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Non Alcoholic Liver Disease (nafld)

Please let me first say that I respect and realise that many others here have more irrevocable conditions that the one I am facing- but I really am seeking a genuine place to talk with people about liver Disease- and I would love to hear your expereinces as well as share my own.

I have had elevated LFT (liver fucntion tests) for some years now, and even have had previous biopsies. The reasons we thought I had a liver problem were due to heredity, some required pharmacuticals, and the persistently elevated LFTs. Apparently my liver normally runs at approximately 5 times the normal ALT and SGOT enzymes than the clinical baseline.

Late last year, I had another biopsy and have begun to show signs of nonalcoholic steatohepatitis- and no signs of cirrhosis as of yet. In the interim my mother recently passed away from liver failure (though admittedly somewhat self inflicted) and now my aunt has some severe liver issues as well with cirrhosis. This is identical to what killed their father as well.

My own issues- and most likely culprit (aside from genetics) is a metabolic syndrome. My BMI is way to high, and I do not eat and excercise as I should.

I also love wine- and grew up working on vineyards. I have a passion for collecting and tasting wines- and to the only rare and occasional excess in the past. The doctors of course feel that it is best to abstain forever- and that has been its own sort of hell as I lost a cherished hobby- and part of my profession as I purchase wine for airlines.

I started the exercise regime, got a training, and got some great succeess with getting the weight off and eating better. No matter what do however the LFTs will not change much. I am told that the only treatment that shows any promise is a gastric bypass. I fear that as I also have a strong affinity to the gourmet lifestyle and that sort of irrevocable change seems so harsh- and the literature seems to say that it *may* help NAFLD- but not necessarily.

So I guess my challenges are these:

1- I am very scared about the future progression of the steatohepatitis; and what that will mean
2- I am trying hard to change both my food habits and intakes to lose weight but finding it a challenge
3- I miss my wine hobby- and buying wihouth tasting for now seems so hard. I know what needs to be done- but that was a key passion
4- I cannot take pain relief (such as paracetamol) and I dont have any other really good recourse for normal day-to-day pain needs when they occur and that is frustrating
5- I know I have a chance to try and retard/stop the steatohepatitis from turning to cirrhosis- but no matter what I try I cant seem to make a difference
6- I am worred that genetics may also play a key role in my liver issues- though I have no positive proof of it.

Finally, I am just scared. Thanks for listening.

Sekem Sekem 36-40, M 5 Responses Sep 29, 2010

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It's shocking and saddening to hear about what you are all going through. For those of you having future tests I hope things continue to improve and get better for you. It's hard to know from where these things stem, and you can almost never know for sure, but don't let it get you down....Recently Multaq, Tylenol and other acetaminophen containing pills have been linked to liver failure in some people that use those pills. If you take or have been taking any of these tablets then you might want to read some of the information out there on how these pills are linked to liver problems. You may be able to get financial help for your medical bills and tests, as well as further treatment. Hope this helps. http://www.yourlawyer.com/topics/overview/multaq-dronedarone-liver-damage-failure-lawsuit-lawyer-attorney Alternatively, if you are just looking to talk about and share your problem with others then this forum might be useful http://injurytalk.com/forums/t6013-Acetaminophen.html

I had an Adenoma on my liver which caused pain under my right rib cage, My dr. set me up with a spec. in St.Louis Mo. which told me that it needed to be removed. what was suppose to have been a 4 hour liposcopic surgery turned into an 11 hour surgery, multible pints of blood and 3 days in Icu. and half of my liver gone because of defective staples. I worried for over a year and am still worried because of the pains in my stomach everyday & night. I never feel in top shape anymore and the scar from one side of me to the other aches at times, I also have fatty liver disease but the surgeon said that the rest of my liver looked good but I worry everyday I feel as though I'm not whole any longer and that surgery took away part of my very soul, Sounds stupid right ? But we can't change the way we feel inside, there's not a day or night that goes by that it's not still on my mind. You are not alone, I hope you know that. I know that you can't help but worry so I tell you what, I'll worry right along with you O.k. ? I'm a 52 year old man and I'm not ashamed to tell you that there have been nights that I woke up crying. We are who we are. God Bless

I had an Adenoma on my liver which caused pain under my right rib cage, My dr. set me up with a spec. in St.Louis Mo. which told me that it needed to be removed. what was suppose to have been a 4 hour liposcopic surgery turned into an 11 hour surgery, multible pints of blood and 3 days in Icu. and half of my liver gone because of defective staples. I worried for over a year and am still worried because of the pains in my stomach everyday & night. I never feel in top shape anymore and the scar from one side of me to the other aches at times, I also have fatty liver disease but the surgeon said that the rest of my liver looked good but I worry everyday I feel as though I'm not whole any longer and that surgery took away part of my very soul, Sounds stupid right ? But we can't change the way we feel inside, there's not a day or night that goes by that it's not still on my mind. You are not alone, I hope you know that. I know that you can't help but worry so I tell you what, I'll worry right along with you O.k. ? I'm a 52 year old man and I'm not ashamed to tell you that there have been nights that I woke up crying. We are who we are. God Bless

My thoughts are with you. I hope you get better, and find some answers soon.

I was just in the hospital for a week for pain in my abdomen, and my doctor told me my tests were 5 times the normal as well, they don't know what it is yet, but I should find out on Friday. I am scared too, and I will pray for your progress. Thank you for posting your story.