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Dec 30th, 2007
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I
was diagnosed with MS over a year ago. I woke up one morning with double vision. Went to an opthamologist who ordered blood work and an MRI. He called then next day and said it looks like MS to him, as he has other patients with it...see a neurologist. So I did, had another MRI and my doctor confirmed it. So far, that has been my only "attack" "exacerbation" "episode" or whatever you want to call it. Oh, and my vision went back to normal within a week.
I had my yearly MRI done in October and it showed no new lesions or activity. WooHoo! I take Copaxone daily, and yes, I'll admit, I've missed a few shots. Bad me, but sometimes life happens and you get busy and you forget. Overall though, I DO take my shot everyday.
I have yet to go to my local NMSS support group meeting. I feel kind fo weird going to one...I'm not in a wheel chair (yet), nor do I use a cane or walker (yet). I have no problems...YET! Therefore, I don't think I have that much to talk about in a support group. Am I wrong? Any opinions would be welcome!
I'd really like to hear from other people who have this stupid disease. And that's what it is...a stupid, dumb-*** disease that makes no sense, has a crazy number of symtoms and has no cure - YET!!!
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  | Posted Jan 5th, 2008 at 2:54PM I think you will find when you go to a support group there are alot of people, even like you. While I wish to God I only had one episode I think its good to have made some connections with other people in your shoes. If your like the majority of people with this disease, you will have something surprise you out of the blue. Its good to have established a relationship with other people who can understand you, cause Lord knows its hard to find people who don't have MS that can really understand what your dealing with. Best of luck to you.   |
 | Posted Mar 20th, 2008 at 10:41PM thanks for sharing as I am in a similar situation. I have had 3 bouts of double vision lasting 3 weeks to about 5 days. The last 2 being milder then the first and all at stressful times in my life. I have had an MRI that has shown some mild lesions suggestive of MS, waiting for another MRI on May 1 and then to decide on a spinal tap or not. My neuro has not started me on meds due to being only possible MS and lesions suggestive of. I too feel that I do not have the severity of others initial symptoms but it still plays heavy on my mind about my future being a parent, career and with my partner. Thank you for sharing as I have been trying to find a story of another MS person with only double vision symptom. I wish you well |
 | Posted Aug 17th, 2009 at 6:24PM Hi! That is how my MS symptoms began for me too. I started with double vision. Went to optomatrist, then to the ER because I began to have dizzy spells. After MRI's and lumbar puncture, they said I had MS. But the double vision hasn't been back since the first time it started. I'm on Copaxone and I think it's working, no real bad exacerbations yet. I've only been diagnosed for a year now, so I don't know what to expect down the road, but can only hope for the best! |
 | Posted Oct 26th, 2009 at 3:28PM That was exactly what happened to me. My vision was gone for about a week. After the 3rd day I went to neurologist and found out I had MS. I have had it now for 4 years. My shot is the once a week Avonex. I think it is great. Since then I have had a little blurried vision but my legs and back hurt. It seems to hurt more when aunt flo comes to town. I guess it just strains my body but I don't feel bad all the time and I am not crippled yet. So I feel blessed. I went to one of those meeting and was scared to death. Everyone was on a walker, wheelchair,cain or something.I was content with the fact I have MS until I went to a MS meeting. They say don't stress. Will somebody please tell me how not to stress.. Life in general is stress Especally if you have a family. |
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