Have Hope :)

I've had this skin condition my whole life. My father has it too. Luckily my skin isn't too bad and there are some areas that are smooth like under my knees, most of my face, and in my inner elbows. I have multiple health problems as well like being gluten intolerant. Growing up has been difficult. I wet the bed till I was 16 and still have occasional accidents. I'm currently 19. I can't tell you how many times people have looked and my hands and thought they were disgusting wrinkly and old looking. I can't tell you how many times I've missed slumber parties when I was little because I would wet the bed. I can't tell you how many times I've gone to an event and all they were serving was pizza I couldn't eat. PE was no fun because I had to change with lots of girls in the same room and I could see the flakes of skin as they came flying off my clothes. I've had people constantly ask me what's wrong with me because my skin is so dry. I've always been terribly self conscious. And during the summer sometimes my skin will feel worse because my skin gets dry, hot, and sweaty, causing rashes. I'm blessed to be able to have great friends who are understanding. I am lucky to live in the south where it doesn't get too cold. But I still have problems with my skin. I can't imagine what it'd be like to live up north, but someday I'll probably have to live there. I can't wear black shirts unless I bring a lint roller because my dead skin gets all over it. My furniture gets dusty quickly and my skin just seems to get everywhere! I can't shave my legs like other girls can because of all the bumps on my legs. And I always feel self conscious wearing shorts. I live in the south so I can't really get away with hiding under my clothes in 100 degree weather. I don't like the way my skin is. But I deal with it and have come to accept it. My boyfriend tells me, "It's just skin. It's another part of you, so why hate it? You're beautiful and I love everything about you." He's so accepting of me. To him my problems are just another more interesting thing about me that he wants to know more about and help me with. I've never been happier. He's the only boyfriend I've ever had but we've been together for over 2 years. He wants to adopt kids someday and I'm so glad because I would never want my kids to have to go through what health problems I've had to deal with. For those of you who feel hopeless about ever having a love life there is hope. Don't worry about what people think of you. If you just do what feels best for you, you'll find somebody who loves you for your personality and your body, "flaws" and all.
An Ep User An EP User
2 Responses Jan 15, 2013

I'm glad you found a loving partner. They sound fantastic ^_^<br />
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I can only hope to find myself in a similar situation someday

I'm 35. Had ichthyosis, eczema, allergies, asthma, chronic permanent rhinitis since I was 3. And the problems are still appearing. I'm not Lucky, not beacause of all of the above, but because I have dark skin. It shows so much more on dark skin than on white skin. Been called lepper, elephant, gargoyle, martian up to age 20. The best day of my life was when I quit school... I'm allergic to almost everything, and became schizoid as a result of an entire environment ( and its inhabitants ) agressing me. It took me almost 30 years to get a recipe right. The recipe is nothing. Nothing! No shaving, no heavy creams, jusr cortate cream on my lacerations (fall shedding is pretty brutal - I would need to get away from humidity and unpredictable temperatures ). After a day's work, my skin becomes heavy, with the growth and the natural oils that build up, I just give myself a good scratching and my skin will not stay irritated very long. During the night the redness will go away. I have inhibited the scratching over the years to get through my day, but when the day is over and I know I won't have to go out or meet people, I have to let it out. It's a part of me, like eating and breathing. Vitamin D, omega 3s and minerals found in most fish helps a bit. There is no solution to hyperkerative disease thus far. Only stem cell injections actualy show results. I refuse to a greasy slop bucket of a person, and my schizoid growth has helped me walk tall and show the world that it has not managed to crush me. It is implicitly true this age old piece of advice '' Just be yourself'' Listen to your body, steer away form toxic people, and surround yourself well. I myself consider myself Lucky because I have found my soulmate and have been truly loved. If she would die tommorrow, I would still keep on going tall. Happy to know some of us are doing well also.