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Ccsvi - Thoughts? Potential Ms Cure?

My mother-in-law has MS. A good friend of mine has MS. Both of them are on the same monthly treatment with results that vary month to month. My mother-in-law has struggled with her MS and it has only been getting worse. A few years ago she had to give up her career because she was not longer able to perform her job duties. She now gets fatigued very easily and hurts so bad she often wakes up crying at night. Watch the battle their MS has inspired me to try to do what I can to help find a cure for MS. I searched for months looking for a way to fundraise to help fund MS research. I looked into the National MS Society and did not like the 20+% overhead that they keep for donations for their administrative costs. During my research I came across the CCSVI/MS research that Dr. Zamboni out of Italy had performed. Here is some info:

http://www.gizmag.com/ccsvi-multiple-sclerosis-ms-cure-zamboni/13447/
http://csvi-ms.net/en/content/ccsvi-huge-breakthrough-ms

The more I read up on it the more promising it sounded. In 2010 the National MS Society began funding CCSVI research. Dr. Krolczyk is one of the neurologists researching CCSVI (http://health.usf.edu/medicine/neurology/faculty/krolczyk.htm). He happens to also be the doctor treating my mother-in-law's MS.

Long story short, I was able to find an online fundraising site that allowed me to donate 100% of the money raised to the charity of my choice (www.microgiving.com). In working with USF's foundation I was able to setup a way to get 100% of the donations directed to Dr. Krolczyk's CCSVI research effort.

I am curious as to what others think about this potential new treatment/cure. If you are intrigued by the potential I urge you to read on and help me in an effort to raise money in support of CCSVI research. Thanks.

Here is an email my wife put together about my fundraising effort:

Dear Friends,

My husband, Chuck, is a triathlete. He can be seen running or biking around town as he trains. What you may not know is that right now Chuck is training to do an Ultra Triathlon. This consists of a 4.8 mile swim, 224 mile bike, and then a 52.4 mile run. He is doing this to raise money for the research of a new treatment for Multiple Sclerosis called CCSVI.

CCSVI stands for chronic cerebrospinal venous insufficiency. Dr. Zamboni, an Italian vascular surgeon discovered this while trying to find ways to help his wife who has MS. He discovered that veins carrying oxygen-depleted blood down the neck or spinal cord where narrowed, blocked or even twisted. This made the blood back up in a way that may be linked to MS damage. But more research is needed, this is like the chicken and the egg, are the blocked veins what cause the MS, or is it caused by the MS. Either way, patients that have blocked veins and undergo an angioplasty have marked improvement with their symptoms.

This procedure is undergoing various forms of testing here in the U.S. Dr. Krolczyk, http://health.usf.edu/medicine/neurology/faculty/krolczyk.htm is one of the neurologists who went to Toronto to listen to Dr. Zamboni speak at a conference. He was so impressed with the procedure and Dr. Zamboni that he wants to pursue this procedure through furthering the research here in Florida.

There are more then 2.5 million people affected with MS worldwide, and 350,000 are here in the United States. One of them is my mom. I have watched her struggle with double vision and loss of strength and energy. I have heard her wake up crying in the night because the pain is too great to sleep through. I felt her loss as she had to give up her job because her body and mind would no longer cooperate. The time for watching ended when her treatment options ended. Now, it is time to do something. Please help us do our part to find a cure.

To make a donation go to http://www.microgiving.com/profile/chuck and click on the "Donate Now" button. You can uncheck the checkbox to donate to MicroGiving if you do not wish to contribute to their operational costs. If you donate you will receive an email receipt that can be used for a tax deduction.

If you are unable to donate at this time you can still help spread the word by sending this email to your friends.

