On Behalf Of My Daughter

My daughter amy has been diagnosed with ldd, we are both search for information. She was diagnosed in 2001 and has had a vp shunt since birth. Her last surgery was for kiare syndrome and that is when we found out about the tumor? she just did a post follow up very out of sequence but found out that her tumor is growing. She is now 30
Can anybody help with information. IS surgery the only option does it lead to cancer?
Thanks amys mom
wabuskarn wabuskarn
56-60, F
1 Response May 4, 2012

to your question im sorry but I have a son who is 5years old with lhermitte duclos disease, and as a parent yourself im sure you have the same worries as me, with your daughter being now 30 I was wondering if you would talk to me about ldd and what you went through with Amy and what Amy's life is like now etc I've so many un answered questions and I'd love to talk to a parent who has been through what im going through now with my son kyron.