I Knew Befor The Doctors KnewIm 19 and was told I had marfans syndrome when I was young by my parents I wasn't officially diognosed till I was 13 .i remember when a nurse first asked if I had been diognsed by it when my parents told them I hadn't and the nurse getting mad that I hadn't. but they knew because my mother has it my grandfather and his mother to . When I was 13 me &my brother were both put in to foster care and later adopted by two different famlies but we live in the same neighborhood it wasn't till then I started seeing doctors regularly for the problems that started to crop up . I've had 2knee surgeries a lung collapse and multitude of tests within the last 5 -6years it's almost as if a year can't go by without something happening lts dishearting to think that this what I have to look forward to from now on . It also makes feel guilty for bring so much worry into Laura's life. ( my adoptive mother ) I mean she took me in And everscine that time she's had to worry and try to understand how this effects me .and worry about helping me adjest to the new family we made she was single had no kids and after I came she took in more girls my for. I feel that if I hadnt come to live with Laura I don't if would even be here.my parents wouldn't have gotten me the treatments I needed I don't know what kinda of person I would be if I had staid there . Is it messed up to not hated them for they did to me but for what my. Brother and niece went through?
At the moment I'm trying to find doctors that will take my insurence I was in the hospital when I turned 18 and suddenly all my doctors dropped me I'm still trying to find new doctors . It was hard i needed doctors so could find out what was happening to me . Im Still looking for a orthopedics doctor but mostly thats about all I need .