Register

I Have Lymphomatoid Papulosis

Scared Mom

By: 215treysmom
Written on February 12th, 2013
My one year old son was just diagnosed with this disease as of yesterday...the doctor basically said it a rare disease that they are still learning about. There is no cure for it but don't worry it's not that bad. I need answers how can they tell me not to worry about something that they barely know anything about. Before we found out about it we were told he had molluscum, bug bites, scabies, and everything else under the sun. We have a appt coming up with the doctor and I have a lot of questions but at the same time I don't know what to ask. I am trying to be positive, but I'm scared of the unknown. He's only a baby!!!
By: 215treysmom
Age: 22-25
174 people have read this story

Your Response

Please respond with authenticity, support, and respect
By clicking "Post", you confirm that you agree to the Terms of Service of Experience Project, Inc.
1 response
  • 0
    NEW!
    Spotlight outstanding comments to help more people see them, and to show your appreciation to the author.
    lifeisgreat8
    lifeisgreat8

    Hi there,
    Im sorry/sad to hear about you precious son :( , may i reassure you that its normal to freak out when you hear about LP and especially someone you love with all your heart has it , so u google websites, pictures etc and ur desperate for answers, u can't sleep , your worried, scared etc , may I tell you this is al soooooo normal. It is a rare condition and not a lot of information is yet known about this. You as his mother needs to be strong mentally and physically for him! I have only know for 3 years that I have LP and I cried for 1 year, so many things went through my head - am I going to live for the sake of my 4 small kids? This was my only concern. Sure appearance was embarrassing but my love for my kids was far greater.( I'd rather be alive looking ugly then dead) I was re-assured by specialist that we must "learn to live life and not let it effect our quality of life" when I approached this attitude my spirits lifted and my focus was not negative and I looked forward to life and not sit,sulk and be negative. I know it would be very hard to have a child with this and as a mother you probably wish it was you and not him but can I suggest- you have him, enjoy him, he is no different, he is special, a wonderful precious gift from god, nuture him and believe in him so he may believe in himself. Find a great specialist and follow up on his check ups- all the best- ur an awesome mum!

    Feb 17
    1 like