I Have Mastocytosis
I have always had unexplained illness, allergic to everything! About 4 years ago I started having random facials edema, throwing up all the time. Then it progressed to anaphylaxis in the middle of the night, in a hot tub, hiking. I would hives for more then 8 weeks at a time! Big, itchy ones!! I seen two allergists! The put on all sorts of drugs, elimination diets. Thought I was allergic to sodium benzoate. I didn't have any reactions for about two months. Then it started all over again!! I felt like everyone was second guessing me! Asking me if it was stress, or in my head!! Then finally they start thinking Chronic Idiopathic urticaria , just about doing chemo!! Then bam!! Today I get a call saying they want to test me for Mastocytosis, very scary. I think it's scarier then there saying!!! Is there any normal living ever??!