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Treatment Updates For Morton's Neuroma

I would very much like to hear from those of you who have Morton's Neuroma and the treatments you have received. Some have posted in the last yearmor two telling their stories. I would like to hear updates on how your foot/feet are doing now after the treament you received. What was successful or not successful in the long term?
dancerlady1 dancerlady1 66-70, F 1 Response Apr 8, 2012

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I realize my response is to an old question, but hopefully, this will help somebody, so here goes as I shared it elsewhere: I have had four neuromas, two in each foot. I have had custom-casted ortotics; one cortisone shot (the doctor stuck the needle ALL the way through my foot when he hit the nerve and sent my foot flying); 16 alcohol injections; 5 sessions of analgesic shockwave therapy with 8 more numbing injections--done every other visit; cryosurgery with 12 numbing injections; traditional surgery to remove all 4 neuromas a year ago; and now 6 weeks ago, I had the "stumps" removed and the nerve endings implanted into my arch muscles...as it should have been done in the first place.

I am six weeks out from surgery. Mine was on August 30, 2012. I originally had four neuromas, two in each foot. After having my first set of surgeries to remove the neuromas, I developed stump neuromas, which are worse than the original condition, because he simply amputated them and didn't implant them into muscle. His thinking was, "It'll find a home SOMEWHERE!" When it's done this way, the nerve will continue to try to grow back to where it came from. It can run into bone, vessels, scar tissue, etc. When it runs into something, like scar tissue, it cannot grow "through," it will develop into a stump.

I found a peripheral nerve surgeon, the best around, I am told. He is the very one who developed the technique of implanting the nerve endings into arch muscles, so they don't try to regrow into stumps. His name is Dr. A. Lee Dellon (www.Dellon.com). Because the first doctor didn't implant them into the arch muscle, they regrew (as they are supposed to, sadly) into scar tissue and developed into stump neuromas. Dr. Dellon believes the nerve, neuromas and all, should be preserved as much as possible. He would have done a decompression instead of an amputation like the first doctor, but because he came along after the first doctor, he chose to remove the new stumps and implant them into the arch muscles. He cuts through the arches in order to remove the stump, then implants the endings. If he had done a decompression, he would have cut on the tops of the foot, close to the metatarsals where the neuromas were and cut the tendon that runs between the metatarsals to decompress them. I believe he also developed this technique. While I was having my stump neuroma surgery, he also did a tarsal tunnel release because I had been dealing with TTS for a few years where I couldn't be on my feet for more than two hours per day total. Interestingly, he found that the tibial nerves on both feet split BEFORE the tarsal tunnel instead of after, so three branches were running through that narrow space instead of the one. He also found an extra muscle on my left foot that was pressing up against the nerve, so he removed it. I am a mess!

I don't have any visible swelling, but I am sure there must be plenty of internal healing still going on, and I am sure I am feeling deep bruising. My scars are painful and tight, but I can remedy that myself with massage over time. I can stretch my toes out, and have been able to do so for a few weeks now after surgery. I can walk easily, but only for short periods of time (I am getting stronger each day.), and I only feel a lump sometimes on one of the four neuroma areas. The other three are fine. Along with some burning, mostly at night, and some numbness, mostly on the left foot, Dr. Dellon said these are phantom pains. Phantom pains are very real, but unnecessary. Pain has a purpose, but in our case, there is no purpose for this pain.

I started a free, brand new discussion forum dedicated to only Morton's Neuroma, since there are none out there. There are boards that talk about this condition or that condition, but none dedicated to just MN like ours. If you are interested, please join us there and help others by sharing your experience and knowledge, and in the process learn from others experience as well. We talk about all the latest procedures for MN as well. MN Talk is at www.MortonsNeuromaTalk.com.

Looking forward to seeing you on MN Talk! www.MortonsNeuromaTalk.com