I am a 22yr old female from Indiana that was diagnosed with conversion disorder six years ago when I was 16yrs old. I was on my way home from a far away high school softball game and the next thing I remember I woke up in the ICU, unable to move my left side, I had tubes down my throat to help me breathe, having seizure after seizure, and my face drooped. Initially it looked like a severe stroke. After my breathing tube was taken out I was unable to speak and I couldn't swallow either. They did test after test and no medical reason came up. So after a few days a psych consult was ordered. I was seen, and the psychiatrist had never seen anything like it but there was no medical reason so they said it had to be psychological. They had a second opinion, and that pshychiatrist was the one that diagnosed me with conversion disorder. Never hear of it in my life, neither had some of the other doctors, and definately not the nurses.
We were told that it was a very rare disorder that had no medical cure. I was only 16, excelling at school, had lots of friends, was a star softball player of the high school, and was over all healthy and happy. What was I going to do now? Medical didn't want to deal with me and psych didn''t want to deal with me because it ws so rare. I did go home on home health and had nurses, and HHA, and PT and OT and speech therapists. My family was unable to care for me to the fulll extent. I did start cousneling and seeing a pychiatrist and a doctoer on a regular schedule.
After about 3 months, I was walking talking, and eatiing all again. Kinda like nothing ever happended. I have now relapsed for the 5 time, almost always having the same symptoms. Sometimes worse, sometimes bettr, and sometimes goyt better quicker and sometimes longer. I have been in and out of psych hopitlas, nursing homes, rehab hospitlas, and reg hospitlas for the lat 3 years a lot.
Until now, i had it all going for me, I was in college on a softball scholarship, in nursiong school and then almost 3 years ago what I thought was my life, softball, was all taken away from me, when I was hurt. I have had 14 surgeries on my leg. I havent walked since, but last year I went into another conversion and I am now recently in a state hospital in INdianapolis, IN and I am struggling because even though it is a full psych hoapitla even the psychiatristsdown there havent seen converion disorder in pprson.IF you would like to know more or have any advice email me at email@example.com