Living With Medullary Sponge Kidneys
I was working at a hospital for over 23 years. I sympathize and totally agree with psontgirl! I have been living with this close to 4 years now. I was let go from my job because they felt that I could not perform my duties totally. I do get some understanding from my doctor, although he doesn't seem to understand the full implications of how I feel on a day-to day basis. I have pain EVERY day, some good days and many bad.....when I say good days that doesn't mean that I don't have pain! I have had 5 lithotripsies but continue to produce stones due to having 2 medullary kidneys. Emergency rooms were visited numerous times, but all they can do is "numb" the pain with morphine drips. I am so happy and relieved that I found this site because now I know I am not alone! I am unable to lift, do housework, etc. etc. I am very tired all the time...how can you not be when you are dealing with pain all the time? I wish everyone luck and hope you have a great support system like I do! All I can say is hang in there, it's not easy to live with!