Hi This Is Iride

It took my doc 3 years to find out that i have mctd. Im in the middle of a major flare up im very very weak tired dizzy and the feeling that im going to passout all the time i just take it one day at a time im a father of 4 boys ages 19 15. 12. 7 Ive been married to my highschool sweetheart for 20 years
Iride69 Iride69
36-40, M
1 Response Sep 19, 2012

Hello. I'm sorry to hear about your diagnosis. It's a lot to take in. I was diagnosed a couple of years ago with MCTD. I also have at least two forms of arthritis, lupus, Fibromyalgia/Chronic Fatigue Syndrome, Sjögren's syndrome( also known as "Sicca syndrome", is a systemic autoimmune disease in which immune cells attack and destroy the exocrine glands that produce tears), and Raynaud's disease. All of this seems to overlap in terms of symptoms, and usually in terms of treatment. I suffer with extreme fatigue that hits quickly and hard. I can fall asleep in a moment. Also, fever, red rashes, and chronic joint pain in addition to muscle pain and nerve pain. Recently, TMJ pain that affects my teeth, lower jaw, and ear canal. That pain alone sent me to the ER twice this summer. I saw an ENT who told me that this is most likely caused by lupus, and that I may have to live with it to a degree. I've found that stress plays a HUGE role in symptoms. I take pain medication, Neurontin, aspirin, an antidepressant/antianxiety medication, and I've learned how to say NO. That is very important. If you don't feel well, you will do nobody any good. Often, if you take the time to rest when you feel symptoms or fatigue coming on you will be able to lessen the severity of the cycle. Hopefully, you have family who will work with you instead of against you. Same with extended family and friends. Being honest with your situation and your needs is the best alternative. If you need help, speak up. Nobody will know what you need if you don't tell them. I've found that kids are happier and more secure when they know the truth. Explain to them on their level so they know that there will be times you need to rest, and that you will be taking medicine every day. Assure them that you are taking care of yourself and you're there for them. Be good to yourself. Realize that things are different now than they used to be. It may take more energy and time to do things. I hope things will go well for you. Hang in there, and take care.