Yes I Am A Man With Lupus And This Is My Story.

I have never experianced such stereo typing before. The number one thing I here is ,your a man you can't possibly have lupus. And I answer your wrong. My dad had lupus as well and he even died from his heart involvment at age 54. And even most doctors I have met seem to feel that it must be something else because that's a womans disease even after I tell them about my dad. The number one doctors response is maybe you should talk to a mental health specialist. Number two response is that they think that I am presenting them with a new drug seeking story to obtain pain pills. My response to that is, I have a right to the correct pain managment but at this point I only want you to reduce my swelling and maybe somthing to put this lupus down or even into remission. So now that I am done venting here is my story. I am a 34 year old man and I first presented 13 years ago with the discoid lupus on my face and scalp. They told me they didn't know what it was but to try selenium sulfide shampoo. Lol. I tried everything. All the shampoos and creams. Even fungals creams. Then as a last resort I tr ied hydrocortizone even though you shouldn't use it on your face. It worked . Then 8 years ago I started getting muscle spasms, knots, cramps, and still they don't know what it is. 6 years ago I present with joint pain, stiffness and swelling. My knees ankles and fingers would get twice there original size and still they just don't know what it issince then I have presented with lung, heart, kidney, brain, vein, eye, mouth, and every joint in my body involvement. I havnt been able to work I over a year. Now I present with signs of secondary osteoarthritis as well. I have had 5 possitive ANA tests but the other screaning tests show within parameters. I have seen many doctors and none are willing to make a diagnosis or even treat with the normal med. I even went to a rhumatologist and on my first visit all he did was look for swelling of which I had none at that time so he said ther was nothing he could do unless there was visible swelling. What aload of crap. I happen to know for a fact that there are many more tests that can be done but I think they are reluctant to because now I have no insurance and very little money. I live in northern wisconsin and these doctors just don't seem to know or care when you can't pay. I am in so much pain and I am so sick right now. I have been to the emergency room 4 times in the last 2 months because I can't breath with chest swelling and pain when I take a deep breat. The y always do the same thing, give me an inhaled steroid and test for virus and bacteria then send me home now I have to travel over an hour to see a doctor who doesn't do anything for me because. The hospitals around me refuse me treatment because I owe them money .so that's ware I am at