I was born with Holt Oram Syndrome. It's something that's going to be with me my whole life. Not many people know what Holt Oram Syndrome so I often find myself explaining what it is. I have looked around for sites on the internet to perhaps meet someone else with Holt Oram Syndrome, but I have yet to find one. I'm hoping by posting here I have a better chance of coming aross someone.