I Hate Ih!

Hi...I was diagnosed a year ago in January 2009.  Since then I have had 5 surgeries.  Had 2 LP shunts, many revisions, and finally my last surgery was a VP shunt.  So far it has been working decently, I got it December 2009, so I'm hoping the results last a long time!!!  Here's hoping!!!  This has made my life crazy!!  I haven't been able to do my job, each time I go back, I end up back in the hospital!!!  My kids are afraid each and every time I go in.  I have a wonderfully supportive family!!!  I'm very lucky!!!  I just wish IH had a cure because this is truly no way to live!!!

ashandjansmom ashandjansmom
36-40, F
3 Responses Mar 14, 2010

i WAS DIAGNOSED ABOUT 2 MONTHS AGO, I WANTED TO HAVE LASER EYE SURGERY SO THAT I WOULD NOT HAVE TO WEAR READING GLASSES, WELL SINCE THEN I HAVE HAD 3 LUMBER PUNCTURES, GOING TO SEE THE EYE SPECIALIST TOMORROW TO SEE IF THE PRESSURE HAS DROPPED, THE ONLY SIDE EFFECT I HAD WAS NAUSEA AND VOMITING WHICH I THOUGHT WAS MY STOMACH PLAYING UP, I NEVER HAD VERY PAINFUL HEADACHES, BUT AFTER THE LUMBER PUNCTURES I HAD THE MOST PAINFUL HEADACHES AND AM STILL HAVING TERRIBLE HEADACHES.<br />
CAN SOMEONE PLEASE TELL ME IF THERE IS A CURE???

hey..dont worry a lot of people suffer it so we are all in this together...and well if u read my story ull see that there is a pill that can make it better just ask ur doctor about it. I'm getting treated by the president of the association of oftolmalogical of South america. I hope u try it and it works :)

ive had bih since i was born after i had meningitis, but was made clear i had the condition at 7 it does get easier as time goes on you and also your body gets used to it, ive just fallen ill again now after everythin ive had done, dont give up keep fightin n what ever you do just think you control the conditon dnt let it control you n your life xx