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I Have Multiple Sclerosis

My Mother...

By: Chanteuse1984
Written on December 10th, 2007
My mom was diagnosed with MS two years ago and I still know very little about it.  Apart from being on Copaxone (which I only know because of its presence in the fridge), and the original tingly sensation she suffered in her extremities, she doesn't talk about it and I don't really understand.  I assume that because 2 years have gone by with very little apparent change, she has the form that isn't as degenerative or can have one outbreak (wrong term?) and then never flare up again.  I assume, but I don't know.

I mean, I'm 23 years old, so yes, I have gone online and looked things up and found all the medical bs which makes very little real sense to me.  But I don't know what it means in terms of my mom.  In terms of my someday children growing up without her.  In terms of me growing up without her.  In terms of time and changes and future plans.

And she doesn't want to talk about it.
By: Chanteuse1984
Age: 26-30 , Female
1,310 people have read this story

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  • Tyogani
    Tyogani

    My mum also has MS. I'm the same age as you, but my Mum was diagnosed a couple of days before I was born, so her MS is quite advanced now.



    I think one of the hardest things about the disease is it's unpredictability. It affects everyone differently, and there is no way of knowing how bad it will get, or how quickly it will progress.



    I recommend going to counselling of some sort, for both of you. It's hard, but it could help you come to terms. I don't know what part of the world you're from, but here in the UK, we have the MS society, who I believe run support groups and events etc, for those affected, including relatives.



    Maybe your Mum would find it easier talking to a stranger, rather than someone with whom she has a strong emotional connection with, and who will also be directly affected by her illness.

    Feb 3, 2008
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