Living With Lgl

I was first diagnosed with LGL 8 years ago.  I have undergone Chemo many times (each a period of 1-3 months).  I have had Bone Marrow biopsies, Medi-Ports, etc.

At one time it was suggested that I had developed LGL from Agent Orange.

I would like to take part in a study that is endorsed by the Medical profession, as each Oncologist I have seen has a skecthy knowledge of this disease. 

wbz642 wbz642
2 Responses Mar 21, 2009

I wish you well, ihope you will be strong, and make the best decission for yourself...hang there.

Try reading up on FOODMATTERS.TV There are alternatives you can try along with whatever you choose to do with the medical field. If I were you, I would read all I could about this. Ive heard good results even with people that said there was nothing more they can do. Try it.