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I Have Holt-oram Syndrome

Holt Oram Syndrome

By: deleted
Written on November 18th, 2008

I was born with Holt Oram Syndrome. It's something that's going to be with me my whole life. Not many people know what Holt Oram Syndrome so I often find myself explaining what it is. I have looked around for sites on the internet to perhaps meet someone else with Holt Oram Syndrome, but I have yet to find one. I'm hoping by posting here I have a better chance of coming aross someone.

By: deleted
Age: 26-30
1,247 people have read this story

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3 responses
  • pixieust2712
    pixieust2712

    My Grandfather, my father, his sister, and her daughter and her granddaughter has had this I have 1 hand with the similarities and so does my son, when I took him to cardinal glennon they were very excited over this. My fanily is in the medical books because it is quite rare I hear to have a generation of this.

    Aug 24, 2010
    1 like
  • KristinaCortez
    KristinaCortez

    Hi, I am kristina cortez and mother of three who all have holt oram syndrome. I am 23 almost 24 years old and dont understand how i got this syndrome since my mom had 7 children and i was the only one who recieved this syndrome. I dont know who my dad is so maybe it came from his side of the family.

    Nov 4, 2009
    1 like
  • nanapam
    nanapam

    Hi there,

    I have a sister that has this syndrome. She has the most severe form, she has twa grown children that have a mild form. Her daughter just had a little boy that has the severe form. Do you know of anyone else. I would love to chat with you about this.

    Thanks nanapam

    Dec 22, 2008
    1 like