I was diagnosed with MCTD 8 months ago. Part of me was relieved becaused I finally had an answer for all of these random things that I had been experiencing. Migraines is a big one for me and my doctor had been doing tests and research with me for them for a while. But then I started breaking out in rashes, not only in the sun but even from hot water. I learned it was inflamed blood vessels". And I was bruising...all the time...and I wouldn't even know what caused the bruises. Then I started feeling the constant aches and fatigue. When I talk to my doc about that he decided to order a full blood lab. And that's when he decided to send to to a reumatologist.

Its been getting worse. I Feel ill all of the time, I am tired and achey all of the time, but worse now it affecting my memory and it is so difficult to concentrate some times.

I'm 33 yrs old. I'm married and I have 3 children. I worry everyday what kind of life I will be able to continue to have with them. Many days I feel horrible that my husband ended up with with someone "broken". Even though he is more than supportive and takes such great care of me.

I don't want to feel like this. I try so hard to be positive. But sometimes its difficult when you just don't feel good. And unlike when you just have a cold, there is no light at the end of the tunnel.
freebtrfly freebtrfly
31-35, F
1 Response Jan 6, 2013

By no means are you broken. I was recently diagnosed as well. After reading your story it seemed as if I was reading a story about everything that I was feelilng. I know it is an adjustment to life as we know it, especially for mothers. From what I hear it is important not to stress with this diagnosis. Have you started taking medications? The one good thing is that you now have an explanation to the madnesss and you are not feeling as if you are crazy.