Diagnosis Lupus

You know something is wrong when you wake up every day with major pain in you joins and mucles....well this was what was going on with me.  At first I just figured I had over done someting while I was at work.  But the pain continued, especially in the right knee and my right thumb were the worse.  There were somedays that I barly could move my thumb and my knee would snap n crack all the time.  So I was reffered to a Rumetoligist, they took some labs and ran over my medical history with me and did an observation of my move ments of my joints.  I had a feeling that it was gonna be lupus after they had ruled out MS, which was a relife there.  But you really are never prepared like you think you are when it comes to hearing that you will have a life long debilitating desise that you can't do jack **** about, but only take pills on a daily for the rest of your life, to help keep the flair ups under controle. 


So far I am doin ok, got lots of stiffnes in some joints, but I can deal with it.  I'm not gonna let something like this keep me from doing my normal things I enjoy.  I'm gonna live my life to its fullest.  But I would be cool to have a support group for people that suffer from Lupus.  We all need someone to talk to once in a while, that can understand what we are goin through.

crazycoolcat28 crazycoolcat28
26-30, F
7 Responses Sep 10, 2006

You are NOT ALONE!!! WE HAVE LUPUS!!! I am Looking forward to Helping You Understand n Listen to You... I Share Your Pain n Feelings n Fully Understand The Life with Lupus!!! WELCOME TO MY WORLD!!! You have a New Friend who has been a VICTIM of LUPUS all my life!!! Lonelycricket...

You are NOT ALONE!!! WE HAVE LUPUS!!! I am Looking forward to Helping You Understand n Listen to You... I Share Your Pain n Feelings n Fully Understand The Life with Lupus!!! WELCOME TO MY WORLD!!! You have a New Friend who has been a VICTIM of LUPUS all my life!!! Lonelycricket...

You do gist have to keep on going. Be sure you keep on top of it. Mine was dormant or in remission for many years. When it came back it destroyed my kidneys. I need a transplant now. Keep up with medicine and doctors appointments.

It's always good to talk to others. I'm available if you want a friend with the same sort of problems

It's always good to talk to others. I'm available if you want a friend with the same sort of problems

Here is a lupie hug for you. I have SLE myself and I take it one moment at a time. I do as much as I can when I can. Lupie Love

stay positive with life!