I Have Macrodactyly of the Hand
WELL HERE IS MY STORY WHEN MY OLDEST SON WAS BORN IN JAN OF 2008
ABOUT AN HOUR AFTER HE WAS BORN WE NOTICED SOMETHING WAS WRONG
WITH HIS HAND BUT NOBODY WOULD TELL US WHAT WAS GOING ON.
SO ME AND MY WIFE LET IT GO THINKING IT WAS NORMAL I WOOLD GO BACK
IN A FEW DAYS WELL WE WERE WRONG.NOW COME TO FIND OUT HE HAS MACRODACTYLY
IN HIS LEFT HAND.HE HAS JUST TURNED 3 AND HE KNOWS SOMETHING ISNT RIGHT
WE WORK WITH HIM TO TRY TO UNDER STAND HIS CONDITION BUT ITS STILL KINDA HARD
SENCE HE IS ONLY 3.HIS HAND HAS GOTEN TO THE POINT WERE IT HURTS WHEN HE BUMBPS IT
ON THE SMALLEST THING WEVE HAD 2 DR APPT IN THE LAST YEAR AND THEY SEEM TO
BE NO HELP AT ALL.I WISH SOMETHING CAN BE DONE SOONER FOR HIS HAND ITS SO HARD TO
SEE MY SON IN PAIN THEY WANT TO WAIT TELLTHE FINGERS HAVE GREW NORMAL SIZE
AND THEN CUT OUT THE GROWTH PLATES AND STRATEN HIS FINGERS BUT BY THEN WHAT IF ITS TOO
LATE THE THEY HAVE TO BE CUT OFF AND I DNT KNW HOW WE CAN COPE WITH THAT IF ANY BODY OUT THERE HAS ANY ADVISE
PLEASE FEEL FREE TO SHARE
ABOUT AN HOUR AFTER HE WAS BORN WE NOTICED SOMETHING WAS WRONG
WITH HIS HAND BUT NOBODY WOULD TELL US WHAT WAS GOING ON.
SO ME AND MY WIFE LET IT GO THINKING IT WAS NORMAL I WOOLD GO BACK
IN A FEW DAYS WELL WE WERE WRONG.NOW COME TO FIND OUT HE HAS MACRODACTYLY
IN HIS LEFT HAND.HE HAS JUST TURNED 3 AND HE KNOWS SOMETHING ISNT RIGHT
WE WORK WITH HIM TO TRY TO UNDER STAND HIS CONDITION BUT ITS STILL KINDA HARD
SENCE HE IS ONLY 3.HIS HAND HAS GOTEN TO THE POINT WERE IT HURTS WHEN HE BUMBPS IT
ON THE SMALLEST THING WEVE HAD 2 DR APPT IN THE LAST YEAR AND THEY SEEM TO
BE NO HELP AT ALL.I WISH SOMETHING CAN BE DONE SOONER FOR HIS HAND ITS SO HARD TO
SEE MY SON IN PAIN THEY WANT TO WAIT TELLTHE FINGERS HAVE GREW NORMAL SIZE
AND THEN CUT OUT THE GROWTH PLATES AND STRATEN HIS FINGERS BUT BY THEN WHAT IF ITS TOO
LATE THE THEY HAVE TO BE CUT OFF AND I DNT KNW HOW WE CAN COPE WITH THAT IF ANY BODY OUT THERE HAS ANY ADVISE
PLEASE FEEL FREE TO SHARE
By:
LOSTINTHISWORLD
Age:
22-25
,
Male
7
responses
