34year Who Was Recently Give The Name Hos

I created this page because I am 34yr old women who has only recently was given the name to something I have lived with my hole life. Well during this time I have been doing alot of thinking and it has gotten me to want to know more about this syndrome. So I came up with page in hopes of finding other people out there with this syndrome. Please if there's others out there or people who know others, I would love to here your story and see your pictures. Thank you !!!! Facebook info. ”Living with Holt-Oram Syndrome”
foxxy218 foxxy218
31-35, F
2 Responses May 5, 2012

Hi yes I too am a survivor of Holt Oram Syndrome would love to chat.

Thank u,, I'm asking for people to help pass the word. I started a group on facebook call Living with Holt-Oram Syndrome. If can please me my pushing this page.