! Well as normal as this disease is.

Hi Everyone. I have not been diagnosed by a doctor yet as I am very embarrassed to go in for my condition. I am a 28 year old female and have been getting boils on my inner thighs since I was about 12. They are not very severe or as painful as some have described, but none the less they are recurring. The affected area which is small also has several blackheads which I am always extracting myself. As for hygiene I keep the area very clean so the blackheads are not due to being unclean. I have always had issues with my weight and am slightly overweight still. I workout quite a bit and notice when I am going often to the gym is when the boils seem to pop up. It seemed that my condition was getting better for many years, but then recently I have had 2 new ones appear. Both had the appearance of a blood blister which I poked and drained myself. They never drain on their own, only when I inflict an incision. There is no odor or pus, just a lot of blood. One had filled up several times after the initial drain but has seemed to go down. I have 2 areas of scarring which are from boils I had when I was a young teen... the skin over the area where the boil was is very thin and you can feel a divet in the skin underneath. Please someone help and give me insight. Has anyone dealt with my situation? I am not sure if my case is HS, but I am scared and feel alone. Thank you.

i would take some epsome salt baths they help with drainage and they are relaxing.. i would go see a dermatoligst they know what HS looks like more than regular doctors do. dont stop working out.

Hi, I'm bd and I've lived with hs for 25 years. I developed my first lesion at age 9. I'm now a 35 year old female. My father and both of his sisters have hs. I hate this disease, it is so painful. I think I have a mild case compared to some of your stories. I sought treatment for years and every doctor did not know what I had. I eventually saw a dermetologist who immediatley diagnosed me. My groin and perineal area is completely involved. In the past few years, my inframammary area has become infected. I also have a few areas on my abdomen. I've never sought surgical intervention, I have always treated the large lesions by applying an over the counter ointment called Boil Ease and covering with a bandage. It always makes the lesions form a head so that I can lance them. My lesions have never gotten larger than a gumball. I can tell the effect it has on my overall health: depression, more infections than people without hs. Is hs contagious? My ex started developing boils in his groin after 5 or 6 toghether.

Hi, I'm bd and I've lived with hs for 25 years. I developed my first lesion at age 9. I'm now a 35 year old female. My father and both of his sisters have hs. I hate this disease, it is so painful. I think I have a mild case compared to some of your stories. I sought treatment for years and every doctor did not know what I had. I eventually saw a dermetologist who immediatley diagnosed me. My groin and perineal area is completely involved. In the past few years, my inframammary area has become infected. I also have a few areas on my abdomen. I've never sought surgical intervention, I have always treated the large lesions by applying an over the counter ointment called Boil Ease and covering with a bandage. It always makes the lesions form a head so that I can lance them. My lesions have never gotten larger than a gumball. I can tell the effect it has on my overall health: depression, more infections than people without hs. Is hs contagious? My ex started developing boils in his groin after 5 or 6 toghether.

hs is not contagous. although you could try organic turmuric. (1/4 tsp w/ warm water) make sure you bathe everyday and i wash with hibiclens. hot compresses and when inflaimed ice them. i honestly believe HS is genetic because my dad also has it. you could just type the name in the google search bar and it will go on with other treatments for it. HS IS AN INCURABLE DISEASE. unfortunatly unless the surgery is sucsesfull then you will have it for the rest of your life.

Hi my name is ys and I had the surgery done on 8/24/11 since then some new one have come up in the same place. have this happen to anyone? The DR. have remove some of them and he told me I need surgery to remove the other one what should I do? they come up underneath my breast I can work and ssi keep denying me. help please

Hi my name is ys and I had the surgery done on 8/24/11 since then some new one have come up in the same place. have this happen to anyone? The DR. have remove some of them and he told me I need surgery to remove the other one what should I do? they come up underneath my breast I can work and ssi keep denying me. help please

My mother's doctor said this condition under her armpit was likely caused by use of antiperspirant (not deodorant). Anyone else hear this?

yes! i used to have this problem ALL the time. i stopped using antiperspirant and have NOT had ANY problems since! i do get them in other places though and noticed that they occur when i am not eating healthy and whole foods. if i eat too much white bread and other dead processed foods/ boxed food, as opposed to eating fresh veggies and fruits, I will get them as well. I also have noticed if I hold my pee too long, don't get enough sleep, etc anything that compromises my health/ immune system or makes me toxic I get these.

I had surgery to remove my sweat glands from my armpits in 1993. It was a staged procedure...one week the right one was done..the following week the left one. I had JP drainage tubes in both times and I did not have a skin graft done. Before having my big surgeries my doctor removed probably a dozen masses before finally saying it's time to remove the sweat glands. Of course recovery wasn't the easiest but I managed....and I was a single mom at the time. I have no problem wearing tank tops in the summer and very proud to wear my bikini!!! The only real problem I have is cooling down when it's really hot. I have had a very masses removed from my groin but my underarms is the place that HS has hit me the hardest. The problems I have now are dealing with pain under my arms...it feels like a hot knife stabbing me. And since I don't have all sensations under my arms it can be difficult to deal with. With everything I've been thru with this, I don't regret having my surgery. I believe I was my surgeons first patient he has done this procedure on and he isn't a plastic surgeon...general surgery. If anyone is considering this surgery and would like the name of my surgeon just let me know.

i was wondering about the surgery, im only 16 and i have issues with blood and needles, so does the surgery hurt?

hey all,im 23 and i went for surgery last tuesday which was a week ago today,i had the surgery on my groin area,the surgeon took lumps out of 4 different areas on my inner tighs near my vagina,the first few days wee great but then on the fourth day all my stitches opened,i am now getting them packed everyday but its har cuz the wounds are now infected,i am taking anti biotic and painkillers also,i am hoping that i will get better soon and see an improvment,i have suffered with hs for 8 year now and its a horrible skin condition,and its even worse as i dont know anyone else with it.