Hypothyroid And Completely Unable To Gain Weight?

Hello there. Yes, I know my title sounds a little confusing, and no, I'm not hyperthyroidic, and I don't have Hashimoto's.

I'm a 22 year old mother of a beautiful two (almost three!) year old daughter, a full time psychology/pre nursing student, and a part time employee. I'm naturally quite tiny, very small build, 5'3, normally, I hover around 110lbs...but there's a problem.

This all began more than two years ago when I had my daughter. I've been diagnosed bipolar since I was a teenager, but after I had my little one, my moods went completely out of wack. I was diagnosed with postpartum depression, put on medication, and then sent on my merry way. About two months later, I'd lost 40lbs of baby weight that I'd gained without trying. At the time, I was thrilled. A month later I'd lost an additional 10lbs, and was not too thrilled about that. At that point, I was down to 110lbs, which is about normal for me, but I've always hated how skinny I am naturally.. That's when I started to get tired. All the time. I would sleep for 12 hours straight, wake up, eat, and go back to bed for another 3 hours before I felt even remotely rested. I finally went back to the doctor to see why I was so tired, as it was drastically effecting my parenting and my life. My doctor initially thought I might have hyperthyroidism due to my weight loss and anxiety problems, and was shocked to find out the opposite, that I was hypOthyroidic. She started me on levothyroxine, and that helped with my fatigue. For a while, I didn't lose any more weight, but I also didn't gain any. My thyroid levels stayed normal, aside from the one month I'd been "bad" about remembering my pill. It was like that until about 6-7 months ago. Around then, I noticed that I started losing weight, despite the fact that nothing about my routine had changed. It was just a couple pounds at first, so I didn't really think much of it. About a month later, I was down to 100lbs even, so I went to my new doctor as I wasn't happy about the weight loss. He checked my TSH again, only to find it was around 6.4 despite taking my medication. He kept me on my current dose, thinking it might be a fluke, and had me come back a month later to retest. Again, my TSH was 6.5ish, so he tested me for Hashimoto's again, and again, nothing. At this point I'd dropped to 95lbs. He also ran a work up of things, checking to make sure I wasn't somehow malnourished (He suspected I had an eating disorder), and had me do a food journal. After my tests came back normal and me and my boyfriend assuring him that I don't have an eating disorder, I was brought in again a week, and had dropped to 92lbs. He had me on a healthy diet that was about 2700 calories a day, and he wanted to up my dose of levothyroxine, which I declined, as I feel fine as my dose is now and I refuse to do anything that might have me lose weight.
After several months of eating between 2700 and 3000 calories a day (Mostly healthy, mind you. Hard to eat that much without cookies.) I was still at exactly 92lbs, and eating that much made me feel terrible. My RMR (resting metobolic rate) is only between 1400-1600 calories a day, so all those extra calories made me feel awful. You know that feeling when you eat FAR too much, and you feel sick? That's how I felt all the time. So when I had to deal with that with no results, my doctor and I decided that a healthy diet of about 2300 calories a day is best. It's been months and I don't ever sway from 92lbs. No lower, no higher.
It's been months of bajillions of weird metabolic and digestive tests, physical exams, eating way too much food, and hating how grossly skinny I am. Only to find out I'm completely physically "healthy" aside from being hypothyrodic. But last night was the final straw, when my boyfriend, whom I love very much, mentioned that he doesn't like how skinny I am. My spine and ribs are visible from the back, ribs and hip bones are visible from the front and I have no breasts to speak of anymore. Clothes on, I look pretty darn skinny, but clothes off and I look anorexic. I'm at the point where I need some emotional support.
I can only assume this is somehow related to my hypothyroidism, since physically, there's nothing else wrong with me.
I hear from people all the time that they're so "jealous" and would die to be able to eat whatever they want and not gain weight and this is so hurtful to me. I try to tell them that it's not all its cracked up to be and I'd love to trade them.

Thanks for reading...I've never met or even heard of anyone else with a problem like mine, and I'm hoping here, even if nobody has this problem, maybe I can get some e-hugs or good vibes sent my way. Have a good day everyone :)
ashesmomma10 ashesmomma10
22-25, F
8 Responses Sep 23, 2012

It's been three years since you posted this, I wonder how you're doing. I can totally relate! I'm much older than you, but the last two years since I've been treating my hypothyroidism (Hashimoto's) I eat probably 25 to 2800 calories a day and burn maybe 1800 of it -- I'm still 128 pounds. I may go up a pound or two, but always come back down. I eat a lot of fatty (healthy) foods, meats, fish, fruits, starchy vegetables, nuts and coconut butter. Still no weight gain.

Hi there I'm exactly the same can't put on any wait what so ever

Ashes, you may want to look up a doctor named Datis Kharrazian who specializes in thyroid disorders including hashimotos. I understand you don't have hashimotos but he feels there is a connection between Hashi's and bi-polar and explains why Hashi's is sometimes missed in blood tests. Hopefully it's not that but his research may help you--and he does treat patients as well. He understands thyroid issues very well. Have you read Stop the Thyroid Madness? Some people do get weight loss with hypothroid, and many people have better results with natural desiccated thyroid... and some have unfortunately gotten worse on synthetic. I hope this helps you -- blessings to you and I sincerely hope you get well.

I am having the same problem right now. But I used to be heavy set until I got into a car accident 05/2012 and ended up with a [closed] severe traumatic brain injury I was in a coma for just under 3 months.. I thought maybe the brain injury had something to do with it but I guess I was wrong. :/

Hang in there. You sound like a lovely person. We can't help what we look like and when our bodies turn on us. Keep a positive attitude and love yourself then no one will notice your weight. (-:)

You may wish to see a TCM (Traditional Chinese Medicine) practitioner. Western medical approaches to chronic dis-ease patterns are very limited due to their approach. I worked as a pharmaceutical chemist for 20+ years and turned to TCM for my own imbalances when all the Western doctors would tell me that there was nothing wrong (ie their tests could not show anything). TCM treats root causes while Western medicine suppresses symptoms. Good luck

I've been having the same issue and been looking for some answers.
Thank God I'm not alone cos I have been so worried about this condition!

Everything I've read about hypothyroidism points to Weight Gain due to low metabolism, but it was the opposite for me. No matter what, I simply couldn't gain weight!

My family have been patient but some of my friends think its a mental problem and I need to think positive about my body and the food I eat.

Gosh, I've tried that for 10 years now!!

Everyday is a struggle for me.
Worst part is that I now have a goiter which is pretty much visible by just looking at my neck.

I've refused to get married and have kids as a result of my problem.
I live alone and try to cope with hypothyroidism as best I could.

I want to remove my thyroid due to the goiter, but if I decide to have kids in the future would I have problem conceiving?

I would really love to have a family of my own but I'm scared that my hypo would ruin it for me,

I have hypothyroidism but im gainig weight dramatically over 1yr and a half i went from 110lb to 135lb and thats with me watching what i eat and excersizing atleast 2-3 times a week and i my weight just keeps going up.....my face and neck are starting to look puffy i hate it i never been this big :( and im scared im gonna get bigger...im tiny like you too...im not gonna say your lucky because being too skinny or too fat sux :(....keep looking for the answer girl...eventually we will find it someday...dont give up !!!