I Have Marfan Syndrome
At first i live in belgium so forgive me for any mistakes.I have known for a long time what marfan is and what it causes,my grandmother had it,my mother and now i.I've seen two different women handling it so i've seen what mistakes you can make such as closing yourself up at home as my mother does.Or getting angry by the pain as my grandmother.We all deal with it in a differenr way.Their stories told me that you better deal with your limitations and as they say here:row with the peddels you've got.Look at what you can do and not to what you've lost and everyone around you has.What about the psychological side?