Thank you,

Jessica

Here are links for more information if you are interested:
http://ckemeny.blogspot.com/
http://csvi-ms.net/en
cpkemeny cpkemeny 31-35 6 Responses Jul 20, 2010

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There is a difference between responsible reporting and what Melissa Martin chose to write about the CCSVI Clinic in this article. She was in possession of factual information and documents that put the CCSVI Clinic in a favorable light but chose to withhold the information she received from the physicains and researchers at CCSVI Clinic that would have conflicted with her agenda to smear our reputation in order to sensationalize her story. At no time did anyone from the CCSVI Clinic pressure patients into going to India for the Liberation Procedure. She should have considered that the one single person who made that claim clearly had her own agenda because she was disheartened by her 'borderline' results. We simply provide information to people about our enhanced hospital stay and aftercare program should a patient decide to have the procedure. You can't pressure someone to make an important decision about their health and all of our literature clearly states that. These MS patients are more knowledgeable about the CCSVI condition and about the options for treatment than most physicians are. To suggest that they can be pressured into a decision to have the procedure done in India is ludicrous. Patients who have signed up to be part of our open-ended study on the safety and efficacy of an enhanced aftercare protocol to reduce the rate of re-stenosis versus having the procedure on an outpatient basis (which may be contributing to long term failure of the procedure) have done so to ensure that they are getting the best care possible and because they want to be part of the important work we are doing for MS patients. http://www.ccsviclinic.ca/

It is estimated that the failure rate of the “liberation therapy” may be 50% or higher, even through the most experienced and best-known surgeons in Poland and Albany, NY. As more and more people receive the therapy there is growing concern amongst patients that the procedure needs to include a post-procedure protocol that is more effective than simply releasing the patient from the hospital or clinic within hours or a day of the procedure.<br />
CCSVI Clinic Physicians have applied for an International Ethics Board study approval entitled: “PROSPECTIVE, OPEN-LABEL STUDY OF THE SAFETY, EFFICACY AND RE-STENOSIS RATES IN MS PATIENTS WITH CCSVI UNDERGOING ENDOVASCULAR TREATMENT WHO RECEIVE AN ENHANCED HOSPITAL AFTERCARE PROTOCOL. Important previous studies on non-MS patients who have had the same venous angioplasty indicate that it’s critical to position and movement control patients post-procedure, monitor them for days afterward in the hospital with various imaging techniques, and re-treat if necessary. CCSVI Clinic is already sponsoring patients for this protocol with a 10-day stay in the hospital where patients will be imaged daily, post procedure. If there is evidence of re-occlusion, they will be taken back to the OR and re-treated. Past studies of non-MS patients with the same venous blockages have noted a cascade of failure points distally in venous vessels post angioplasty, and the hypothesis proposes that the study on MS patients will produce the same results. Once home, patients will be screened and interviewed at regular intervals by CCSVI Clinic Physician Researchers for several years after the treatment to study the changes and make comparisons between those who have followed the protocol and others who have had the procedure on an outpatient basis.<br />
It should be mentioned that our research is under much scrutiny and attack from elements that are trying to control the industry and the dialogue. A well-organized campaign to discredit CCSVI Clinic and our research is underway in the social media. We would ask you to have the independence of thought to see through their campaign of deceit.<br />
Regular research updates will be published on the CCSVI Clinic website http://www.ccsviclinic.ca/ . Questions about participation may be directed toward the CCSVI Clinic administration at 1-888-419-6855.

It is estimated that the failure rate of the “liberation therapy” may be 50% or higher, even through the most experienced and best-known surgeons in Poland and Albany, NY. As more and more people receive the therapy there is growing concern amongst patients that the procedure needs to include a post-procedure protocol that is more effective than simply releasing the patient from the hospital or clinic within hours or a day of the procedure.<br />
CCSVI Clinic Physicians have applied for an International Ethics Board study approval entitled: “PROSPECTIVE, OPEN-LABEL STUDY OF THE SAFETY, EFFICACY AND RE-STENOSIS RATES IN MS PATIENTS WITH CCSVI UNDERGOING ENDOVASCULAR TREATMENT WHO RECEIVE AN ENHANCED HOSPITAL AFTERCARE PROTOCOL. Important previous studies on non-MS patients who have had the same venous angioplasty indicate that it’s critical to position and movement control patients post-procedure, monitor them for days afterward in the hospital with various imaging techniques, and re-treat if necessary. CCSVI Clinic is already sponsoring patients for this protocol with a 10-day stay in the hospital where patients will be imaged daily, post procedure. If there is evidence of re-occlusion, they will be taken back to the OR and re-treated. Past studies of non-MS patients with the same venous blockages have noted a cascade of failure points distally in venous vessels post angioplasty, and the hypothesis proposes that the study on MS patients will produce the same results. Once home, patients will be screened and interviewed at regular intervals by CCSVI Clinic Physician Researchers for several years after the treatment to study the changes and make comparisons between those who have followed the protocol and others who have had the procedure on an outpatient basis.<br />
It should be mentioned that our research is under much scrutiny and attack from elements that are trying to control the industry and the dialogue. A well-organized campaign to discredit CCSVI Clinic and our research is underway in the social media. We would ask you to have the independence of thought to see through their campaign of deceit.<br />
Regular research updates will be published on the CCSVI Clinic website http://www.ccsviclinic.ca/ . Questions about participation may be directed toward the CCSVI Clinic administration at 1-888-419-6855.

