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I Have Marfan Syndrome

One Squiggly Line Too Mny!

By: Bethsalomon
Written on February 4th, 2012
I'm a little worried. Lately I have been seeing squiggly lines on my left eye. This is something new to me. I have always had vision problems due to Marfan Syndrome but this is definitely a change. I am hoping o make an appointment soon to have my eyes checked out but due to the fact that I have an appointment with the surgeon on Tuesday to discuss my aneurysm I have decided to wait a little bit more. I want to see how Tuesday goes before I start anything new. I just pray that my eyesight doesn't worsen because I wait too long.

I've actually never had any problems that contact lenses haven't corrected. I'm not sure what to expect.

Has anyone had a similar experience? How was it corrected?
By: Bethsalomon
Age: 41-45 , Female
709 people have read this story

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11 responses
  • peachfuzz68
    peachfuzz68

    please tell me about your conditions, i have short stature marfans too how tall are you?

    Feb 22, 2012
    1 like
    • Bethsalomon
      Bethsalomon

      Hi! About me... Well in a nutshell I'm 5'10" and I weight 130lbs. I have had an aortic Disection and my doctors are following a second one which may or may not need surgery. Now I'm seeing floaters. I still need to have that checked out.

      Mar 5, 2012
      1 like
  • MarfanPrograms
    MarfanPrograms

    It may be what some people refer to as "floaters." If you want to speak to an expert, contact the nurse at the National Marfan Foundation at support (at) marfan (dot) org or visit the website at marfan.org and click on the ask a question link.

    Feb 13, 2012
    1 like
  • ping1954
    ping1954

    It might be something loke you knocked your head into something and it is something floating in your eye

    Feb 13, 2012
    1 like
    • Bethsalomon
      Bethsalomon

      I have thought about it. Maybe I I'd hit my head but I don't remember hitting it. Whatever the case I have no pain and I am definitely going to check it out.

      Feb 13, 2012
      1 like
    • ping1954
      ping1954

      It might have happened when you were a lot younger

      Feb 13, 2012
      1 like
    • Bethsalomon
      Bethsalomon

      True

      Feb 13, 2012
      1 like
  • ac1986
    ac1986

    I take a pain pill. Like Hydrcodon. It also seems to help me.

    Feb 4, 2012
    1 like
  • ac1986
    ac1986

    I call it lightning. Its usually when my eyes also hurt. I can't take sound and light. I have found going into a dark room. That helps me out to have some place that is dark. I also have marfans syndrome. I am now dealing with my left ribs. They are protruding out. I wish you luck with your eyes. I get it in both my eyes.

    Feb 4, 2012
    1 like
    • Bethsalomon
      Bethsalomon

      Thanks for the well wishes. What is it? Do you take any meds or something besides the dark room to help you with this?

      Feb 4, 2012
      1 like