I Have Lyme Disease

I Used To Be A Man.

By: jgfisheriii

Written on July 8th, 2011

I am still male but LYME has ******** me of almost everything that defined me as a man. I had my own company, i was active in outdoor activities, I had friends and family. I have been fighting this disease for two years now. It took almost a year to find out it was LYME that was robbing me of life. It took over a year to find a LLMD. I have been on antibiotics now for over two years. I have tried everything from IV antibiotics to weird herbal remedies. Nothing has really put a dent in it.
I joined this site thinking there might be others who could relate or at least I might make contact with someone who might empathize. I have been home bound for 2 years now. I can barely walk some days and there are time I can't even speak. I am loosing hope. I am not a religious man though I do believe there is something/someone that guides our lives toward some purpose. I just can't see the purpose in this because the fog is so thick.
I have read tons of personal stories and news articles about LYME. Very few ever have a happy ending. I understand why allot of LYME patients commit suicide. The thought have crossed my mind more than once.
Oh well...rambling now. Fog is rolling in so time for more meds and a nap. Ugh

By: jgfisheriii

Age: 41-45 , Male

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8 responses

midwest11

Have you been tested for other tick-borne illnesses by your LLMD? If you haven't, you should get tested for babesiosis, ehrlichiosis (both human granulocytic anaplasmosis and human monocytic ehrlichiosis) and Rocky Mountain spotted fever to name a few. The number of cases of these diseases is much smaller in comparison to the cases of Lyme disease, but their numbers are also increasing. I can speak from experience because I've had Lyme since 1996. In the early 2000's, my LLMD tested me for co-infections and I tested positive for Babesiosis (malaria-like disease ticks and etc can spread)and my doctor added anti-malaria meds to my cocktail of drugs that I've been on for years now. Some argue that there's no such thing as chronic Lyme but I'm living proof that it does exist. Feel free to look me up or ask me questions because I've been through hell and back with all this but I'm not cured by any stretch of the imagination. I hope you feel better very soon.

Sep 13, 2011
1 like
jgfisheriii

I did change my diet. Glutton free higher protein. I have been on rotating antibiotics for 2 years now. I have good days where I can walk and talk and actually put around the yard but most days if I can climb the stairs and hole a conversation I am doing good. I am about to undergo Hyperbaric treatments for a tooth problem ( I had cancer in my jaw many years ago and now any dental work is preceded by hyperbaric treatments) I am hoping these will help fight the LYME in my brain. I know this is an experimental treatment for LYME.

Sleep is not a real problem at this time. I get 6 hrs a night and a few hours during the day. I am always tired. I am finding the LYME is effecting my vision again. 2 years ago my right eye turned in it's socket. Now the left is not working correctly. I joined this site hoping to meet others who have won this fight. There are very few success stories out there.

Jul 20, 2011
1 like
- gtaki
  First of all I did not win but definietly I am quite better,
  I have heard from one person with chronic fatigue syndrome, that similar change to diet what you did, benefited her much
  
  What benefited me the most ( I did significant progrress with that - beside antibiotics):
  1. famciclovir treatment - antiviral drug
  2. fasting based on juicing:(this is special diet mostly targeting western diseases)
  6 week long eating only low carb vegetables with juices;
  juices : carrots, apple, broccoli, cabbage, parsley,celery root
  meals: based on squash, zuchinni, cabbage, saurkraut, pickles, tomatoes, garlic onion and herbs ( no starchy vegetables like potatos and legumes),
  Vegetables should be from your garden or organic or local - very important in this order.
  3. Andrographis herb - core herb of Bruhner Lyme therapy.
  4.moderate exercising I started from few pushups and sit-downs , after that I was completly done at the beginning.
  5 I dont know if you checked but I keep having low level of vitamin D very important for immune system!. If you have severe deficiency you can balance it with doctor's high doses prescription drug, or OTC 1000 micrograms.
  definetly exposure to sun help me a lot with that too..
  6.Avoiding eating out especially junk food - eating fresh, home cooked , vegetable based diet. Strongly avoiding aspartam based food (soda etc)
  
  7 OTC L-Lysine
  Consider ruling out sleep apnoe even if you sleep enough. Many people with this develop chronic fatigue.
  Consider ruling out intoxication of toxic mold
  
  Whatever you would do I hope you will be better I will pray for you,
  
  Jul 20, 2011
  1 like
jgfisheriii

I did change my diet. Glutton free higher protein. I have been on rotating antibiotics for 2 years now. I have good days where I can walk and talk and actually put around the yard but most days if I can climb the stairs and hole a conversation I am doing good. I am about to undergo Hyperbaric treatments for a tooth problem ( I had cancer in my jaw many years ago and now any dental work is preceded by hyperbaric treatments) I am hoping these will help fight the LYME in my brain. I know this is an experimental treatment for LYME.

Sleep is not a real problem at this time. I get 6 hrs a night and a few hours during the day. I am always tired. I am finding the LYME is effecting my vision again. 2 years ago my right eye turned in it's socket. Now the left is not working correctly. I joined this site hoping to meet others who have won this fight. There are very few success stories out there.

Jul 20, 2011
1 like
gtaki

Hi,

I suffer from it too (most probably)

did you rule out sleep dyspnea?

Did you change diet ( raw diet, gerson) It can really help

Jul 19, 2011
1 like
jgfisheriii

Thank you Ajoite,

I joined looking to find other LYME sufferers. I have started Bicillian shots and these seam to be the first thing that has helped in years. However though this like so many other things is not covered by insurance. With the addition of these shots this brings my monthly total for meds to $1600.00. Ugh For the past two years it seams everytime some med begins to work insurance refuses to cover it.

Jul 11, 2011
1 like
- wildnotfree
  Hi yes, I hope you find others on here, that's outrageous about the insurance, but not suprising.
  
  Jul 11, 2011
  1 like
wildnotfree

I hope you find you're way out of you're fog, and I hope you find people on here who have had the same struggle, like you I'm not religious, but like you think we are guided to find our purpose, I hope coming on here is part of your journey out of the fog, good luck :)

Jul 8, 2011
1 like

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