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SPOTS

I have Lymphomatoid Papulosis. I developed these spots about 1 year ago. It was tragic. I thought i had cancer....lymphoma at that. i am only 25 years old i thought to myself...i am way too young to deal with this! well now i am on treatment and my skin is clear...which is a total blessing. thank you god for dermatologists...especially mine dr. cheng!!!

strawberriekc strawberriekc 22-25 8 Responses Aug 27, 2008

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I felt the same way at 30 being diagnosed!

What is your treatment? I was just diagnosed.

My dermatologist seems to be quite knowledgeable about LYP. When asked what causes it he says it is simply a disease, and so far it is an incurable disease.

After 18 years of this devil I've recently had a breakthrough. A treatment of 10mg methotrexate once per week has cleared up my skin and I have been LYP free for the past 3 months, which is saying a lot since I had numerous serious attacks during 2009.

I hope this helps someone else looking for a solution. Above all, don't become discouraged, there are helpful treatments available.

My dermatologist seems to be quite knowledgeable about LYP. When asked what causes it he says it is simply a disease, and so far it is an incurable disease.

After 18 years of this devil I've recently had a breakthrough. A treatment of 10mg methotrexate once per week has cleared up my skin and I have been LYP free for the past 3 months, which is saying a lot since I had numerous serious attacks during 2009.

I hope this helps someone else looking for a solution. Above all, don't become discouraged, there are helpful treatments available.

My 26 year old son was just diagnosed with LYP. I'm interested in knowing what treatment helped alleviate your sores.

Hi there,



I have lyphomatoid papulosis and have done for 30 years. I am very interested in the the comment KAfromVN, as my father used to use this chemical in his allotment.

dear strawberry, what is your treatment???? I could use some help...tried almost everything.....please respond...thanks...L.H. P.S.good luck feel healthy...

You are very fortunate to have been diagnosed with LP at such a young age. LP generally begins when a person is in his/her 20s. Mine started when I was about 21. I was misdiagnosed and mistreated for this condition for 25 years-- medications, surgeries and some radiation. It was not diagnosed when I had my first two biopsies because it was an unknown condition in the 60s when it first surfaced. I was diagnosed with the disease at Mayo Clinic in 1990. The condition got so bad I had to stop working. I have lived with it now for over 40 years. I have thought about finding others with the disease so we can help each other. I had a search going on Google and just happened onto this website tonight. I would like for all of us to compare our backgrounds and lifestyles to see if we can figure out the cause of the disease. My dermatologist feels that there is a possibility that my exposure to DDT as a child could be the cause. My father died from multiple myeloma which was supposedly caused by his exposure to DDT. It was outlawed after he was diagnosed with the cancer. I assume our condition is more common now since it can be diagnosed with a biopsy. I have probably had over 20 biopsies through the years. On a positive note, my condition has seemed to get better since I am older. The sores do always heal eventually, but I do have to have biopsies when they do not heal to make sure no cancer has set in. I did have one sore that became cancerous. It was removed at Mayo Clinic. If you have any questions, I will be happy to help. As you probably well know, most people don't know anything about the skin condition and always ask, "how do you spell it?" I just say it's rare and is not catching. Regards.

Please insist that you be referred to an oncologist and tell them that you want a complete blood work-up and a cat scan of your Chest, abdomen and pelvis. I don't want to scare you but I don't want you to wait. My husband was diagnosed with Non-Hodkkin's Lymphoma and LP is not the cause, it is a symptom. God Bless and well wishes