Non Alcoholic Liver Disease (nafld)Please let me first say that I respect and realise that many others here have more irrevocable conditions that the one I am facing- but I really am seeking a genuine place to talk with people about liver Disease- and I would love to hear your expereinces as well as share my own.
I have had elevated LFT (liver fucntion tests) for some years now, and even have had previous biopsies. The reasons we thought I had a liver problem were due to heredity, some required pharmacuticals, and the persistently elevated LFTs. Apparently my liver normally runs at approximately 5 times the normal ALT and SGOT enzymes than the clinical ba
Late last year, I had another biopsy and have begun to show signs of nonalcoholic steatohepatitis- and no signs of cirrhosis as of yet. In the interim my mother recently passed away from liver failure (though admittedly somewhat self inflicted) and now my aunt has some severe liver issues as well with cirrhosis. This is identical to what killed their father as well.
My own issues- and most likely culprit (aside from genetics) is a metabolic syndrome. My BMI is way to high, and I do not eat and excercise as I should.
I also love wine- and grew up working on vineyards. I have a passion for collecting and tasting wines- and to the only rare and occasional excess in the past. The doctors of course feel that it is best to abstain forever- and that has been its own sort of hell as I lost a cherished hobby- and part of my profession as I purchase wine for airlines.
I started the exercise regime, got a training, and got some great succeess with getting the weight off and eating better. No matter what do however the LFTs will not change much. I am told that the only treatment that shows any promise is a gastric bypass. I fear that as I also have a strong affinity to the gourmet lifestyle and that sort of irrevocable change seems so harsh- and the literature seems to say that it *may* help NAFLD- but not necessarily.
So I guess my challenges are these:
1- I am very scared about the future progression of the steatohepatitis; and what that will mean
2- I am trying hard to change both my food habits and intakes to lose weight but finding it a challenge
3- I miss my wine hobby- and buying wihouth tasting for now seems so hard. I know what needs to be done- but that was a key passion
4- I cannot take pain relief (such as paracetamol) and I dont have any other really good recourse for normal day-to-day pain needs when they occur and that is frustrating
5- I know I have a chance to try and retard/stop the steatohepatitis from turning to cirrhosis- but no matter what I try I cant seem to make a difference
6- I am worred that genetics may also play a key role in my liver issues- though I have no positive proof of it.
Finally, I am just scared. Thanks for listening.
Sekem 36-40, M 5 Responses 1 Sep 29, 2010