I Might Have Multiple Sclerosis.....

I have had two cervical spine surgeries.

The surgeries did not remove all my symptoms.

My doctor decided to get a whole new set of MRI films, and then he said, "I think you have multiple sclerosis."

I am almost 50 years old, who gets multiple sclerosis at my age? How can your doctor suddenly say I think you have multiple sclerosis?

I have to wonder if he has just run out of other things to treat, or does his ego not allow him to admit his surgeries did not cure all that ails me.

And then I think, I am just kidding myself because I do not like the diagnosis that I hear.

How long am I supposed to go on not knowing if I have an incurable disease, or some other problem?

WittyOne WittyOne
46-50, F
7 Responses Aug 3, 2010

A quick update - I am still waiting. The neurologist could not rule it in or out and said to get another set of MRI scans in 6 months. That is where I am at, waiting for approval from insurance for the scans. If he does not feel confident in saying I do not have MS after this, he will do a spinal tap.<br />
The waiting continues, I don't think about it too much, I have plenty of more pressing things to deal with.

A quick update - I am still waiting. The neurologist could not rule it in or out and said to get another set of MRI scans in 6 months. That is where I am at, waiting for approval from insurance for the scans. If he does not feel confident in saying I do not have MS after this, he will do a spinal tap.<br />
The waiting continues, I don't think about it too much, I have plenty of more pressing things to deal with.

Waiting for the doctor to help you and waiting for results are tense. Since 2005, i have had a neck fusion, lumbar surgery, spells where I cannot walk, numbness and tingling on one side of my body. These attacks come on all of a sudden then fade out. They might not last all day, but the spascity in my legs have forced me to use a walker. I cannot work at my job because of this ( heavy lifting and all) and fear they will let me go. Finally this last episode the doctor sends me to Mris with and without contrast and puts down possible Multiple sclerosis and DOES NOT tell me. Sees something on them and had me take a spinal tap last week. and says it seems to be MS. Syas he will let me know when i see him on Groundhogs day. This waiting for a definitive answer is so hard most cannot understand. And like you..I am older (57) and it shouldnt be happening to me. I am too old statistically speaking for this and it usually happens to females. It is driving me crazy! And the worst is using a walker..so humiliating. I feel for you!

Been diagnosed since March 2010. In Oct 2007 had to go to the emerg, i passed out in my washroom and the doctors diagnosed me with an inner ear infection. i was in bed for 3mths, suffering from vertigo and could not walk, In feb of this year my neuro said that it was my first bought of MS that i had in 2007, the leisons in my brain were far to big and to numerous to be new. So i had been clean or did not have any episodes for a little over 2yrs. i have since started copaxone, *damn sucks.. shooting every day.<br />
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What i have not been able to get use to is the fatigue, i am always so tired and have been relying on energy drinks to keep me going.<br />
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And my stomach.. Gosh.. terrible!! good thing for imodium!<br />
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WittyOne, listen closely, start taking vitamin D.. Take 4000 units a day.. Don't ask why .. It's just what my neuro said is the recomended dose.. It's a good start. <br />
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Good luck and hun.. Life does not end because you have MS.. Its a new beginning.

Thank you for the good wishes, same for you!<br />
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There is still no definite diagnosis, they want to do an MRI with contrast next. It is hard to deal with the situation, when you do not really know what the situation is. I try not to give it much thought. I figure there will be plenty of time to fret about it once they figure it out.

I'm going for my MRI on Monday and have to wait until the 16th to get the results. <br />
It was the scariest thing last Friday when I lost the ability to walk. It was temporary, but none the less scary! It does feel like I have weights on my feet when I walk, and the tremors are terrible. <br />
I'm 36 years old. I think I should have been tested for this years ago. <br />
Good luck to you!

It’s a strange disease. I’m 44 and was diagnosed with MS in March 2010. Prior to March 6th, I never had a single symptom or issue. now i inject myself ever other day with meds and still have other ms related issues.<br />
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i wish you the best of luck.