The CCSVI Liberation Treatment could be the cure but fact remains that the rate of re-occlusion is stuck at 50% and MS patients being treated in the European and Asian countries end up suffering as they did, 3 months ago. While Big Pharmaceutical Corporations and governments in the US and Canada are coming up with new ideas to stop any advancements to the CCSVI theory (Like the superbugs, etc.), millions continue to travel to countries like India and Poland to get this simple procedure and no valuable data is recorded to support the CCSVI theory. Unless we get our position strong enough to support the CCSVI Theory, we will never be able to beat the Pharma Corporations or start the treatment here and many will keep suffering and dying even after having the procedure done. I lost my elder brother last month because of a blood clot in his stent. He got liberated 5 months ago in Poland. We need to prove to the government that this works. Non-profit organizations like the CCSVI Clinic http://www.ccsviclinic.ca/ are tirelessly working to develop safer protocols with teams of world renowned surgeons even though they are feeling the negative pressure from you know who. This Atlanta ba<x>sed Organization has started Clinical Trials for CCSVI and we need to support these groups because they are our only hope to fight for the truth. Without the valuable data that they are collecting offshore, the procedures will not be allowed here, in our own countries.

I was diagnosed with Multiple Sclerosis back in 1983. I can hardly walk now and it seems my condition worsens every day. When I first heard about the Liberation procedure and its results from a friend, I thought United States would be the first to conduct the trials. I could never imagine the corruption involved. I ended up applying for this simple procedure in Poland and waiting.. The other options were to get it done in India. After researching the internet extensively, I came across http://www.ccsviclinic.ca/ . They are screening for CCSVI in Fargo, ND and have very affordable packages for the Liberation procedure in India. I called (404)461-9560 and spoke to their nurse administrator Lisa whose priceless support made me realize that we are not alone in the fight against MS. They are screening within the US and Canada, their medical tour package includes flight arrangements and help with the visas, world class accommodation and meals within their hospitals, the liberation procedure, a stent if needed, medications necessary, a site-seeing tour, Pre-and post-procedure supervision, Full medical file including copies of charts, screens, CDs of Venograms, blood work, EKGs, etc. Post Procedure Screenings, follow-up and consultation with surgeons for the next 6 months and so many other provisions Lisa told me about, I can’t recall however you might be able to find out more on their site.. http://ccsviclinic.ca/?page_id=564 . They are providing all of this at just $13000 as compared to the other companies that charge something like $20000 just for the procedure. You may also contact Lisa by emailing her at apply@ccsviclinic.ca or calling her on (404)461-9560. I am getting liberated mid-October and I am so very thankful to everyone at CCSVI Clinic for making this happen!

Multiple Schlerosis is thought by many non-mainstream doctors and dentists to be mercury poisoning, you might ask them both if they have or had "silver" fillings in their mouth. If this is true for them, there is a way to get the mercury out of their body without any type of reaction and that is safe to do while mercury fillings are still in place. <br />
<br />
The product is called Natural Cellular Defense by a company called Waiora. The thing is that I am a distributor so I totally understand how people might think this is a conflict of interest, but what can I say I truly believe in it and I used it for myself for many of these same symptoms and it WORKS! That's why I decided to become a distributor. Do a little research and I think you will find that what I say is true. I think this product is a miracle product. I would encourage you to check my distributor website at www.mywaiora.com/671334. I'm in this business to help people and hopefully I can help these two people who are close to you. <br />
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One more website that is fascinating to me in it's explanation of mercury poisoning is www.zapintergate.ca/. It's great reading if you have a little time.<br />
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Best of luck to you, your family, and your friends!