Ccsvi - Thoughts? Potential Ms Cure?My mother-in-law has MS. A good friend of mine has MS. Both of them are on the same monthly treatment with results that vary month to month. My mother-in-law has struggled with her MS and it has only been getting worse. A few years ago she had to give up her career because she was not longer able to perform her job duties. She now gets fatigued very easily and hurts so bad she often wakes up crying at night. Watch the battle their MS has inspired me to try to do what I can to help find a cure for MS. I searched for months looking for a way to fundraise to help fund MS research. I looked into the National MS Society and did not like the 20+% overhead that they keep for donations for their administrative costs. During my research I came across the CCSVI/MS research that Dr. Zamboni out of Italy had performed. Here is some info:
The more I read up on it the more promising it sounded. In 2010 the National MS Society began funding CCSVI research. Dr. Krolczyk is one of the neurologists researching CCSVI (http://health.usf.edu/medicine/neurology/faculty/krolczyk.htm). He happens to also be the doctor treating my mother-in-law's MS.
Long story short, I was able to find an online fundraising site that allowed me to donate 100% of the money raised to the charity of my choice (www.microgiving.com). In working with USF's foundation I was able to setup a way to get 100% of the donations directed to Dr. Krolczyk's CCSVI research effort.
I am curious as to what others think about this potential new treatment/cure. If you are intrigued by the potential I urge you to read on and help me in an effort to raise money in support of CCSVI research. Thanks.
Here is an email my wife put together about my fundraising effort:
My husband, Chuck, is a triathlete. He can be seen running or biking around town as he trains. What you may not know is that right now Chuck is training to do an Ultra Triathlon. This consists of a 4.8 mile swim, 224 mile bike, and then a 52.4 mile run. He is doing this to raise money for the research of a new treatment for Multiple Sclerosis called CCSVI.
CCSVI stands for chronic cerebrospinal venous insufficiency. Dr. Zamboni, an Italian vascular surgeon discovered this while trying to find ways to help his wife who has MS. He discovered that veins carrying oxygen-depleted blood down the neck or spinal cord where narrowed, blocked or even twisted. This made the blood back up in a way that may be linked to MS damage. But more research is needed, this is like the chicken and the egg, are the blocked veins what cause the MS, or is it caused by the MS. Either way, patients that have blocked veins and undergo an angioplasty have marked improvement with their symptoms.
This procedure is undergoing various forms of testing here in the U.S. Dr. Krolczyk, http://health.usf.edu/medicine/neurology/faculty/krolczyk.htm is one of the neurologists who went to Toronto to listen to Dr. Zamboni speak at a conference. He was so impressed with the procedure and Dr. Zamboni that he wants to pursue this procedure through furthering the research here in Florida.
There are more then 2.5 million people affected with MS worldwide, and 350,000 are here in the United States. One of them is my mom. I have watched her struggle with double vision and loss of strength and energy. I have heard her wake up crying in the night because the pain is too great to sleep through. I felt her loss as she had to give up her job because her body and mind would no longer cooperate. The time for watching ended when her treatment options ended. Now, it is time to do something. Please help us do our part to find a cure.
To make a donation go to http://www.microgiving.com/profile/chuck and click on the "Donate Now" button. You can uncheck the checkbox to donate to MicroGiving if you do not wish to contribute to their operational costs. If you donate you will receive an email receipt that can be used for a tax deduction.
If you are unable to donate at this time you can still help spread the word by sending this email to your friends.
Here are links for more information if you are interested: