Hyper Mobility Syndrome

I'm Katie, I'm 17 years old and i was diagnosed with hyper mobility syndrome when i was 14-15 years old, at first i thought there couldn't be a downside to being flexible? and who would have thought there would be? anyway, a couple of months later my knees, spine, ankles shoulders and hips started to pop really loudly whenever i moved them, unlike when they used to just click all the time, i thought nothing of it, i told my mom and she said that unless it starts to hurt, there's no need to be worried about it, so i just carried on as normal. A week before my period i get chronic back pain, it sometimes hurt so much i didn't feel like i could get out of bed because i was afraid it was just going to make it 10x worse, my mom took me to the doctors and she told me that it would be a good idea for me to go on some form of contraceptive, because it by it controlling my hormones it could help ease the pain, she was right, I've been on the pill for two years now and the pain went from 7-8/10 to 4/10, i stopped having a few days of school each month and started to get into my old routine of going out with friends and such. A year later every time my joints pop/click it hurt like hell id rate it 7/10 for pain, i went to the doctors they told me everything i already knew, they sent me to a physiotherapist and he told me the same but he also printed it off the computer so now i have the information stored in my head and on paper, woop dee doo. Jan 2012, i'd been taking quite a lot of co-codamol, ibuprofen and other pain killers in the past year or two, so they've been starting to wear off and not be so effective. I went back to the doctors around 6-7 weeks ago because i started college in September 2011 and i wasn't going to have days off and ruin my education, i wasn't going to feel sorry for myself even though it makes me upset sometimes knowing that its going to be back again the month after and there's nothing i can do about it, I've just basically been starting to feel pathetic and fed up of all the pain, taking tablets and moaning about everything hurting all the time. anyway, carrying on, i went to the doctors and they gave me a prescription for some anti-inflammatory's called Naproxen, I was told to take one or two a day for a month and she made an appointment for me for the following month, the next day, me and my little sister started Karate, because exercise is supposed to help with the joint pain.... anyway the lesson went fine and i wasn't hurting or aching throughout it or later that night. i woke up in the middle of the night crying my eyes out because i'd moved in the night and my leg locked into position, i couldn't move it and i was in so much pain it bought me to tears, luckily my mom was still up so i hobbled downstairs and she held me for a bit and got me a water bottle, and told me to phone the doctors again in the morning. i went back to bed around 12:30 am, woke up again around 3-4 am because i was yet again in pain and the pain killers i'd taken hadn't done anything, i went back to sleep and didn't wake up until 8 which is when i have to get up for college, id got ready just about to leave the house when my back ache and hip pain started to kick and i couldn't walk, i was in so much pain i was crying again, i didn't know what to do, so mom told me phone the doctors take some more tablets have the day off, so that's what i did. i didn't get to go see the doctor i had a phone consultation instead, and she gave me a prescription for stronger anti- inflammatory's  Mefenamic Acid which i'm currently on, i have to take one or two a day until my next doctors appointment and i'm only allowed to take paracetamol with these tablets, because both together make a really good and strong pain killer. I'm now waiting for my next doctors appointment but the pains eased although i feel like i keep dislocating my hips when i walk up and downstairs or walking certain distances, I'm scared and very emotional, i just want everything to be ok and for a doctor to listen to me for once, because i see them but they tell me the same things over and over again I'm not asking for a cure but to see a specialist or for them to tell me something that will help me? hopefully something good will happen and some point and the pain i'm in will be reduced dramatically or even by a little bit, either way i'll be grateful. 
katiebaddams katiebaddams
May 14, 2012